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Default Jul 03, 2020 at 05:48 PM
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For a long time I have been struggling with tremors from my meds, mostly hand tremor. Neither Cogentin nor Proponalol have helped at all. My pdoc has prescribed Amantadine, as it is an off-label treatment for movement disorders.
Does anyone have experience with Amantadine?

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Default Jul 04, 2020 at 09:06 AM
  #2
I do, Beth. I was in the hosp in March and was given Amantadine as a counter-med to fight against leg-tremors that were caused by another medicine (I cannot remember its name, I'm sorry. I'm still having memory issues from March). My personal experience with Amantadine was that after a day or so I noticed a difficulty speaking properly. I was mumbling, and complained about it during inpatient. I was told my by IP doctor that I was imagining this. It took two days of persistence to make my case that this was not something I was making up. I was able to get computer time and researched all my meds and then made my case to another doctor who was more reasonable and heard me. That is indeed one of the side effects of Amantadine, albeit one of the lesser ones.

This said, Amantadine did work on the tremors, I just couldn't deal with the side effect that I experienced. I hope that your experience is very different than mine!
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Default Jul 04, 2020 at 01:41 PM
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This is the first time I heard of this med. BethRags, thanks for bringing this up. Swimmingly, thanks for sharing about your experience. That does sound concerning!

BethRags, please do share your experiences with it if you try it. Propranolol did nothing for my past akathisia either (I do still take it, but for something else). Cogentin gave me severe constipation. Luckily, I no longer have akathisia. I was taken off those meds. It was particularly horrible when I got it on Geodon. I hope I never get it again, but am curious about other possible akathisia meds.
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Default Jul 04, 2020 at 06:18 PM
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Originally Posted by swimmingly View Post
I do, Beth. I was in the hosp in March and was given Amantadine as a counter-med to fight against leg-tremors that were caused by another medicine (I cannot remember its name, I'm sorry. I'm still having memory issues from March). My personal experience with Amantadine was that after a day or so I noticed a difficulty speaking properly. I was mumbling, and complained about it during inpatient. I was told my by IP doctor that I was imagining this. It took two days of persistence to make my case that this was not something I was making up. I was able to get computer time and researched all my meds and then made my case to another doctor who was more reasonable and heard me. That is indeed one of the side effects of Amantadine, albeit one of the lesser ones.

This said, Amantadine did work on the tremors, I just couldn't deal with the side effect that I experienced. I hope that your experience is very different than mine!

Thank you for sharing your experience, swimmingly. Not being able to speak properly sounds like a scary and unpleasant experience. Amantadine seems to have a number of side effects that are odd. I have my fingers crossed for the better effects of the medication.

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Default Jul 04, 2020 at 06:24 PM
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Originally Posted by BirdDancer View Post
This is the first time I heard of this med. BethRags, thanks for bringing this up. Swimmingly, thanks for sharing about your experience. That does sound concerning!

BethRags, please do share your experiences with it if you try it. Propranolol did nothing for my past akathisia either (I do still take it, but for something else). Cogentin gave me severe constipation. Luckily, I no longer have akathisia. I was taken off those meds. It was particularly horrible when I got it on Geodon. I hope I never get it again, but am curious about other possible akathisia meds.

Apparently Amantadine is a medication used for Parkinson's, but is also used for akathisia, movement disorder/tremor, and for the fatigue of multiple sclerosis and chronic fatigue syndrome. It would be really great if the med helps offset the fatigue that is a side effect of psych meds.

I'll definitely share my experiences with Amantadine.

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Default Aug 01, 2020 at 08:59 PM
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Hi there. I’m brand new here and I was looking for Parkinson’s related information and found your post. I take 100mg 3x a day of Amantadine and 1mg of Pramipexole 3x also. These drugs help my tremors. I have also found that it was developed a long time ago as an antiviral and that currently there are studies showing it may have an effect on Covid-19. Any how I haven’t noticed a side effect yet for me
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Default Aug 03, 2020 at 11:46 PM
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Originally Posted by MaigerTom View Post
Hi there. I’m brand new here and I was looking for Parkinson’s related information and found your post. I take 100mg 3x a day of Amantadine and 1mg of Pramipexole 3x also. These drugs help my tremors. I have also found that it was developed a long time ago as an antiviral and that currently there are studies showing it may have an effect on Covid-19. Any how I haven’t noticed a side effect yet for me

Hi Tom! Is your tremor the result of a med side effect?

I recently read about Amantadine being an anti-viral. Really interesting.

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