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htoun
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Member Since Feb 2016
Location: southern Ont. Canada
Posts: 327
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Default Jan 14, 2019 at 11:25 PM
 
I unfortunately can shed any light on sjogren's I'm being tested for it right now. I already have hashimotos which is an autoimmune disease that takes out the thyroid. They have been trying to find my correct dose of throxian for 23 years. It's getting old. It took a while for them to notice it was hashimotos and not just an under active thyroid. Because autoimmune isn't constant and there is technically nothing wrong with my thyroid some times it actually makes thyroxan which really mucks up my blood numbers.


My new doctors office (long story) treat me like a fat hypochondriac which is annoying to say the least. My endocrinologist wrote a note asking them to test for sjogrin's. I was complaining that I was thirsty and dry. Drinking water makes the thirst greater. Some days I'm drinking over 4 litres which is just crazy. First test came back inconclusive. So off to see a other specialist fun. Ton of blood work, eye doctors appointment with added tests and a scan of my saliva glans to be done. No results yet and I am still waiting for an appointment for the scan.


So yeah no help what so ever but darn it is nice to know that someone else knows that name. I will let you know if I find out anything about it.
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