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Cocosurviving
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,886
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PC PoohBah!
Default Jun 01, 2020 at 06:07 AM
 
Thank you all for the responses. I’ve been gone so long I can’t remember how to work the features. Lol
I’m still in Oklahoma right now. Yesterday was really stressful because I was sent messages about fires in Nashville. I’m oldest son and I have other family in Nashville too. It took a while before I was able to reach some of them. All the situations that are unfolding further prevent me and my teenage daughter from being able to return to Nashville.

With the many autoimmune illnesses that I have it was actually recommended I no longer live in Oklahoma because of the environmental toxins. Also this state lacks a lot of resources and getting into see specialists take months.

I messaged one of my best friends that workers at Vanderbilt Medical Center. I was having an emotional moment. May 31st, 2012 was the last day I worked. I was just so flooded with memories and how my life has changed. Thinking about all the medical mismanagement, medical redlining and medical gaslighting.
Over the last two years I have had all my medical records and labs mailed from Nashville, Tennessee to Oklahoma.
I was seeking answers and I was not ready for the outcome. The healthcare field let me down and many others. My medical records and labs clearly had indicators of the multiple chronic illnesses that it took me years to get correctly diagnosed with. Which the lack of “correct” treatment exacerbated my symptoms.
It has been a wild roller coaster 🎢 many days filled with tears, frustration, depression and exhaustion.
Many, many hospital and urgent care trips.
I had to learn to seek my information to research from whoever had it regardless of the state or country they lived in.

__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Thanks for this!
~Christina