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Default May 04, 2019 at 02:44 PM
  #1
My pdoc gave me Latuda today due to rapid cycling between mania and depression lately. I am also on a mood stabilizer, benzo, and a low to middle dose of another AP (but mainly for sleep).

What has your experience been with Latuda, for those of you who have been on it (or are still on it)? I get so nervous about taking new meds, but it has come down to it being necessary. I am hoping this medication helps.
Thanks.

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Default May 04, 2019 at 03:00 PM
  #2
I have had positive experience with lutuda. Get emergency medical help if you have signs of an allergic reaction to Latuda: hives; difficulty breathing; swelling of your face, lips, tongue, or throat.

Report any new or worsening symptoms to your doctor, such as: mood or behavior changes, anxiety, panic attacks, trouble sleeping, or if you feel impulsive, irritable, agitated, hostile, aggressive, restless, hyperactive (mentally or physically), more depressed, or have thoughts about suicide or hurting yourself.
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Default May 04, 2019 at 03:04 PM
  #3
I've been on Latuda for 4 years now for depression.

It started to work a few days after I started taking it. I noticed I was feeling better and the sunlight appeared white to me instead of yellowish (I still see it as pure white).

It makes me really drowsy when I take it so I take it an hour before I want to sleep. You have to take it with food so I have dinner late too now. My sleep is really good on it but I need at least 8 hours and can easily go to 12 if I don't set an alarm.

I don't have side effects that I know of but I think my personality has changed. I used to be engaging and interesting to talk to but now I generally stay quiet and don't contribute much to conversations. But that could be an effect of really a bad depression I've been going through for the past 18 months.

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Default May 04, 2019 at 03:27 PM
  #4
my PDoc wants to take me off of Geodon and out me on Latuda. he swears by it. I have reservations as well. but we'll see. the Geodon doesn't seem to be helping me and I am a ultra rapid cycler. my anxiety gets bad but he will not give me a benzo. good luck. I hope it works out and get as much info as you can get! all the best.

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Default May 04, 2019 at 03:31 PM
  #5
It has worked very well. Most people take it with supper, I take it at bed time with a snack.

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Default May 04, 2019 at 03:35 PM
  #6
Quote:
Originally Posted by bunnyhabit View Post
I have had positive experience with lutuda. Get emergency medical help if you have signs of an allergic reaction to Latuda: hives; difficulty breathing; swelling of your face, lips, tongue, or throat.

Report any new or worsening symptoms to your doctor, such as: mood or behavior changes, anxiety, panic attacks, trouble sleeping, or if you feel impulsive, irritable, agitated, hostile, aggressive, restless, hyperactive (mentally or physically), more depressed, or have thoughts about suicide or hurting yourself.
Thanks. It's good to hear you had a positive experience.

I heard about restless legs as a possible symptom, so that scares me a bit. I have anxiety, so its when I heard it is activating, that concerns me. For instance, I tried Abilify, and that was too activating for me. My pdoc didn't seem concerned about this though, because she knows I have anxiety and said people do well on it. Plus, I'm on Seroquel to help with sleep, agitation, etc, so maybe the sedation from that will prevent restlessness. We'll see.

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Default May 04, 2019 at 03:36 PM
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Originally Posted by Nammu View Post
It has worked very well. Most people take it with supper, I take it at bed time with a snack.
Good to hear. My pdoc is having me take it in the morning with food, so I hope that it doesn't make me too tired. But I've been on my fair share of sedating meds, so I guess I'm used to it.

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Default May 04, 2019 at 03:39 PM
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Originally Posted by Jedi67 View Post
my PDoc wants to take me off of Geodon and out me on Latuda. he swears by it. I have reservations as well. but we'll see. the Geodon doesn't seem to be helping me and I am a ultra rapid cycler. my anxiety gets bad but he will not give me a benzo. good luck. I hope it works out and get as much info as you can get! all the best.
Thank you, Jedi. I wish you luck too! I'll write an update on it. It is definitely difficult so far to find meds that help with rapid cycling and anxiety, which has always been an issue for me. So my fingers are crossed that this one will be effective!

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Default May 04, 2019 at 03:41 PM
  #9
I took it for over a year. Emotionally it was great. However I developed akathisia and tardive dyskinesia, so I needed to change.
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Default May 04, 2019 at 03:44 PM
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I took it for over a year. Emotionally it was great. However I developed akathisia and tardive dyskinesia, so I needed to change.
Oh, sorry to hear that you developed akathesia and TD. That has always been a fear of mine. Did those side effects go away once you discontinued it?
It's concerning that I read that sometimes these side effects are long-term, even when people discontinue APs. What dose were you taking? They are starting me on 20mg.

