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Magnate
Member Since Feb 2006
Location: Napa Valley
Posts: 2,116
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#1
I get ECT treatments every four weeks. In between the treatments I have a permanent, low-grade headache. It's almost not there until I nod or shake my head. I fear it's a result of the ECT. I also fear telling my doc lest she stop my treatments. I desperately need to continue.
Can anybody relate to the permanent ECT headache? __________________ >< |
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Anonymous41462, Gabyunbound, Innerzone, rwwff
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Grand Magnate
Member Since Jul 2014
Location: Milky Way
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#2
I’ve had a lot of ECT but not like the regular maintenance that you have. I’ve had bad headaches after but they went away by the end of the day. What you’re experiencing could be serious so I suggest you talk to your doctor despite your fears. I hope all goes well.
__________________ Bipolar 1 with psychotic features PTSD "Phew! For a minute there I lost myself." 'Karma Police' by Radiohead |
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Daonnachd
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Daonnachd
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Member
Member Since May 2017
Location: MidWest
Posts: 74
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#3
I had 6 ECT Treatments. I had a horrible headache the first time, but after that I didn't have any.
__________________ Your light has the ability to light others Ignite the world |
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Daonnachd
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Daonnachd
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Poohbah
Member Since Jun 2014
Location: Earth
Posts: 1,193
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#4
I've had tons of ECT and still continue to get maintenance treatments. I haven't had experience with headaches except right around treatment time. I have them give me toradol in the IV prior to the ECT which has drastically reduced the headache issue.
I know the feeling of "uh oh something works and the doc might not like this" |
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Daonnachd
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Daonnachd
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Grand Member
Member Since May 2016
Location: U.S.
Posts: 944
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#5
I can't relate to ECT, but just wanted to chime in and say that maybe they can give you some medication for the headaches: either through the IV to prevent them, or for afterwards. If this is possible, then you wouldn't have to worry about them wanting to stop the ECT. I suspect that headaches post-ECT are pretty common, so they must have some sort of treatment for them?
Good luck with this, and I hope all will be resolved! __________________ Bipolar 1 Lamictal: 400 mg Latuda: 60mg Klonopin: 1 mg Propranolol: 10 mg Zoloft: 100 mg Temazepam: 15 mg Zyprexa 5-10mg prn (for Central Pain Syndrome: methadone 20 mg; for chronic back pain: meloxicam 15 mg; for migraines: prochlorperazine prn) |
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Daonnachd
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Daonnachd
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Legendary Wise Elder
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Member Since Jul 2011
Location: Tennessee
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#6
Pre medicating would probably make all the difference.
As mentioned Toradol might be a good place to start. __________________ Helping others gets me out of my own head ~ |
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Daonnachd
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Daonnachd
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Magnate
Member Since Feb 2006
Location: Napa Valley
Posts: 2,116
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#7
I already get Toradol. It helps keep the immediate headache at bay. What I'm asking about here and now is a low-grade headache which lasts weeks and flairs the worst when I shake my head no or nod yes. I also experience additional pain when walking down stairs because of the jarring effect.
But it doesn't sound like anybody here is having or has had this sort of experience. I'm stuck trying to decide if I'll tell my doc about it before I get my ECT this Friday. __________________ >< |
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Magnate
Member Since Oct 2017
Location: canada
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#8
It would make sense to tell your doc.
__________________ BP 1 with psychotic features 50 mg Lyrica 50 mcg Synthroid 2.5 mg olanzapine |
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Daonnachd
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Daonnachd
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Magnate
Member Since Feb 2006
Location: Napa Valley
Posts: 2,116
18 3,379 hugs
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#9
__________________ >< |
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Gabyunbound, tecomsin
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