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Old 05-20-2019, 06:09 PM #1
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Default Is this pdoc right?

First off, I'm in my early 20's and diagnosed by my pdoc with schizoaffective bipolar type, but I'm going to an IOP where I'm diagnosed bipolar 1 with psychotic features. Either way I'm struggling with mood swings and psychosis.
So the IOP pdoc says bipolar is worse in the early 20's and thinks I won't have an issue with my disorder in just a few years. Now I've been on enough forums and in enough hospitals to know that mood disorders and psychotic disorders aren't just a young person thing. I'm not sure if he actually thinks that or if he thinks he's giving me hope or what.
I want to know if he's right that late teens/early 20's are the worst. I've also heard of kindling theory where it gets worse as time goes on so... idk.
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Old 05-20-2019, 06:55 PM #2
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Default Re: Is this pdoc right?

Hi Spikes,

I didn't have my first manic episode until my mid 40s and then it got worse. I have been free of mania and psychosis for almost 2 years now and am hoping to never have that experience again.
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Old 05-20-2019, 07:02 PM #3
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Default Re: Is this pdoc right?

sometimes. i knew a dude who was only in treatment till he hit 25 or 26...a lot of it was froma chaotic lifestyle, he matured, tapered off the rx treatments, he's OK now. I think there's a lot of different outcomes within each diagnosis.
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Old 05-20-2019, 07:49 PM #4
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Default Re: Is this pdoc right?

I mean it was definitely chaotic in my 20s. First because I wasn't diagnosed properly. But once I did have a diagnosis I was either not med compliant, or my cocktail wasn't right and I still had crazy swings. Once I got into my 30s, things even out a bit because I was more knowledgeable about bipolar disorder and what to look for before things got out of hand and/or I knew when to seek help. Who knows what my 40s will hold.
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Old 05-20-2019, 09:46 PM #5
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Default Re: Is this pdoc right?

I was diagnosed at 43yrs of age, I’m now 47yrs and considerably worse.
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Old 05-20-2019, 11:53 PM #6
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Default Re: Is this pdoc right?

It may be because the longer you have this the more meds and psychotherapy you've tried. I (age 43) was no better than I was in my 20s until we made the carefully considered decision to go on first Emsam which is an MAOI and then several years later clozapine and while I'm not stable (and currently having my worst time in 10 months) I am much closer than ever before. I've been out of the hospital for over 3 years.
The last time I was in was to get started on clozapine. But it took many years and may meds to get here and it is totally med dependent; take away the clozapine or Emsam and I'll be out of control again regardless of being older.
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Old 05-21-2019, 12:24 AM #7
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Default Re: Is this pdoc right?

Quote:
Originally Posted by spikes View Post
First off, I'm in my early 20's and diagnosed by my pdoc with schizoaffective bipolar type, but I'm going to an IOP where I'm diagnosed bipolar 1 with psychotic features. Either way I'm struggling with mood swings and psychosis.
So the IOP pdoc says bipolar is worse in the early 20's and thinks I won't have an issue with my disorder in just a few years. Now I've been on enough forums and in enough hospitals to know that mood disorders and psychotic disorders aren't just a young person thing. I'm not sure if he actually thinks that or if he thinks he's giving me hope or what.
I want to know if he's right that late teens/early 20's are the worst. I've also heard of kindling theory where it gets worse as time goes on so... idk.
Hello Spikes. Sorry you are struggling. I live with unipolar depression rather than bipolar but want to offer my support and a couple of thoughts. It can be problematic to ask/compare yourself to other people's mental health trajectories. I have met plenty of folks with unipolar who said nothing worked for them and it remained severe throughout their lifetime. However, my very worst period was when I was age ~14 to 18. I am now in my late 30s and doing much better. I still have problems and I'm planning to do more therapy but I never feel as bad as I did back then. And I don't take meds because they never worked for me whereas other people find relief from them. Every brain is unique therefore every trajectory varies.

I think the most important piece is to find a provider you trust and follow their guidance as best you can. Also continue to develop friendships and activities for yourself....as a person and not a "patient." Use the medical model for what you need but try not to let it define you....consider ways of honoring body, mind, and spirit...whatever feels meaningful to you. A holistic approach to my health (mental and physical) has helped a great deal.

I completely understand why you would want to make predictions but I think that can be dangerous. If you read about self-fulfilling prophecy, it really can happen. The research also suggests that optimism can have major and positive effects on health. I'm not at all suggesting that you can simply think your psychosis away (of course not) but in addition to your treatment, telling yourself that you will continue to improve and gain balance could be really helpful for your future health. On the other hand, telling yourself that you will probably feel worse as you age could in fact increase the likelihood of feeling worse later, if you see what I mean.

These are just my thoughts from a place of care and regard. You don't have to agree. I wish you peace, hope, and a bright future
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Old 05-21-2019, 01:04 PM #8
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Default Re: Is this pdoc right?

I have done better when i keep on living my life, rather than becoming a professional patient with constant introspection. We really need the distraction of participating in real life. I agree w SilverTrees in that regard.
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Old 05-21-2019, 04:10 PM #9
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We’ve become more stable living wise. We don’t work, or go to school but live off disability. When my husband can he volunteers. We have to keep our life very, very simple. I’ve never been well enough to even volunteer. My husband volunteers 4 hr a week. I spend my days on PC and FB helping people. We also raised(ing) our son. We chose to homeschool him k-12. It’s not as much read aloud and math puzzles but taxiing now. We use to have appointments 1x a week but now it’s anywhere between 0-3x a week. We’ve let our health deteriorate this past year and we’re trying to get back on track. Our lives are less chaotic then they were when we were trying to juggle everything and getting improper mental health care.
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Old 05-21-2019, 04:20 PM #10
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Default Re: Is this pdoc right?

Quote:
Originally Posted by luvyrself View Post
I have done better when i keep on living my life, rather than becoming a professional patient with constant introspection. We really need the distraction of participating in real life. I agree w SilverTrees in that regard.
I think in some ways I have become a professional patient. I don't have a lot going on in my life, living alone and on disability with only a few friends and no one I really consider close except for my son, but he has to live his own life too.
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