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Default May 04, 2019 at 03:47 PM
  #11
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Originally Posted by xRavenx View Post
Thank you, Jedi. I wish you luck too! I'll write an update on it. It is definitely difficult so far to find meds that help with rapid cycling and anxiety, which has always been an issue for me. So my fingers are crossed that this one will be effective!
rapid cycling and anxiety is an issue for me as well. I see my PDoc Monday morning because I'm in a mixed state now and cycling fast. my T moved up the date because he saw I wasn't doing well.

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Default May 04, 2019 at 05:18 PM
  #12
I rapid cycle, usually in mixed states. I will have the pure mixed state then also rapid cycle. It’s complicated. My previous pdoc gave me Latuda to help with this but I reacted badly. I became very, very agitated (more than usual), and had bad thoughts. It was stopped immediately but I had to wean off it to avoid further side effects.

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Default May 04, 2019 at 05:21 PM
  #13
hi. :-)

no personal experience with latuda, -but- if it works well for you...could it replace the seroquel? it has a better profile for metabolic nastiness than seroquel, from what i gather. that and i personally am not a fan of taking 2 antipsychotics long term.

some doctors treated rapid cycling and/or mixed states (I'm in the latter category) with 2+ mood stabilizers...lamictal+trileptal was mine, for a while...but the trileptal dose was too high, and it made me depressed, in a really lethargic, unable to concentrate sort of way. now, I'm on a higher dose of the lamictal. a lower dose of trileptal probably could have helped, but...what's done is done, I suppose.

sorry you're going thru a rough patch. i hope things get better for you.
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Default May 04, 2019 at 05:59 PM
  #14
I’ve stared Latuda within the last 3 months and it has worked wonders for my depression. It worked pretty quickly too. I still have to take another ap for psychosis but that is fine with me because of it’s success.

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Default May 04, 2019 at 07:13 PM
  #15
It helped me when I started it.

I quit it about 5-6 weeks ago. Why!? It’s advertised as a weight neutral but it wasn’t for me I just had steady piling on lbs deal . I have already lost some weight with no change in exercise or dieting.

I think over all it’s a good Med and I might still be taking it if it actually were weight neutral. But I want a detox off psych and physical meds , I feel so unhealthy and all these meds are a toxic mix I’m sure for me.

I hope it works well for you

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Default May 04, 2019 at 07:39 PM
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I just finished my first week of it at 20mg and so far so good. I'm coming off of risperdal and going up on the latuda. I really hope it is weight neutral as my doctor says because I've been on a steady increase in weight for the past month. Good luck to you, I hope it works in your favor.
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Default May 05, 2019 at 12:06 AM
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hi. :-)

no personal experience with latuda, -but- if it works well for you...could it replace the seroquel? it has a better profile for metabolic nastiness than seroquel, from what i gather. that and i personally am not a fan of taking 2 antipsychotics long term.

some doctors treated rapid cycling and/or mixed states (I'm in the latter category) with 2+ mood stabilizers...lamictal+trileptal was mine, for a while...but the trileptal dose was too high, and it made me depressed, in a really lethargic, unable to concentrate sort of way. now, I'm on a higher dose of the lamictal. a lower dose of trileptal probably could have helped, but...what's done is done, I suppose.

sorry you're going thru a rough patch. i hope things get better for you.
Thank you. Seroquel seems to be the only medication that has helped me sleep consistently, and it is good for my anxiety. However, I can no longer tolerate high dose Seroquel as well as I used to, so my pdoc thinks that using low(ish) dose Seroquel for sleep with Latuda would be a plan worth trying. I take my first dose tomorrow. Hopefully I'll adjust quickly, because my pdoc did say nausea can be a problem in the beginning (especially if you don't eat a whole meal with it).

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Default May 05, 2019 at 12:10 AM
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I just finished my first week of it at 20mg and so far so good. I'm coming off of risperdal and going up on the latuda. I really hope it is weight neutral as my doctor says because I've been on a steady increase in weight for the past month. Good luck to you, I hope it works in your favor.
Thank you. Good luck to you too. I'm glad your first week on it went well and hope it works out for you.

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Default May 06, 2019 at 12:19 PM
  #19
I have been on Latuda for over a year now and I really like it. The effects kicked in in less than a week and I have felt pretty stable on it. I still get bouts of depression and some mania but both are pretty mild compared to before I started taking it. Good luck
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Default May 06, 2019 at 12:35 PM
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