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HopeForChange
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Default Nov 10, 2019 at 10:47 PM
  #21
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Originally Posted by sheltiemom2007 View Post
Thank you, thank you, thank you. This is brilliant. I'm so tired of schizoaffective disorder being misunderstood. I had a schizophrenic father, sister, and grandmother. I know what schizophrenic symptoms look like. Just needing "word salad", no eye contact and "flat affect" are enough to disqualify so many people who think they have schizoaffective disorder. No psychiatrist would make that mistake. I think its coming from improperly trained therapists. I had a therapist diagnose me as schizophrenic because I had psychotic symptoms and because of my family history. She nearly ruined my life. My psychiatrist had to fix it.

I have bipolar 1 disorder with psychotic features, DID with a psychotic part, and PTSD with psychosis. No therapist would ever figure that out. It takes an MD.
Totally agree with both of you! Psychosis outside of mood episodes is what med students and non-MD clinicians are taught with regard to schizoaffective disorder. It's a simplification for people early in their training. Once in residency, psychiatrists learn that there is much more to schizoaffective disorder - there are significant negative and cognitive symptoms. I was once diagnosed with schizoaffective, BP type, but my current psychiatrist recognized that my previous diagnosis was incorrect. I am now diagnosed with BP I with psychotic features and a delusional disorder, and I am thriving in the workforce after years on disability. Diagnoses have consequences and should be made with great care.
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Default Nov 11, 2019 at 06:52 AM
  #22
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Originally Posted by still_crazy View Post
ugh. diagnosis. psychiatry is subjective...and that opens it up to all sorts of problems. anyway...

bipolar II usually means no mania, frequent depression, hypomania and/or milder mixed states (agitated depression I think qualifies with some shrinks). at the softer end, it seems to overlap with some 'personality disorders' ... at the more severe end, it can overlap with what would once, perhaps not so long ago, been considered 'severe endogenous depression.'

bipolar i- mania. severe depression. it used to be understood that the person was normal(ish), even high functioning when not in the midst of an episode...that's changed, somehow. psychosis, if it occurs, is limited to the mood episode...severe mania might bring psychosis, less often psychotic depression is an issue.

schizoaffective-- the manic type is more similar to bipolar I, in terms of long term outlook. psychosis occurs outside of mood states, but is not the core, defining feature, as one sees in Schizophrenia. the depressive sub-type is, from what I understand (and I could be wrong) a lot more like Schizophrenia, in terms of long term outlook and such...severe depressive states, psychosis both during the depressive states and when in a more or less normal mood.

now, that's just -my- understanding of dsm-checklists. i could be wrong. i think its also worth noting that the labels are mostly useful for billing and guiding treatment, to a point...where the rubber hits the road, go to 2 shrinks, get 3 opinions. it is what it is...

:-)
I respectfully disagree about one aspect of Bipolar 1: I do believe that those with this disorder (myself included) can be 'normal'ish,' even high functioning outside of episodes. My pdoc at the Stanford Bipolar Clinic told me that she had many many patients who are baseline for years. That said, when you say normal-ish, I assume you're referring to baseline: everyone has a different baseline, it's essentially who they are, warts and all, outside of episodes.

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Default Nov 11, 2019 at 12:02 PM
  #23
hi. i was just trying to point out that the old school, 'manic depressive psychosis' diagnosis was usually reserved for people who had intense depression, severe mania, and didn't have significant psych problems outside of episodes. however...

fun fact: from the 50s-70s, US psychiatrists diagnosed -most- hospitalized people and severely mentally ill people with some form of Schizophrenia. The manic depressive label was not used nearly as frequently. Psychiatrists in the UK, western Europe...not so big on Schizophrenia. They had (and I think still have) a broader view of Bipolar I, to include varying degrees of psychosis, anxiety, obsessive stuff, etc. On the one hand, its "just a label," but on the other hand...

in probably most modern societies, Schizophrenia is an extremely stigmatizing label/diagnosis. Over-use of the label of Schizophrenia is just one reason the anti-psychiatry movement popped up and was able (for 15, 20 years or so...) to exert some influence.

personally, I'm not really 'anti-psychiatry' so much as I am for a more drug-centered psych treatment, which...is how a lot of old school psychiatrists did things, especially in the UK and Western Europe. match pills to problems, basically, no matter the label/diagnosis in use. For whatever reason(s), back in the day, US doctors were a lot more heavy-handed with thorazine and other older neuroleptics (in particular...), compared to foreign doctors...

