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Default Jan 16, 2020 at 08:09 AM
  #141
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Originally Posted by wildflowerchild25 View Post
Feeling crappy today. Not mood wise, just coming down with a cold. I’m drinking a ton of emergen-c though. I hope I’ll feel better tomorrow. I had to take off on Monday bc my son was sick (hence why I’m sick now) so I can’t take any more time off for awhile. This was supposed to be no call out January! Damn illness.

My student’s last day is tomorrow. He is being dropped from our school because of his behavior. I will be starting with one of the other students in the class on Friday. I’m a little sad because despite everything, I do like my student. But he needs a more structured environment. He is actually going to the first school I used to teach at, which is interesting. I told him it’s a good place. I hated it but I hated it more for the coworkers and less for the students.

I have a secret. I have not taken haldol in about three weeks. I first stopped because I kept forgetting to get it from the trunk of my car. But I noticed I felt no ill effects from stopping it so I haven’t taken it. The jaw twitches are gone and I have had no paranoia. So I’m going to stay off of it. It’s there if I need it. I haven’t told RS though. I need to. I always want to be completely honest with him.

It makes me want to stop all of my meds and see if I really need them anymore. But I don’t want to fall into that trap. I’m sure the reason I’ve been stable for so long is because I’m on the right medication. I just wish I didn’t have to take pills. Now I’m down to only two medications. So that’s not that bad.
I stopped all my meds in 2012 because I decided I did not want to have bp 1 anymore. Had a huge recurrence. It was awful. So, I am naturally very nervous when people start d/cing their meds. I really hope this goes well for you.

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Default Jan 16, 2020 at 08:12 AM
  #142
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Originally Posted by ~Christina View Post
Busy day cleaning... I see my rheumatologist tomorrow, finally.

I hope we decide on the next medication to try. I am also hoping he will do some injections into my finger joints, it’s like a toothache.

Hugs to all ~
Sincerely hoping you walk out with a prescription for one of those fancy rheum meds that really helps you--and acts more quickly than some.

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Default Jan 16, 2020 at 08:16 AM
  #143
Feeling much better today. I saw my therapist yesterday and she helped a lot. I just needed to make a decision and to process the grief.

Thank you for the kindness and support you’ve shown me.

Warm regards to all and hugs to those that are struggling.
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Default Jan 16, 2020 at 09:57 AM
  #144
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Hey, all. I hope you're doing well.
I met with my T today. It was the first time since before Christmas. She told me that my experience Friday of waking up unable to breathe, talk, or move was not actually the first time that had happened to me. She could recall another treatment wherein I described such a situation.
Hi Daonnachd. Have you spoken with the anesthesiologist about these and received an indication if they will make adjustments? I think I remember you writing that the doctor noticed this issue last time. When it happened to me, the anesthesiologist ensured me it wouldn't happen again. It didn't.
 
 
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Default Jan 16, 2020 at 10:04 AM
  #145
Awake half of the night studying up on:

SSDI regulations , and on :

HIPPA , State Health Care Law and related Medical Malpractice Insurance guidelines..

Two separate issues at hand.

Ready to ROCK and ROLL!

Love to All ~

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Default Jan 16, 2020 at 10:31 AM
  #146
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Hi Daonnachd. Have you spoken with the anesthesiologist about these and received an indication if they will make adjustments? I think I remember you writing that the doctor noticed this issue last time. When it happened to me, the anesthesiologist ensured me it wouldn't happen again. It didn't.
Heya, BirdDancer. So far I've only had a brief conversation with the anaesthesiologist in the Recovery room right after I'd woken back up. He just asked about the last thing that I remembered, wondering if I recalled something about rollerskates. I didn't know what he was talking about and that was the end of the conversation.

Next time it will likely be a different anaesthesiologist so I won't get to talk to the same guy. I will tell February's anaesthesiologist everything I can about what happened. In fact, I'm also planning to ask my ECT pdoc if she put anything in my chart about it, or at least to tell me what she remembers.

It shouldn't happen again. The anaesthesiologists record the med combination used and always ask me how the last time went. That gives me the opportunity to point out a need for change in the cocktail. The strange thing is: it was the same stuff as the time before and yet this happened.

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Default Jan 16, 2020 at 11:49 AM
  #147
Still feeling great, saw my Therapist today. I told her I'm off my meds and I have been for 2 months. I said I'm angry at myself for only lasting 188 days on my meds since i last stopped i couldn't even make it an even 200. What a loser. I told her i feel great better than i have in a decade tbh. I'm not risky, dangerous, no racing thoughts, no sever paranoia or delusions everything is going great. I feel like I shouldn't have told her though feel she knows too much now. Oh well can't take it back now can I
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Default Jan 16, 2020 at 12:03 PM
  #148
I still feel very sick, physically. Hubby thinks it may be from food poisoning. Luckily, I have nothing on my calendar until next week.

My house is a mess, but neither hubby nor I feel well enough to do anything about it.
 
 
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Default Jan 16, 2020 at 12:09 PM
  #149
Skiing and partying this weekend! Hell yeah! So excited! I've been dying to go skiing for the past month but I was looking for cheap tickets and tomorrow night $20 instead of like $80

Saw my pdoc today too, we're dropping the antidepressant with permission to go back on it if I get depressed. She also approved of me taking Ativan PRN instead of scheduled. It was a good appointment.
 
 
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Default Jan 16, 2020 at 12:32 PM
  #150
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I still feel very sick, physically. Hubby thinks it may be from food poisoning. Luckily, I have nothing on my calendar until next week.

