advertisement
Reply
Thread Tools Display Modes
Victoria'smom
Legendary
 
Victoria'smom's Avatar
 
Member Since Apr 2012
Location: Earth
Posts: 14,897 (SuperPoster!)
11
5,425 hugs
given
PC PoohBah!
Default Apr 25, 2019 at 05:37 PM
  #21
I would talk to your GP to taper off the lamictal since it can't be cut. Know it'll take a while to stable out. Just hold on. We're here for you. What are you doing about your pain?

__________________
Dx:
Me- SzA
Husband- Bipolar 1
Daughter- mood disorder+


Comfortable broken and happy

"So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk
My blog
Victoria'smom is offline   Reply With QuoteReply With Quote

advertisement
fern46
Grand Magnate
 
Member Since Mar 2019
Location: USA
Posts: 3,021
5
4,300 hugs
given
PC PoohBah!
Default Apr 25, 2019 at 07:16 PM
  #22
Quote:
Originally Posted by ~Christina View Post
Once I am off meds and the half life is passed then allowing 3-4 weeks for my brain to function sans meds is the goal. Thanks
I'll be thinking good thoughts for you. I just read the list of all the meds you are on. I can imagine a break would feel freeing!
fern46 is offline   Reply With QuoteReply With Quote
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 25, 2019 at 07:38 PM
  #23
Quote:
Originally Posted by Miguel'smom View Post
I would talk to your GP to taper off the lamictal since it can't be cut. Know it'll take a while to stable out. Just hold on. We're here for you. What are you doing about your pain?


My GP altho agreed that it would be wise to get off some but when I asked him in the past he of course told me handle it with Pdoc

I only have Lyrica or very limited gabapentin for maybe twice a month for a day

Thanks

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
 
Hugs from:
Victoria'smom
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 25, 2019 at 07:38 PM
  #24
Quote:
Originally Posted by fern46 View Post
I'll be thinking good thoughts for you. I just read the list of all the meds you are on. I can imagine a break would feel freeing!


Thank you very much

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
 
Hugs from:
bizi, HALLIEBETH87
GoldenSnitch
Veteran Member
 
GoldenSnitch's Avatar
 
Member Since Oct 2015
Location: Canada
Posts: 577
8
21 hugs
given
Default Apr 26, 2019 at 08:45 PM
  #25
Good luck to you! I totally understand why you don’t want to be on all of these nasty meds anymore. I hope that the transition is smooth for you.
GoldenSnitch is offline   Reply With QuoteReply With Quote
 
Thanks for this!
~Christina
FearLess47
Member
 
FearLess47's Avatar
 
Member Since Apr 2019
Location: U.S.
Posts: 219
5
267 hugs
given
Default Apr 26, 2019 at 08:56 PM
  #26
Let us know how it goes! Be patient and kind with yourself and I am super glad you have your husband to help notice things you might miss.

FearLess47
FearLess47 is offline   Reply With QuoteReply With Quote
Shadesofdark
Member
 
Member Since May 2015
Location: North Carolina
Posts: 275
8
76 hugs
given
Default Apr 26, 2019 at 09:12 PM
  #27
Good luck! I am sure you will take it sure but slow. I have never had the xr but your method sounds good. Yes, it does look like you need a chemical break.

__________________
dx: Bipolar II - Rapid Cycling
Shadesofdark is offline   Reply With QuoteReply With Quote
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 27, 2019 at 01:55 AM
  #28
Quote:
Originally Posted by GoldenSnitch View Post
Good luck to you! I totally understand why you don’t want to be on all of these nasty meds anymore. I hope that the transition is smooth for you.


Thanks

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 27, 2019 at 01:56 AM
  #29
Quote:
Originally Posted by FearLess47 View Post
Let us know how it goes! Be patient and kind with yourself and I am super glad you have your husband to help notice things you might miss.


FearLess47


Thanks

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 27, 2019 at 01:57 AM
  #30
Quote:
Originally Posted by Shadesofdark View Post
Good luck! I am sure you will take it sure but slow. I have never had the xr but your method sounds good. Yes, it does look like you need a chemical break.


Yes a break is needed

Thanks

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
Innerzone
Wise Elder
 
Innerzone's Avatar
 
Member Since Nov 2009
Location: NW US
Posts: 9,383
14
31.3k hugs
given
PC PoohBah!
Default Apr 27, 2019 at 11:56 AM
  #31
Sending best wishes in your venture, of course!

I think sometimes of doing the same, but can't risk things going sideways in my current situation. And there's no one to keep an eye on me (aside from pdoc and T, but the times in between are plenty long enough to get in trouble). I can have decent length remissions (looking back over time, granted, before I got dx'd, so a certain amount of guesswork), so alas, there's no way to know whether it's the meds keeping me balanced, or a remission. If I had more support and security, I'd likely try it too.

