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Old 02-09-2019, 08:49 AM #1
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Default Adult with Asperger Syndrome

I have been working with a person with Asperger syndrome for a very long time , right from childhood.
This person has always struggled with Socialisation, behaviour issues and is not really able to focus on one target for long time.
All this while we have gone through some very tough times and have tried loads of different medications and have achieved some stability from time to time but not for a long period.
Medication compliance has been an issue and probably will remain in future as well.

We have fought very hard but the current episode where this person is having an episode of mania, has kind of broken us.

This person is 33 now and we are feeling directionless.

I need some help and guidance here. I am based in Delhi, India and struggling to find support groups.
Also is it advisable to try alternative medication.
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Old 02-10-2019, 07:46 PM #2
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Smile Re: Adult with Asperger Syndrome

Hello lokiez: I'm sorry I'm not able to comment on your concerns. But I noticed this is your first post here on PC. So... welcome to Psych Central. One additional forum, here on PC, that may be of interest to you would be the partners of people & caregivers forum. Here's a link:

https://forums.psychcentral.com/part...ivers-support/

And then here are links to 4 articles, from Psych Central's archives, that may be of interest:

Asperger's Syndrome

Debunking 6 Myths About Asperger Syndrome

Neuroscience Sheds Light on Why People with Asperger's Syndrome Lack Empathy

Helping Someone with Asperger Syndrome Bridge the Gap between Cognitive and Emotional Empathy

I hope you find PC to be of benefit.
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Old 02-11-2019, 05:21 AM #3
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I'm so sorry you and this person are struggling, lokiez It sounds like you're going through a lot. Does he see a therapist? Maybe that could help. I'm so sorry, I know it's hard. Dealing with Asperger isn't easy. You're definitely not alone in this. What do you mean by "alternative medication"? Either way, I think meds could definitely help him. So keep trying. Hopefully you'll be able to find the right meds combination for him. Does this person have a support system IRL? Any friends or family that he can reach out to? I'm so sorry, please don't give up. Try to hang on. You can do this! You're strong, I know that. I believe in you. I'm so sorry, I wish I've had more advice to give to you. Is there anything we can do to help you? Please let us know. Remember that we're here for you if you need it. Feel free to vent here as much as you want. We'll listen to what you have to say. We care about you. Keep writing here if it helps. I'm here for you as well if you need it. Feel free to PM me anytime. Let me know if I can do something to help you. Wish you good luck! Let us know how it goes. Sending many hugs to you
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Old 02-11-2019, 12:56 PM #4
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Default Re: Adult with Asperger Syndrome

@Skeezyks : Thanks for the links, it's helpful. "people & caregivers forum" will be very helpful. Thank you so much.

@MickeyCheeky : Thanks for such nice words. I really wanted to cry as i read but tears don't come easily. It has been such a painful journey and i have fought hard but the latest episode has left me wondering, am i in right direction?
I am in touch with a Psychiatrist and medication has been prescribed but compliance becomes an issue from time to time. Things were improving a bit for sometime before he went off medication and i had never imagined in my wildest of dreams that it will reverse all my efforts for years. He is now rude, abusive, hates us, stay out till late, wants to trust stangers rather than us, wants to spend lots of money.
His biggest issue is, he has very poor social skills and hardly has any friends. People make fun of him or are rude to him at time. So this leave only me and my mother to help him. As we guide him, we try to stop him from crossing some boundaries which he never likes and hates us for it. It leaves us clueless as to what to do. he demands money and tries more and more, so we need to stop somewhere and we become his enemy.
Due to lack of friends, he relies on facebook or at times random people, then meets them which creates a difficult scenario as those are total strangers. If we intervene, again we are enemies, and it leaves us completely helpless. I understand from his perspective that it is his only source of social circle but it makes him vulnerable especially bcoz IQ is slightly above borderline.
His IQ is not great so its difficult to reason when he really wants something. he is fed up of being told that he needs to correct something, or change or learn new things. So his defence is that "what if you might be wrong, you always think negative". If he ends up in a mess then its gods fault.
It leaves me clueless and sometimes hopeless. Medicine is my only hope but its been a month and results are not to be seen with things becoming worse[same medicine has helped in past].
At times feeling is that my hands are tied and i am being beaten up, i just can't do anything. Even if i am frustrated, i have to be polite...cannot afford to be angry. But there are times i just cannot control myself but then it bounces back on me, as he moves away from us and at times into isolation.

By alternate medicine i meant Homeopathy, people say it can work but i want to hear from someone if it helped them.

His support system is me, whom he hates. So in a way, a support system which chases him rather him using it.

At times i feel, how long can i continue like this ? But if i dont support, this person will be on roads it seems. I want to do as much as i can but it feels nothing is sufficient. Going through these cycles of episodes has taken a big toll on me. Its been more than 20 years i have supported him and i just didn't want this to happen again. Its like creating a house of sand which takes years of effort and then just one gust of wind...everything blows away.

Its good to be on this forum atleast i share my heart out. World i general cannot even relate to my problem.
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Old 02-11-2019, 04:56 PM #5
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A friend was treated with homeopathy but did not have any good results from it. Here is an article that gives both sides. Is there any proof that homeopathic medicine works? | Notes and Queries | guardian.co.uk
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Old 02-12-2019, 10:17 AM #6
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Default Re: Adult with Asperger Syndrome

I'm so sorry, lokiez Please don't give up. Keep doing your best like you're already doing. Perhaps meds will just take a while to work. Sometimes it can happen. Don't give up hope. I think it's wonderful that you're so dedicated to him. I hope things will get better soon for both of you. You both deserve love, peace, happiness and support. I'm here for you to support you if you need it. You know I won't judge you. Remember that we're here for you if you need it. Feel free to PM me anytime. Let me know if I can do something to help you. Wish you good lukc! Let us know how it goes. I'm so sorry you have to deal with this
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