Hi friends! I need some support

Sending you hugs, hugs, hugs, hugs and more hugs to BOTH you and your Husband, @~Christina! This trip must be REALLY upsetting for you! No wonder you're stressed! Thinking of both of you! You're BOTH in my Thoughts and Prayers! I hope things will settle down soon and that you'll both be able to rest and that you'll BOTH stay safe! Thinking of you BOTH and wishing the best of luck to BOTH of you! Sending many safe, warm hugs to BOTH of you! KEEP FIGHTING AND KEEP ROCKING!!

Holy cannoli! Im afraid to drive myself very far when its too hot out, and he wants to do a 2 or 3 day drive? I know ive turned into my dad ("my home is my castle! Whats better than that?!"), but if ANYTHING happens - even if your own car is perfect, somebody else can do something stupid, and you could be stuck out on the hot road for hours. Okay, im a chicken-shyte, as my mother would say, but at least im still alive.

If you need any arguments for not going, ive got a million of 'em!

Thinking of you!
Hoping you've been getting some rest!!!

My husband still wants to make this month long trip. Ugh.

I take Humira for psoriasis and I have psoriatic arthritis ( PsA) it is a degenerative joint disease. Right now I’m in a huge flare as my last Biological shot Enbrel just stopped working.

We make the 14 hour drive at once and I have done it more times than I can count. Just riding along is going to wear him down.

We see his doctor Wednesday. I have a long list of questions and hopefully we can connect some dots and figure what caused it all.

I’m a very much homebody !!!

He got some decent sleep last night and just took him to the hospital for more lab work.

Thanks so much !!! ya!

How are things going?
(((((HUGS))))))
bizi

Hi Bizi thanks for asking

How am I ? Well I still feel very ill just so unwell. My husband said the other day we don’t have to go. Yes it was great to hear that.... but I know he really wants to go to his reunion and of course the baby’s birthday. He will see his 3 boys and I will have time with my daughter.

So there’s really no way for me to just stop the trip, he always supports me so I feel it’s only right that I somehow manage this trip. Somehow

I will just take it day by day or hour by hour or minute by minute if need be.

As for staying with our friends ? This is where I think the struggle will be most difficult just the lack of “me time” and dealing with the heat, it’s always so hot in there house, it’s Florida so going outside isn’t going to help anything.

I will just excuse myself when ever I need to and go to the bedroom with wet towels when I must have alone time and just refuse to feel guilty about it, yes that bits easier said than done.

I’ll likely be needing many reminders from all of you that I need no excuse to make sure I take care of myself in whatever way I need too.

I’m sure I will survive this trip ... right?

I'll nag you to take your me time. I think it was nice of hubby to acknowledge that this trip is hard for you, just him volunteering to cancel was a good thing to hear.

Do they have strong cell
Signal at their house? You can text me

Thanks friend !!!! Hehehe

We will still be yakking on messenger all the time lol

That’s true

I just got the most fabulous news .... our hotel check in date is the 14th hubby got the date and day mixed up so I have a whole extra day to prepare !!!

Maybe I’ll actually sleep .... it’s currently 309 am LOL

Hope you are sound asleep. Up briefly I hope at 4:40 after a few hours of sleep.

Ok.... everything is packed except last minute items. We do plan to leave at our typical 2 am , we finished “ dinner” almost 2 hours ago.

I am still wishing this trip wasn’t happening. But it means so much to my husband, I will just have to manage best I can. Yes you all will still see me just as much , sorry about that lol

As for this feeling so utterly terrible, I’m really clueless, it’s being going on I guess close to 4 months now steadily getting worse and very much worse in the last month. I wonder if I had a small heart attack? it can happen my aunt did and felt horrible, or maybe the adnoma on my pituitary gland is growing? Maybe I need another brain MRI ?

A friend said maybe ovaries??! they left them when I had my hysterectomy. They stopped working totally but my Doctor has hoped he would save me from menopause at age 31 but I was always bursting into flames.

If once back home I’m still feeling this way, I’ll go see my Doctor and see what we can do.

I get routine full labs from my rheumatologist every 6 weeks and that’s always with in normal limits, one liver enzyme test is 4 points out of range so we watch it close but it’s just a few points out.

I will always have Fibro pain and chronic fatigue and PsA but what I’m feeling just goes way way way past what’s “ typical”

My biggest fear is what if we test abc and xyz and nothing shows up ??? What if this is just how I’m going to feel from now on?? Then honestly it’s going to be a big struggle for me to continue living. I mean I walk from living room to bathroom and it feels like blocks. That is no life.

I’m seeing my daughters stylist for a hair cut and getting a pedicure when Amanda and I are just hanging out then likely just find a coffee shop and lay in the hotel room and keep the dogs company while we yak.

She’s having Steve and I over for dinner on Sunday she’s so excited for us to meet her girlfriend. My daughter is Bi and I don’t care whom she chooses to live her life with as long as they love and respect her period!

Okay I seriously need a Xanax anxiety is headed up again. Bleh !

Thank you every one for all your support it means so much.

I hope you can get a nap in. I know for me that trying to sleep during the day is useless but I have hope for you. When I traveled from Texas to Minnesota I left at 2 am too so I could get out of Texas before the rush hour started. I used to drive straight though but age put a stop to that. I would stop at rest areas and do jumping jacks with two cop flashlights. I had a cooler with water and proteins snacks and didn't stop of restaurants. But the traffic and road construction in Texas was awful so driving at night with less traffic was best. My last trip tho, with a full car I took two hotel stops and took my time, I arrived with more energy than usual. fortunately Sir was a great traveler too.

Have a safe trip.

I will be praying to Mr Christopher for you! (St Christopher was the patron saint of travellers but then he got demoted so... ya know...)

Thanks !

We leave early to avoid Atlanta traffic !

In the past we were about to board the dog for a decent price for 10 days , now it’s 15.00 a day per dog per day , nope nope nope much cheaper to bring along.

So they began coming alone. I enjoy the company when I have to say no to whatever and just stay In the hotel room.

I pack people and doggy snacks and energy shots.

We usually can make good time and it be 12-13 hours if we only stop for gas. But rest stop areas wandering around does take some time.

It’s just a boring boring ride !