I've been on clozapine as a treatment for schizophrenia for a bit more than a decade. Last year, my pdoc started me on Latuda and started titrating the clozapine down. This was all going very well, and last month I was finally free from the clozapine. My mood and psych symptoms were markedly better since starting Latuda, and the physical effects from stopping clozapine were just as dramatic.

In the past week or two, I started having more mood disruptions (breaking into tears for no reason, despair at personal relationships/loneliness, etc) and some symptoms like paranoia of outsiders, hearing threats, etc. It isn't as bad as it used to be, but it has me worried (general anxiety sucks. I'm usually not one to get anxious about my medication changes though).

I am terrified of truthfully reporting this (I absolutely know that I SHOULD). I almost never hold anything back from my psychiatrist anymore. But I really don't want to have to start the clozapine again. I started lowering the dose over a year ago (from a height of 500 mg a couple of years ago, which was insane, it was at 300 mg a year ago), and things were going fine until, as i said, recently. And physically, I am a thousand times better. The Latuda has definitely been working. My doc was afraid of some psychosis returning with stopping the clozapine entirely, though, so I'm afraid that she will want to go back to it.

I can stand things as they are right now. I don't know what to do. I think I should tell my therapist and see what she says before telling my pdoc, but I'm also sure that she will tell me what part of me tells myself in reporting it. I can't bring myself to do it, though, I'm that afraid of clozapine. I don't want that again.

I KNOW that I should report it all. I just need advice in actually doing it, or experiences other people have had. I don't really have a support network I can ask.

Post note; I am afraid of both the physical side effects of being stoned, having no energy, losing thought patterns, etc with clozapine, as well as the risk for permanent damage (though my tests have all been fine for years).

Thanks.