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Default May 18, 2019 at 05:43 AM
  #21
luvyrself, I'm sorry you've had such a hard time with antipsychotics.

I guess different people define things differently, but for me, akathisia is a bit of a different animal from agitation. It's difficult to describe the differences, but I will say that I can be perfectly stable with zero anxiety and have akathisia. That's not the case with agitation, for me.

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Default May 18, 2019 at 10:54 AM
  #22
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Originally Posted by BirdDancer View Post
I'm sorry Latuda eventually gave you akathisia and TD after helping well for a good while. I know how that is. I took Geodon with no side effects for about five years, then got a horrible case of akathisia and had to go off. Honestly, I would even welcome just two years of even more stability, at this point. I know most of us have to have medication changes now and then.

I really hope your TD eventually went away! I imagine your akathisia did. I've had akathisia from various antipsychotics in the past, but it always faded after changing to a med that didn't cause it...at least at first.
The TD has gone away for the most part. I still have some when I'm really stressed but not all the time like it was before. Akathisia is gone too.

I have to be careful with APs because some can cause QT prolongation in my heart. Same with Depakote. I'm not needing an AP now so I'm grateful for that.
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Default May 18, 2019 at 08:36 PM
  #23
have you tried vitamins? melatonin, natural form E, vitamin C, b-complex...all those (combined, lol) helped resolve some odd facial tics i had, for a season...
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Default May 18, 2019 at 10:35 PM
  #24
I have been on latuda for quite some time now. Out of everything that I have taken, it has made me the most stable. I take it with adderall and trileptal. When I started to gain weight, i was placed on naltrexone, which helps for the most part. I stay pretty low and when i complained about it, my pdoc reduced my dosage to 40 from 60. I definitely have not had trouble with latuda causing manic symptoms.

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Default May 19, 2019 at 07:39 AM
  #25
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I have been on latuda for quite some time now. Out of everything that I have taken, it has made me the most stable. I take it with adderall and trileptal. When I started to gain weight, i was placed on naltrexone, which helps for the most part. I stay pretty low and when i complained about it, my pdoc reduced my dosage to 40 from 60. I definitely have not had trouble with latuda causing manic symptoms.
Between what most (but not all) members here have said about Latuda I feel quite encouraged. What adds to the encouragement is that these last four days on Latuda have been progressively better days. I feel very good today.

It's almost impossible, at this time, for me to know if Latuda is affecting my appetite. I'm on 600 mg of Seroquel XR, as well. I had my Seroquel XR dose increased only a few days before the Latuda was added. Seroquel XR at higher doses is not weight friendly for me.

My psychiatrist said if Latuda works out that he would raise the dose and lower my Seroquel XR dose. As you all know, 20 mg Latuda is just a starter dose. Plus, my Tegretol may lessen its effect. I'm hoping I could get down to 300 mg or less of Seroquel XR while on higher doses of Latuda. Then I'd perhaps know if Latuda affects my weight in any way. Doses of 300 mg of Seroquel XR have been weight neutral for me, in the past. We'll see.

If Latuda is not altogether perfect at preventing mania, I guess my Seroquel XR dose could again be manipulated if it will be lowered.

That's interesting that you take naltrexone for appetite control. I had never heard of it being used for that, but I guess I can see it doing that. I took it for a short time a long time ago to reduce alcohol cravings. It wasn't that helpful for me. I found Campral (acamprosate) more effective for that purpose. I don't know if Campral could be used for appetite control, though I see a side effect is "appetite loss". At the time, naltrexone was much cheaper than Campral. Perhaps Campral is now available in generic.
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Default May 19, 2019 at 10:51 AM
  #26
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Originally Posted by still_crazy View Post
have you tried vitamins? melatonin, natural form E, vitamin C, b-complex...all those (combined, lol) helped resolve some odd facial tics i had, for a season...
I was on Vitamin E for a while but it didn’t help. Also on B12, and take L-methylfolate instead of folic acid. I take a multivitamin every day. Have to be careful with Vitamin C because citrus and citric acid causes reflux. Big thing though was getting off the med. I do eat a more balanced diet than before too because of acid reflux.
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Default May 19, 2019 at 05:25 PM
  #27
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luvyrself, I'm sorry you've had such a hard time with antipsychotics.

I guess different people define things differently, but for me, akathisia is a bit of a different animal from agitation. It's difficult to describe the differences, but I will say that I can be perfectly stable with zero anxiety and have akathisia. That's not the case with agitation, for me.
— I think akathesia is better described as restlessness. Once I had taken my pill w dinner, I really felt I had to get out of the house. The folks at Walmart knew me quite well!

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Default May 19, 2019 at 07:34 PM
  #28
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— I think akathesia is better described as restlessness. Once I had taken my pill w dinner, I really felt I had to get out of the house. The folks at Walmart knew me quite well!
I know most people walk all over the place with akathisia. I recall walking all around the hospital ward on Zyprexa. However, I got such a horrible case on Geodon that it caused me extreme distress. I couldn't even walk that much when it became particularly severe. I just laid in my bed rocking the lower half of my body back and forth constantly and sometimes grunting in a type of agony until my Ativan kicked in. I had tried Cogentin, but had to stop it because it gave me such severe constipation that wasn't alleviated by anything I tried. I had to choose between never going to the bathroom (#2) or dealing with daily periods of mental restlessness.

I have almost always taken propranolol, but though that curbed my tachycardia and eased Lithium tremors, it did nothing for my akathisia. Eventually, I had to be taken off Geodon. Geodon withdrawal is pretty rough, too, even coming off of it quite slowly. Many months from 160 mg to zero. Akathisia was hell! Sometimes I think about how I feel nowadays without it, and it's a HUGE relief! I really pity the people who suffered with akathisia long-term in the long ago past when 1st generation APs were all they could take. It's a shame that many 2nd generations still cause it.

I hope hope hope Seroquel XR and/or Latuda never cause it for me again.
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