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Default Dec 02, 2019 at 09:51 PM
  #721
Hey Christina! My third try at Posting to you!

I am so very sorry for all you go through.

Love and Prayers

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Default Dec 02, 2019 at 10:07 PM
  #722
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Hey Christina! My third try at Posting to you!


I am so very sorry for all you go through.


Love and Prayers

Thanks hun

More importantly... how are YOU ????

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Default Dec 02, 2019 at 10:15 PM
  #723
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I “think “ there’s a very slight improvement if I’m just sitting or lying down , but any time I’m up I get out of breath really fast.

I am trying to focus on the fact it’s not getting worse at least.

I see the pulmonary specialist the 16th so I’m hoping he has a better idea of when the Humira should be totally out of my system. * fingers crossed *

How are you doing?
I hope it really is improving, but that still sounds terrible to feel out of breath so quickly. Hopefully you'll get some answers at your next appointment.

I am doing okay, thanks for asking! I visited some family Thurs-Sun. It was really nice to see everyone, especially the niece/nephews who were happy to see me.

I have been feeling pretty anxious the past couple days, but went to the gym with a friend today and am going to do that a few more times this week to keep the anxiety at bay. Also, I think I somewhat conquered my really bad anxiety about flying on this past trip, so that's something!
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Default Dec 02, 2019 at 10:22 PM
  #724
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I hope it really is improving, but that still sounds terrible to feel out of breath so quickly. Hopefully you'll get some answers at your next appointment.


I am doing okay, thanks for asking! I visited some family Thurs-Sun. It was really nice to see everyone, especially the niece/nephews who were happy to see me.


I have been feeling pretty anxious the past couple days, but went to the gym with a friend today and am going to do that a few more times this week to keep the anxiety at bay. Also, I think I somewhat conquered my really bad anxiety about flying on this past trip, so that's something!


Thanks for the support, eventually things will work it’s self out

I’m glad you enjoyed your time with family and doing better with the whole flying bit is great!!!!

Your being really proactive !!! Good for you exercise does really help combating anxiety

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Default Dec 02, 2019 at 10:25 PM
  #725
Today went better then expected. co-op ends next week. I have mixed feelings I'll miss the kids but running a class is to much for me.

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Default Dec 02, 2019 at 10:33 PM
  #726
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Oh I just gotta complain for a minute

Since the biologic Humira caused all this breathing shyt I have to wait until that clears up before we start a new biologic for my psoriasis and PsA , I can barely make a fist my hands and fingers are just so painful.

My left middle finger is swelling up middle joint, feels frozen in place ugh

I don’t got time for this. My heads already starting to itch bad , no plaques yet but they will start to build. I have medicated shampoo to help manage it but I’m gonna start looking like a dog with mange the itching is unbearable.

I’m barely able to walk around when I first get up because of the foot and ankle pain. I hobble like I’m 94 years old

My lungs need to get it together and quick...

#EndRant
That sounds absolutely horrendous. Sending healing vibes your way

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Default Dec 02, 2019 at 10:34 PM
  #727
Thanks Nammu I hope you get sleep tonight

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Default Dec 02, 2019 at 11:48 PM
  #728
Hi there,

I hope everyone is well. I haven't been here in a while, I know...

Tomorrow's my birthday, but I've been grumpy lately. Next time I see my Psychiatrist, I am gonna ask if he can suggest a stronger mood stabilizer or something that can help with my angry moods. I feel like I already ruined my birthday, and it's not even tomorrow yet.

How is everyone else? I hope you guys are doing better than I am.
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Default Dec 03, 2019 at 06:11 AM
  #729
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Hey, Scooter, I just wanted to say that I really empathize with you and this sleep thing. I am also now on Seroquel (again_ mostly to try to break this sleep logjam). Went to bed early and was wide awake by 2330 or so. Anyway, I just wanted you to hear from someone else in a somewhat similar situation to yours. You are not alone. Hang in there. They/we/someone will figure this out at some point. All the best--
Thanks bpcyclist

I'm hopeful that my pdoc and I will find a solution.