I know we've always said around here that before trying going off, be sure to have a lot of coping skills in place. If anyone is armed with solid coping skills, it is you. Good luck!

__________________
*********
Mr. Robot
Lamictal
Makes me sick to the heart, Oh I feel so tired. And the way the rain comes down hard, that's how I feel inside.
--The Cure
Innerzone is offline   Reply With QuoteReply With Quote
 
Hugs from:
bizi
 
Thanks for this!
~Christina
FriendlyJoe
Member
 
FriendlyJoe's Avatar
 
Member Since Nov 2018
Location: US
Posts: 207
5
1 hugs
given
PC PoohBah!
Default Apr 27, 2019 at 01:28 PM
  #32
Quote:
Originally Posted by ~Christina View Post
So as a few of you might remember i quit Latuda about 6 weeks ago now. No problem or hiccups. My brain is now working sans med

So my next will be getting off Lamictal. I take 300mg xr so I can’t just cut into pieces. Maybe just take it every other day then decrease to ever 2 days and so forth

It’s really is a seizure medication anyway.

I take doxipin for sleep at night, I take 100 mg I can always cut to 50 then zero.. I will have to watch if my hellish insomnia comes back full force , but it’s what I want to

I do not plan to discuss this with my Pdoc. Why you ask ? My Pdoc and T have never seen me off meds. I’m not foolish enough to think I do not have Bipolar. But my Pdoc will probably try to talk me out of it as expected. But it’s my life and I’m not going Willy nilly being reckless about my wanting off meds

I take a lot of medical issues meds and had another one added a couple weeks ago for my bone density test show my bones are weak. So fosomax once a week for 5 years.

I really think it’s time to just cut all meds, all these chemical I take daily. I feel my body needs a Med vacation to allow my body to adjust sans all medication.

Will I climb and crash ? It’s of course a possibility.

I have never once over the last 9 years been truly wanting off every single Med so strongly.

I am just unhealthy I have never felt so physically unhealthy.

I vacuum my house yesterday and I literally had to go to bed as I was weak as a new born kitten for 2 hours !!!!!!!!! I laid there until I finally able to actually get out of bed. I wasn’t even able to make dinner last night.

The only medications I plan to continue taking is my symbicort inhaler for my Asthma and Xanax for help sleeping.

The rest I’ll just stuff them in a drawer with all the other **** I quit taking over the last 9 years.

So yeah this is my plan , my husband will keep an eye on me if I don’t notice a change.

So yeah here I go ~
I've also considered going off meds. I don't feel much different than before and I'm tired of taking pills if their useless.
FriendlyJoe is offline   Reply With QuoteReply With Quote
 
Hugs from:
bizi
Guiness187055
Elder
 
Guiness187055's Avatar
 
Member Since Mar 2017
Location: Florida
Posts: 5,057
7
970 hugs
given
PC PoohBah!
Default Apr 27, 2019 at 01:35 PM
  #33
Happy landings.

__________________



Guiness187055
Moderator
Community support team
Guiness187055 is offline   Reply With QuoteReply With Quote
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 28, 2019 at 12:28 AM
  #34
Quote:
Originally Posted by Innerzone View Post
Sending best wishes in your venture, of course!


I think sometimes of doing the same, but can't risk things going sideways in my current situation. And there's no one to keep an eye on me (aside from pdoc and T, but the times in between are plenty long enough to get in trouble). I can have decent length remissions (looking back over time, granted, before I got dx'd, so a certain amount of guesswork), so alas, there's no way to know whether it's the meds keeping me balanced, or a remission. If I had more support and security, I'd likely try it too.


I know we've always said around here that before trying going off, be sure to have a lot of coping skills in place. If anyone is armed with solid coping skills, it is you. Good luck!


Yes !! I am not sure I would do this if my husband wouldn’t be keeping an eye on me. I’m lucky I have him.

My daughter who also has Bipolar isn’t very happy about my going this route.... but understands my motives.

Tomorrow I fill my weekly Med boxes so I will start the Lamictal decrease.

My tool box is indeed over flowing.

Did you decide on jobs ?

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
 
Hugs from:
Nammu
Innerzone
Wise Elder
 
Innerzone's Avatar
 
Member Since Nov 2009
Location: NW US
Posts: 9,383
14
31.3k hugs
given
PC PoohBah!
Default Apr 28, 2019 at 09:35 AM
  #35
Quote:
Originally Posted by ~Christina View Post
Yes !! I am not sure I would do this if my husband wouldn’t be keeping an eye on me. I’m lucky I have him.

My daughter who also has Bipolar isn’t very happy about my going this route.... but understands my motives.

Tomorrow I fill my weekly Med boxes so I will start the Lamictal decrease.

My tool box is indeed over flowing.