as a result, the US shrinks had to deal with a whole lotta TD litigation, from I think the 80s onward, etc. TD happened (and still happens) everywhere neuroleptics are used, but since lower dosages were employed (outpatient, at least) in the UK, western europe...it occurred less frequently, wasn't generally as severe, as often as in the US. true story.
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Default Nov 11, 2019 at 12:39 PM
  #24
I was diagnosed in my 40s with Bipolar with with psychosis. Eventually I started having delusions that appeared outside of any mood episode. For awhile my pdoc and I thought maybe i am schizoaffective. But after sometime my pdoc settled back to the view that I am bipolar 1 since my predominant symptoms by far are mood disturbances rather than thought disturbances.

In any case I take a small dose of Rexulti (which is for schizophrenia not bipolar) at night and that seems to keep all the psychotic symptoms at bay. I have tried mood stabilizers to lift the depression but they didn't help or I couldn't tolerate the meds. For instance lithium greatly exaggerates my hand tremor to the point i was not able to eat soup with a spoon even on a small dose of 450mg a day. Neither lamictal nor lithium at the dose I was able to take prevented manic episodes. Standard antidepressants either make me manic or do not help. So my depression is intractable.

I keep very close track of my sleep and if I start to not sleep at least 7 hours a night i take a small dose of 1.25 mg olanzapine prn. Since it is only every now and then it functions like a great sleep medicine for me. If I don't maintain my sleep I can slip into a psychotic mania.

I have been stable the last 2+ years.

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Default Nov 11, 2019 at 02:29 PM
  #25
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Originally Posted by still_crazy View Post
hi. i was just trying to point out that the old school, 'manic depressive psychosis' diagnosis was usually reserved for people who had intense depression, severe mania, and didn't have significant psych problems outside of episodes. however...

fun fact: from the 50s-70s, US psychiatrists diagnosed -most- hospitalized people and severely mentally ill people with some form of Schizophrenia. The manic depressive label was not used nearly as frequently. Psychiatrists in the UK, western Europe...not so big on Schizophrenia. They had (and I think still have) a broader view of Bipolar I, to include varying degrees of psychosis, anxiety, obsessive stuff, etc. On the one hand, its "just a label," but on the other hand...

in probably most modern societies, Schizophrenia is an extremely stigmatizing label/diagnosis. Over-use of the label of Schizophrenia is just one reason the anti-psychiatry movement popped up and was able (for 15, 20 years or so...) to exert some influence.

personally, I'm not really 'anti-psychiatry' so much as I am for a more drug-centered psych treatment, which...is how a lot of old school psychiatrists did things, especially in the UK and Western Europe. match pills to problems, basically, no matter the label/diagnosis in use. For whatever reason(s), back in the day, US doctors were a lot more heavy-handed with thorazine and other older neuroleptics (in particular...), compared to foreign doctors...

as a result, the US shrinks had to deal with a whole lotta TD litigation, from I think the 80s onward, etc. TD happened (and still happens) everywhere neuroleptics are used, but since lower dosages were employed (outpatient, at least) in the UK, western europe...it occurred less frequently, wasn't generally as severe, as often as in the US. true story.

I am close friends with a European psychiatrist who told me something worth noting. Until he retired, he worked at an inpatient psych hospital in eastern Europe. He said that no psychiatrist he worked with prescribed psych meds without also prescribing something called "Lipovitan." It's a vitamin supplement - mostly B's, I think.

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Default Nov 11, 2019 at 02:34 PM
  #26
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Originally Posted by tecomsin View Post
I was diagnosed in my 40s with Bipolar with with psychosis. Eventually I started having delusions that appeared outside of any mood episode. For awhile my pdoc and I thought maybe i am schizoaffective. But after sometime my pdoc settled back to the view that I am bipolar 1 since my predominant symptoms by far are mood disturbances rather than thought disturbances.

In any case I take a small dose of Rexulti (which is for schizophrenia not bipolar) at night and that seems to keep all the psychotic symptoms at bay. I have tried mood stabilizers to lift the depression but they didn't help or I couldn't tolerate the meds. For instance lithium greatly exaggerates my hand tremor to the point i was not able to eat soup with a spoon even on a small dose of 450mg a day. Neither lamictal nor lithium at the dose I was able to take prevented manic episodes. Standard antidepressants either make me manic or do not help. So my depression is intractable.

I keep very close track of my sleep and if I start to not sleep at least 7 hours a night i take a small dose of 1.25 mg olanzapine prn. Since it is only every now and then it functions like a great sleep medicine for me. If I don't maintain my sleep I can slip into a psychotic mania.

