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Abe Froman
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Member Since Sep 2014
Location: Alabama
Posts: 339
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Default Jun 17, 2018 at 11:56 AM
 
Quote:
Originally Posted by Fastest600 View Post
My headache started in Dec 2017. I have a history migraines but this is chronic everyday 24/7 pain level from 8-10. I had 4 failed back surgeries so they thought I had a CFS leak.
They did non-targeted blood patches but I still have the headache. I've seen many headache doctors including my physiotherapist and psychiatrist. None of them have ideas what causing the headache.I 'm bedridden from the pain of this headache and cannot work anymore. Do any of you on this web site ever experience this before or can suggest anything to me. Thank you.

Thank you for sharing.

As some resources you might check out some Facebook pages like:
Chronoic Caily Headache and Migraine Support Group
New Daily Persistent Headache
New Daily Persistent Headache
and
New Daily Peristent Headache Support for Patients

Those won't be anonymous but they are closed groups which means people you know won't be able to see what you post unless they are also in the groups.

If you haven't seen a neurologist who is listed as a headache specialist then I would consider seeking one out. I started on a medication called Keppra which has gotten me out of bed. I've also seen progress with a Physical Therapist(also like a Physiotherapist depending on where you live). There is also a new medication that just came on the market last month in the U.S. called Aimovig that is specifically for treating migraines. I have been diagnosed with New Daily Persistent Headache and don't know for a fact that Aimovig will work for me but I'm looking forward to trying it. There are lots of other medications that some people have seen success with too. Botox is something else I'm on.

There is a known downward spiral of comorbitity between chronic headaches, depression, and anxiety. I would consider fining a therapist or counselor to help you through this and relieve stress.

If you find the right doctors and try all the medications and absolutely nothing works then there are potentially surgical options. Two are Nerve Decompression Surgery and Cervical Decompression Surgery. I'd consider these last resort options.
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