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Grand Poohbah
Member Since Sep 2015
Location: Alberta canada
Posts: 1,834
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Apr 29, 2019 at 10:56 PM
#1
I haven't posted in awhile. So here's what's been going on. My dystonia has been out of control for months now, and my social anxiety and paranoia has kept me in my house for over 6 months. I only leave to see my pdoc. So I'm not doing great, but I missed you all and hope you're doing well.
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smiling musical soul
Member Since Mar 2010
Location: Indy
Posts: 43,373
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Apr 29, 2019 at 11:59 PM
#2
Sorry to hear that things are so rough for you. Good to see you back but sorry it's under these circumstances.
__________________ I think I need help 'cause I'm drowning in myself. It's sinking in, I can't pretend that I ain't been through hell. I think I need help---Papa Roach |
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Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
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Apr 30, 2019 at 12:52 AM
#3
I’m glad your back , I wish you were feeling better. Maybe posting back on here will offer you some comfort ?
__________________ Helping others gets me out of my own head ~ |
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Innerzone, still_crazy
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Apr 30, 2019 at 08:06 AM
#4
Thanks for your post, 99fairies. I'm sorry to read that you are struggling with the dystonia. Is your psychiatrist doing anything to try to combat it or rid you of it?
I understand anxiety creating isolation. I've experienced that, too, in the past. I was able to slowly get out more. A good therapist and CBT were what helped me. |
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Jedi67, still_crazy
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Grand Poohbah
Member Since Oct 2016
Location: United States of America
Posts: 1,792
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Apr 30, 2019 at 08:40 AM
#5
hi. here in the US, there's a very new drug...maybe 2, actually...that have been FDA-approved for tardive dyskinesia. maybe they're available in Canada? other than that...
I know it sounds like hippy ********, but some people have (apparently...) been able to reduce TD and other tardive syndrome severity with high dose antioxidant cocktails. i take a lot of antioxidants, kind of Orthomolecular-style, to treat+prevent TD. I had tics before starting the vitamins, and a bit of stiff gait ("thorazine shuffle..." from -atypicals-), and now I"m a-OK, tolerate my full dose Abilify just fine, etc. The big 2 components for treating/suppressing/improving existing tardive syndromes seem to be natural form vitamin E at a high dose and lots of vitamin C...the b-complex, especially b-3 and b-6, play a big role, too. DoctorYourself.com: Andrew Saul's Natural Health Website Alternative Mental Health |
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Jedi67
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Grand Poohbah
Member Since Oct 2016
Location: United States of America
Posts: 1,792
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Apr 30, 2019 at 08:44 AM
#6
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Wise Elder
Member Since Nov 2009
Location: NW US
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Apr 30, 2019 at 11:07 AM
#7
Good to see you, 99fairies! Sorry to hear you're not doing so well.
Hope things improve soon.
__________________ *********  Mr. Robot Makes me sick to the heart, Oh I feel so tired. And the way the rain comes down hard, that's how I feel inside. --The Cure
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