I have been stable the last 2+ years.
Interesting post! Informative. The part I noted in blue gives an apt description of the difference between BP and Schizoaffective.

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Default Nov 11, 2019 at 02:41 PM
  #27
I was diagnosed with schizoaffective disorder bipolar type 8 years ago. I have many of the symptoms of schizophrenia, in addition to the psychotic (positive) symptoms, I've dealt with many of the negative symptoms as well (such as flat affect, cognitive problems, poverty of speech, and thought problems as it is a thought disorder, like not making much sense when I'm unwell and speaking with loosely connected ideas/words). Then of course with the bipolar part of the dx I experience manic and depressive episodes.

I just want to add after seeing some posts in here that there's already a lot of stigma with having schizoaffective or schizophrenia, as there is with any mental illness but especially so because "schizo" anything scares people. I don't believe having this dx has wrecked my life or will prevent me from reaching my full potential in life and being successful, it's definitely possible to thrive with it.

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Default Nov 12, 2019 at 02:38 PM
  #28
The different diagnoses can be soooo confusing sometimes (at least to me). I think everyone did a good job defining the basics of each of them. I am not knowledgeable on schizoaffective disorder so I won't really touch on that. In the DSM, there is many specifiers used to describe how the disorders are. The most common ones I have heard about are anxious distress (anxiety that comes with hypomania, mania or depression but doesn't necessary fit in a seperate anxiety disorder), mixed features (having both symptoms of hypomania/mania and depression at the same time) and rapid cycling (at least 4 mood episodes in the past 12 months) and also psychotic features (which is where the person has delusions or haalucinations during a episode).

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Default Nov 12, 2019 at 09:46 PM
  #29
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Originally Posted by franz kafka View Post
As someone who has been diagnosed with all three at different times...

Bipolar 2: Severe depression with mild mania that doesn't interfere with life
Bipolar 1: Severe depression AND mania that interferes with life and/or needs hospital to keep safe
Schizoaffective: Same as the bipolars, but with the addition of psychotic symptoms (hallucinations and delusions) that occur even when mood is normal ("euthymic")
What exactly mean that doesn´t interfere with life??. For example, in theory I am Bipolar 2, but i have been hospitalized 3 times in the last 10 years. Im as confused as the person who post this thread, ive never really understand the difference
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Default Nov 12, 2019 at 11:41 PM
  #30
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Originally Posted by Blue_Bird View Post
I was diagnosed with schizoaffective disorder bipolar type 8 years ago. I have many of the symptoms of schizophrenia, in addition to the psychotic (positive) symptoms, I've dealt with many of the negative symptoms as well (such as flat affect, cognitive problems, poverty of speech, and thought problems as it is a thought disorder, like not making much sense when I'm unwell and speaking with loosely connected ideas/words). Then of course with the bipolar part of the dx I experience manic and depressive episodes.

I just want to add after seeing some posts in here that there's already a lot of stigma with having schizoaffective or schizophrenia, as there is with any mental illness but especially so because "schizo" anything scares people. I don't believe having this dx has wrecked my life or will prevent me from reaching my full potential in life and being successful, it's definitely possible to thrive with it.
It sounds like you were diagnosed appropriately by a good psychiatrist. I wish you well in your treatment and I know it is a difficult battle.

I'm the one that said being diagnosed with schizophrenia nearly ruined my life. First, I grew up with a father, sister, and grandmother with schizophrenia who made my life a living hell. To be told I was just like them was just about the most destructive thing I could be told. I won't go into what I was put through, but it made me DID. Second, the diagnosis got into my electronic record and the largest medical facilities in my city had the diagnosis top in my record. When I went for breast cancer screening I was belittled because they thought I wasn't cognoscente enough to know what breast cancer was. Another unrelated facility did the evaluation, and yes, I had breast cancer. Had I taken the original biased diagnosis I'd be dead. Third, it made getting employment in my field of cancer research very difficult because I work in medical settings. When the information got out that I had schizophrenia it made me unemployable at some facilities. Yes the wrong diagnoses can ruin your life.

I'm pleased none of this has happened to you, but it does happen to some of us. I can understand why you worry about stigma. I hope you never face it. I did and for an illness that I didn't even have.