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Default Dec 03, 2019 at 06:42 AM
  #730
A sad day. I went to my friend's funeral yesterday. My mother came along too since this was my sister's best friend for decades and she knew our friend well.

There were lots of tears, lots of memories, and friends from all over attended.

I spoke with her brother and daughter and the rest of the family. We talked about the nice times my sister and our friend had and how we can't believe that both of them are gone now.

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Heart Dec 03, 2019 at 08:31 AM
  #731
Funerals can definitely be cause for many emotions.

Be extra kind to yourself.
((((((HUGS))))))
bizi

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Default Dec 03, 2019 at 09:46 AM
  #732
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A sad day. I went to my friend's funeral yesterday. My mother came along too since this was my sister's best friend for decades and she knew our friend well.

There were lots of tears, lots of memories, and friends from all over attended.

I spoke with her brother and daughter and the rest of the family. We talked about the nice times my sister and our friend had and how we can't believe that both of them are gone now.
Sorry for your loss, Scooter. That sounds very difficult to deal with.

Take good care of yourself.
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Default Dec 03, 2019 at 09:56 AM
  #733
These two snowstorms are awful, awful, awful. Can't go anywhere or do anything because the roads are iced over with about 1-2 feet of wet snow on top (and I say 1-2 feet because it depends on whether or not the road was plowed at one point). Normally, the state is on top of these things, but I guess not this time around. The highways are atrocious with people saying they're slipping and sliding.

I have to clean the whole driveway by myself because my dad wanted to go on a trip after I told him that his flight would likely get cancelled. Now he's stranded at a hotel in Boston because his flight was cancelled (surprise, surprise) and *I* have to clean the whole driveway because my mom can't and my sister won't do s***. (And btw, parents' driveway is very long, not to mention uphill.) I have a snowblower, but it's still awfully slippery because I went out earlier today and unfortunately witnessed the black ice. And don't even get me started on the fact I've told my dad FOUR TIMES to hire a plow. I asked him starting in OCTOBER. He never actually contacted anyone. Figures...

Sorry for whining. I just feel like this was totally preventable if (A.) my dad hired a plow, or (B.) he never left to go on a trip that was bound to be cancelled. I would be in my apartment right now drinking a nice mug of hot chocolate and wrapped up in a bundle of blankets.
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Heart Dec 03, 2019 at 10:47 AM
  #734
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These two snowstorms are awful, awful, awful. Can't go anywhere or do anything because the roads are iced over with about 1-2 feet of wet snow on top (and I say 1-2 feet because it depends on whether or not the road was plowed at one point). Normally, the state is on top of these things, but I guess not this time around. The highways are atrocious with people saying they're slipping and sliding.

I have to clean the whole driveway by myself because my dad wanted to go on a trip after I told him that his flight would likely get cancelled. Now he's stranded at a hotel in Boston because his flight was cancelled (surprise, surprise) and *I* have to clean the whole driveway because my mom can't and my sister won't do s***. (And btw, parents' driveway is very long, not to mention uphill.) I have a snowblower, but it's still awfully slippery because I went out earlier today and unfortunately witnessed the black ice. And don't even get me started on the fact I've told my dad FOUR TIMES to hire a plow. I asked him starting in OCTOBER. He never actually contacted anyone. Figures...

Sorry for whining. I just feel like this was totally preventable if (A.) my dad hired a plow, or (B.) he never left to go on a trip that was bound to be cancelled. I would be in my apartment right now drinking a nice mug of hot chocolate and wrapped up in a bundle of blankets.
Hi Blue!

I also get a bit upset when inconvenient things happen; especially things that could have been prevented!
Is the snow heavy?
Please be careful, maybe taking the driveway on in increments?
I have had a plow doing properties for about 10 years now, just cleaning up with a snow b lower. Makes life much easier!

I hope you can find something positive in your experience today?
I cannot think of anything, except that, sometimes, the snow is pretty.

Love Ya!

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Heart Dec 03, 2019 at 10:53 AM
  #735
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Originally Posted by Scooter9 View Post
A sad day. I went to my friend's funeral yesterday. My mother came along too since this was my sister's best friend for decades and she knew our friend well.

