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Seafarer
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Member Since Jul 2019
Location: US
Posts: 473
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Default Aug 04, 2019 at 08:55 AM
 
Quote:
Originally Posted by Keyplayer View Post
Hi Ill ,

This sounds like a delayed onset of POTS that usually presents in children , but can present at any age. As with most autoimmune diseases , there is truly on definitive cure , however your symptoms can be in a state of remission with the proper care. A- Wiki _ link :

Postural orthostatic tachycardia syndrome - Wikipedia

Take care , good luck

Keyplayer
I was thinking along these lines too. It wasn't until I was in my 40s that I finally found out that what I called my "mysterious exotic disease" -- that no one else believed in -- has a name. Mitral Valve Prolapse Syndrome Dysautonomia. Even now, more than 20 years later, there is only one Dysautonomia clinic in my region -- not my city, not my state, the whole region. Sigh.
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