Did you decide on jobs ?
Haven't heard back yet. They both said they'd let me know early this week, so we'll see. Now back to your regularly scheduled program...

__________________
*********
Mr. Robot
Lamictal
Makes me sick to the heart, Oh I feel so tired. And the way the rain comes down hard, that's how I feel inside.
--The Cure
Innerzone is offline   Reply With QuoteReply With Quote
 
Hugs from:
bizi
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 28, 2019 at 11:55 PM
  #36
My pill boxes are done Lamictal ever other day. I think the following week I’ll do every 3 days off. Etc

I plan to be off at the end of this 3 week taper. Then I’m guessing 2-3 weeks until my brain is working sans Med. It’s a seizure Med anyway it’s just off label it can work for the depressive end of Bipolar in some people.

Tenex I just stopped outright.

Then I will need to do a slower decrease off of doxipin as its one of the main reasons I can get some decent sleep. Might take a month. I’m just hoping that my severe insomnia doesn’t pop back up, it wasn’t unusual for me to go 5-6 days with no sleep. So Yes slowwwww for that one.

Once that is complete I will decide what physical Med I will discontinue next. That’s the tricky part , there are a couple I just have no choice but to take.

Anyone take Fosomax weekly ??? My bone density showed my bones aren’t happy. It’s an annoying Med to take ... leaves my stomach tore up for hours. Can’t eat with it per instructions for one hour.

I’m feeling very positive about making these changes. My hunger has decreased since I stopped Latuda and have lost weight , so that’s a wonderful sign for me.

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
 
Hugs from:
bizi, Innerzone, Nammu
 
Thanks for this!
Nammu
Nammu
Crone
 
Nammu's Avatar
 
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 71,232 (SuperPoster!)
13
53.6k hugs
given
PC PoohBah!
Default Apr 29, 2019 at 12:06 PM
  #37
Even tho I've decided not to quit the latuda until I'm no longer living with mum I'm following your progress as I too want to take a break. Especially from the AP. I'm wishing that everything goes well for you.

__________________
Nammu
…Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …...
Desiderata Max Ehrmann



Nammu is offline   Reply With QuoteReply With Quote
 
Hugs from:
bizi
Pookyl
Poohbah
 
Pookyl's Avatar
 
Member Since Aug 2017
Location: Australia
Posts: 1,435
6
79 hugs
given
PC PoohBah!
Default Apr 29, 2019 at 08:59 PM
  #38
Hi Christina,
I think I’ve gotten muddled up somewhere. Have you stopped taking all your meds? And was there a reason that compelled you to do so?
Sorry if you’ve already explained everything but I just can’t find what’s what.

__________________
Pookyl
————————————————————————————
BP1, GAD, Panic Disorder, Agoraphobia, Claustrophobia

Psych meds: Saphris, Seroquel XR, regular Seroquel.
PRN Diazepam and Zopiclone
Pookyl is offline   Reply With QuoteReply With Quote
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 30, 2019 at 12:47 AM
  #39
Quote:
Originally Posted by Pookyl View Post
Hi Christina,

I think I’ve gotten muddled up somewhere. Have you stopped taking all your meds? And was there a reason that compelled you to do so?

Sorry if you’ve already explained everything but I just can’t find what’s what.

I have metabolic syndrome due to the meds. I decided it was time to make changes.

I first quit Latuda due to weight gain. They say it’s “ weight neutral” but for me it has been slowly piling on the lbs. I have already lost weight and my appetite has decreased since I stoped it.

If you look on this thread is a full list of medications I take psych and medical.

I have just never felt so unhealthy in my life. All my meds mix together so I feel like it’s all a toxic explosion in the making. I need to detox off everything I possibly can.

So ... I have a plan to go off numerous meds. I’m doing it carefully , I’m allowing for half life and then the time my brain to adjust sans Med.

My husband will be watching me in case I’m not catching any possible problems.

This is a well thought out plan.

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
 
Hugs from:
bizi
~Christina
Legendary Wise Elder
Community Liaison
 
~Christina's Avatar
 
Member Since Jul 2011
Location: Tennessee
Posts: 22,450 (SuperPoster!)
12
12.7k hugs
given
PC PoohBah!
Default Apr 30, 2019 at 12:49 AM
  #40
Quote:
Originally Posted by Nammu View Post
Even tho I've decided not to quit the latuda until I'm no longer living with mum I'm following your progress as I too want to take a break. Especially from the AP. I'm wishing that everything goes well for you.


Thanks Nammu

__________________
Helping others gets me out of my own head ~
~Christina is offline   Reply With QuoteReply With Quote
 
Hugs from:
bizi
Reply
attentionThis is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.

Thread Tools
Display Modes



All times are GMT -5. The time now is 06:57 AM.
Powered by vBulletin® — Copyright © 2000 - 2024, Jelsoft Enterprises Ltd.



 

My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.