There were lots of tears, lots of memories, and friends from all over attended.

I spoke with her brother and daughter and the rest of the family. We talked about the nice times my sister and our friend had and how we can't believe that both of them are gone now.
Hi Scooter,
I am very sorry for the loss of a friend.
It sounds like she had a very special place in the heart of your sister and within the heart of your family, as well.
I think I recall you have recently lost another friend. I find it more difficult to lose people during the holiday season.

I am following your posts and I hope your pdoc has a helpful solution.

Much Love to You and to Your Family!

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Heart Dec 03, 2019 at 10:56 AM
  #736
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Originally Posted by ~Christina View Post
Oh I just gotta complain for a minute

Since the biologic Humira caused all this breathing shyt I have to wait until that clears up before we start a new biologic for my psoriasis and PsA , I can barely make a fist my hands and fingers are just so painful.

My left middle finger is swelling up middle joint, feels frozen in place ugh

I don’t got time for this. My heads already starting to itch bad , no plaques yet but they will start to build. I have medicated shampoo to help manage it but I’m gonna start looking like a dog with mange the itching is unbearable.

I’m barely able to walk around when I first get up because of the foot and ankle pain. I hobble like I’m 94 years old

My lungs need to get it together and quick...

#EndRant
I am so sorry you must endure this incredible amount of pain.
I do know what it is l ike.
Lots of positive energy along with lots of Love headed your way!

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Default Dec 03, 2019 at 11:02 AM
  #737
We got hit pretty hard with the snow storm too. I just cancelled my pdoc appt today because I was told the roads all suck and there would be no parking.
Last night we had to bring one of my cats the the veterinary emergency hospital. Loaded her up with meds but we won't know what's going on until the blood work/urine test comes back. She's breathing heavy, won't eat, vomiting, and is just acting weird overall. She's an old cat (17 y/o) and I'm afraid she's not going to make it.
Mood wise I've been doing well. I still have paranoia popping in just to say hi though.
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Heart Dec 03, 2019 at 11:02 AM
  #738
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Originally Posted by MissDenim View Post
Hi there,

I hope everyone is well. I haven't been here in a while, I know...

Tomorrow's my birthday, but I've been grumpy lately. Next time I see my Psychiatrist, I am gonna ask if he can suggest a stronger mood stabilizer or something that can help with my angry moods. I feel like I already ruined my birthday, and it's not even tomorrow yet.

How is everyone else? I hope you guys are doing better than I am.
Hi Miss Denim,

Welcome back!

HAPPY BIRTHDAY!!!

I have found a tweak in meds can often help me with irritability.
Does anything besides meds help?
How soon do you see your p-doc?
Any chance you might call him/her to have your meds adjusted before you see him/her?

I do hope you will enJOY your birthday!

Taken care!

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Heart Dec 03, 2019 at 11:07 AM
  #739
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Thanks ! I hope so too ! But I think it’s just a waiting game. The half life of Humira is ridiculous
I am also on a biologic and am a bit unsettled about using this drug class.
We are each between a rock and a hard place. It is either allow the disease process to continue destroying joints or inject the biologic(s).

I wish you complete healing of this terrible lung side-effect. I do not know if I could cope with it, on top of all else.

Love Ya!

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Heart Dec 03, 2019 at 11:10 AM
  #740
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We got hit pretty hard with the snow storm too. I just cancelled my pdoc appt today because I was told the roads all suck and there would be no parking.
Last night we had to bring one of my cats the the veterinary emergency hospital. Loaded her up with meds but we won't know what's going on until the blood work/urine test comes back. She's breathing heavy, won't eat, vomiting, and is just acting weird overall. She's an old cat (17 y/o) and I'm afraid she's not going to make it.
Mood wise I've been doing well. I still have paranoia popping in just to say hi though.
Oh, spikes! I am sorry your cat is so ill.
I hope the tests reveal something totally curable.
Thinking of you and of your cat!
Much Love to You Both!

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