Last edited by sophiebunny; Nov 13, 2019 at 12:37 AM..
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Heart Nov 13, 2019 at 06:17 AM
  #31
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Originally Posted by still_crazy View Post
ugh. diagnosis. psychiatry is subjective...and that opens it up to all sorts of problems. anyway...

bipolar II usually means no mania, frequent depression, hypomania and/or milder mixed states (agitated depression I think qualifies with some shrinks). at the softer end, it seems to overlap with some 'personality disorders' ... at the more severe end, it can overlap with what would once, perhaps not so long ago, been considered 'severe endogenous depression.'

bipolar i- mania. severe depression. it used to be understood that the person was normal(ish), even high functioning when not in the midst of an episode...that's changed, somehow. psychosis, if it occurs, is limited to the mood episode...severe mania might bring psychosis, less often psychotic depression is an issue.

schizoaffective-- the manic type is more similar to bipolar I, in terms of long term outlook. psychosis occurs outside of mood states, but is not the core, defining feature, as one sees in Schizophrenia. the depressive sub-type is, from what I understand (and I could be wrong) a lot more like Schizophrenia, in terms of long term outlook and such...severe depressive states, psychosis both during the depressive states and when in a more or less normal mood.

now, that's just -my- understanding of dsm-checklists. i could be wrong. i think its also worth noting that the labels are mostly useful for billing and guiding treatment, to a point...where the rubber hits the road, go to 2 shrinks, get 3 opinions. it is what it is...

:-)
Hey there, still_crazy!

It's always great to have you posting! I look for your posts as you often offer a lot of interesting info and I am grateful.

I am a little confused with your explanation of BPII, specifically with the phrase: "it seems to overlap with some personality disorders."

I notice you didn't include this in the explantion of any other mood disorder.

I am very curious as to why BPII was singled out for this?

There are frequent misunderstandings here on PC re: understanding that Personality Disorders are a separate disorder from Mood Disorders. While they can co-exist, they do not necessarily occur together.

Additionally, BP is all too frequently confused with BPD (Borderline Personality Disorder) due to the "BP" and the "BPD" designations.

There are often erroneous statements like : Everyone with BP has a diagnosis of BPD or BPD traits. So not true. The two might co-exist; however, not necessarily.

BPII was singled out as "overlapping with personality disorders."

Every mood disorder, as well as other disorders, present equal opportunities for a potential personality disorder.

I felt it important to clarify some of this info due to the frequent misunderstandings and the erroneous statements here on PC re: mood disorders vs. personality disorders.

I am, admittedly confused by a part of your post.
I am interested in why you've singled BPII out for "overlapping with personality disorders?" And what is meant by "overlap with" personality disorders?

By the way, thanks for your patience while I took some time/space here to hopefully clarify some of the chronic misunderstandings here on PC.

I look forward to your response!
Much love to You!

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Last edited by Wild Coyote; Nov 13, 2019 at 09:39 AM..
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Heart Nov 13, 2019 at 06:33 AM
  #32
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Originally Posted by franz kafka View Post
As someone who has been diagnosed with all three at different times...

Bipolar 2: Severe depression with mild mania that doesn't interfere with life
Bipolar 1: Severe depression AND mania that interferes with life and/or needs hospital to keep safe
Schizoaffective: Same as the bipolars, but with the addition of psychotic symptoms (hallucinations and delusions) that occur even when mood is normal ("euthymic")
Hi Franz! How wonderful to have you around PC! I know your schedule and/or commitments often make your participation here very difficult. Are you still traveling?

I'd wanted to take a moment here to share some info with you. My diagnosis is BPII. I find my BPII experiences with both depression and with hypomania absolutely interfere with life. BPII is often very disabling.

The idea that BPII has no major effects upon one's life is a frequent misunderstanding and, unfortunately, contributes to further misunderstanding of the struggles of many people diagnosed with BPII.

Thank you for your patience while I have addressed a common misunderstanding.

I do hope to see you around more often!
Much Love to You!

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Heart Nov 13, 2019 at 07:01 AM
  #33
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Originally Posted by bluebicycle View Post
No, having psychosis outside of an episode does not mean you qualify for a schizoaffective diagnosis. I think that's a common misconception about the diagnosis. In fact, I think it is a bad idea to diagnose someone with schizoaffective just because they have psychosis outside of an episode, even if the psychosis is persistent or occurs more than a few times.

Schizoaffective bipolar type *literally* implies that you have bipolar with schizophrenic symptoms. For example, flat affect, catatonia, word salad, warped thought processes, etc.. (Basically, there are certain behaviors/mannerisms that come packaged with disorders on the schizophrenic spectrum.) Also, in some cases, level of functioning is taken into consideration as well. Psychosis is just one symptom of schizophrenia.

I know personally that psychologists at one point thought I might have schizoaffective disorder because of my stubborn psychosis that never goes away no matter what. However, when I underwent specialized psychological testing, the psychologist said I didn't have enough of the schizophrenic type symptoms to qualify for such a schizoaffective diagnosis. For example, I have flat affect, flat vocal tone, social problems, isolation, etc., but the psychologist said I didn't 100% portray as someone who actually has schizophrenia or schizophrenia-like disorder. (Basically, I only somewhat portrayed and she wrote that down.)

People who do not have schizoaffective disorder but who have psychosis independent of mood episodes are supposed to be Dx'ed with bipolar w/ mood-incongruent psychotic features, using the shortened "with psychotic features" specifier. Since there is no such "bipolar 2 w/ psychotic features" label, I guess you're automatically Dx'ed with bipolar 1 even though you technically have bipolar 2 w/ psychotic features. I'm not sure why there is no such "bipolar 2 w/ psychotic features" label, but I don't think bipolar 2 has more than one diagnostic code to begin with.

Whatever you end up having, though, as long as you get treatment for your symptoms and your insurance doesn't complain about said treatment, then that's all that matters. But I just wanted to point out the differences between schizoaffective and the "psychotic features" BP specifier since, well, that was asked. I was confused myself until the psychologist who did my assessment told me the differences, and my therapist (also PhD psychologist) chimed in down the road.
Thanks so much for the clarification, Blue! I wish there was a way to post this on a "sticky note" on the pertinent forum(s).

Love ya!

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Default Nov 13, 2019 at 07:06 AM
  #34
Hi BethRags!

Thank you for this very important and interesting thread!
I hope you do not mind my having asked questions or have commented in response to statements made in posts.
It's wonderful to have you around PC, in so many ways!
Much Love and Gratitude

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Default Nov 13, 2019 at 02:17 PM
  #35
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Originally Posted by Brienne View Post
What exactly mean that doesn´t interfere with life??. For example, in theory I am Bipolar 2, but i have been hospitalized 3 times in the last 10 years. Im as confused as the person who post this thread, ive never really understand the difference

Forgive me for stepping into a question you've asked another member. As I read franz kafka's post, to me I understood that she means for her BP2 doesn't interfere with life as much as her other dx's do. As I understand her reply, I don't think she intends to negate that BP2 can wallop many people.

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Default Nov 13, 2019 at 02:20 PM
  #36
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Originally Posted by Wild Coyote View Post
Hi BethRags!

Thank you for this very important and interesting thread!
I hope you do not mind my having asked questions or have commented in response to statements made in posts.
It's wonderful to have you around PC, in so many ways!
Much Love and Gratitude

Thank you so much WC You are a delightful presence here!

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Default Nov 13, 2019 at 06:43 PM
  #37
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Originally Posted by Wild Coyote View Post
Hi Franz! How wonderful to have you around PC! I know your schedule and/or commitments often make your participation here very difficult. Are you still traveling?

I'd wanted to take a moment here to share some info with you. My diagnosis is BPII. I find my BPII experiences with both depression and with hypomania absolutely interfere with life. BPII is often very disabling.

The idea that BPII has no major effects upon one's life is a frequent misunderstanding and, unfortunately, contributes to further misunderstanding of the struggles of many people diagnosed with BPII.

Thank you for your patience while I have addressed a common misunderstanding.

I do hope to see you around more often!
Much Love to You!
What I meant to say is that in my experience hypomania doesn't make it so I can't function. I might be silly and distractable, but I'm not hiding under my bed trying to escape the angels swarming around me or ending up in the hospital because I'm engaging in dangerous behaviors.

Bipolar II is hugely debilitating, often more so than someone with Bipolar I who, for example, had less frequent episodes. I was merely explaining my experience of the difference between hypo and mania.

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Heart Nov 14, 2019 at 04:48 AM
  #38
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Originally Posted by franz kafka View Post
What I meant to say is that in my experience hypomania doesn't make it so I can't function. I might be silly and distractable, but I'm not hiding under my bed trying to escape the angels swarming around me or ending up in the hospital because I'm engaging in dangerous behaviors.

Bipolar II is hugely debilitating, often more so than someone with Bipolar I who, for example, had less frequent episodes. I was merely explaining my experience of the difference between hypo and mania.
Oh! I see! Your explanation helps so much!
Thank you!

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