My house is a mess, but neither hubby nor I feel well enough to do anything about it.
I hope you feel better soon.
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Default Jan 16, 2020 at 12:33 PM
  #151
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Skiing and partying this weekend! Hell yeah! So excited! I've been dying to go skiing for the past month but I was looking for cheap tickets and tomorrow night $20 instead of like $80

Saw my pdoc today too, we're dropping the antidepressant with permission to go back on it if I get depressed. She also approved of me taking Ativan PRN instead of scheduled. It was a good appointment.
Sounds like a fine time indeed! I hope you have a wonderful time.
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Default Jan 16, 2020 at 01:59 PM
  #152
You'll never believe what happened last night.

I can't.

The eye issue came back(!!!!!) You can't imagine how fervently I had hoped I'd never have to deal with it again EVER. But here it is. Fortunately, I had some of the drops that ended up working on it last time, so I put some in as soon as it hit (it gains speed incredibly fast). It seems to have slowed the quick progression having been able to get on it so early.

This morning, I looked at the box and it had a refill on it! YEA! So I can just go over and get some more and bypass the doc visit. Not like I'm not well-familiar with this crap.

Wish me luck. I need this **** GONE! (FOR GOOD!)


Sending hugs and compassion. Sorry not to respond more individually. Having a hard time keeping up.

Edited to add -- yesterday was also my first PT appt for my spine/shoulder/arm/hand issue. It has been a major problem. I am a VERY motivated patient.

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Default Jan 16, 2020 at 05:29 PM
  #153
This is for those who have reached out to me and generally show compassion and concern for me. I wanted to write a message here so it can be seen by those who care and forgotten when it not on the most recent page anymore or for those who don’t care.

I just wanted to say I’m going to step back from posting for a while. I’ve realized that for months I’ve done nothing but contribute negativity and personal woes without making any positive change in the process. I’m not willing anymore to be so fragile and vulnerable and expect someone else to carry me along. You’ve been wonderful, and I’m not leaving forever – but until I get my life in order and can stop being who I am… I think it’s best.
Take care guys, I’ll still be reading and be around.

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Heart Jan 16, 2020 at 06:53 PM
  #154
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I still feel very sick, physically. Hubby thinks it may be from food poisoning. Luckily, I have nothing on my calendar until next week.

My house is a mess, but neither hubby nor I feel well enough to do anything about it.
Oh no! I hope you feel better as soon as possible!

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Default Jan 16, 2020 at 06:53 PM
  #155
I'm a car owner again. All signed and covered. I bought the insurance last night and went to the library to print it. Boy the printing process their has gotten complicated. All in the name of security! Then today went for a longer test drive and figured out the buttons. Signed over half my savings and got the keys. Been running around ever since getting last minute stuff before the storm hits. 5-8 inches of snow with ice will hit us tomorrow. Had to get cheese! If I've got cheese I can survive a shut in.

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Heart Jan 16, 2020 at 06:56 PM
  #156
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You'll never believe what happened last night.

I can't.

The eye issue came back(!!!!!) You can't imagine how fervently I had hoped I'd never have to deal with it again EVER. But here it is. Fortunately, I had some of the drops that ended up working on it last time, so I put some in as soon as it hit (it gains speed incredibly fast). It seems to have slowed the quick progression having been able to get on it so early.

This morning, I looked at the box and it had a refill on it! YEA! So I can just go over and get some more and bypass the doc visit. Not like I'm not well-familiar with this crap.

Wish me luck. I need this **** GONE! (FOR GOOD!)


Sending hugs and compassion. Sorry not to respond more individually. Having a hard time keeping up.

Edited to add -- yesterday was also my first PT appt for my spine/shoulder/arm/hand issue. It has been a major problem. I am a VERY motivated patient.
Again? EYE just cannot believe it!

Ugggh! I hope it goes away quickly!

PT!!! Good for you!!! "Spine/shoulder/arm/hand" sounds quite painful!

Much Love!

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Default Jan 16, 2020 at 08:42 PM
  #157
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Originally Posted by BirdDancer View Post
I still feel very sick, physically. Hubby thinks it may be from food poisoning. Luckily, I have nothing on my calendar until next week.


My house is a mess, but neither hubby nor I feel well enough to do anything about it.


I hope you feel better very soon.. are you able to push fluids? You don’t want to become dehydrated

So sorry your going through this

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Default Jan 16, 2020 at 08:44 PM
  #158
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Originally Posted by Innerzone View Post
You'll never believe what happened last night.


I can't.


The eye issue came back(!!!!!) You can't imagine how fervently I had hoped I'd never have to deal with it again EVER. But here it is. Fortunately, I had some of the drops that ended up working on it last time, so I put some in as soon as it hit (it gains speed incredibly fast). It seems to have slowed the quick progression having been able to get on it so early.


This morning, I looked at the box and it had a refill on it! YEA! So I can just go over and get some more and bypass the doc visit. Not like I'm not well-familiar with this crap.


Wish me luck. I need this **** GONE! (FOR GOOD!)





Sending hugs and compassion. Sorry not to respond more individually. Having a hard time keeping up.


Edited to add -- yesterday was also my first PT appt for my spine/shoulder/arm/hand issue. It has been a major problem. I am a VERY motivated patient.


Oh my god woman !! You need new eyeballs the ones you have must be faulty !! I am so glad you have a refill !!

I hope PT improves you quickly

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Default Jan 16, 2020 at 08:47 PM
  #159
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I'm a car owner again. All signed and covered. I bought the insurance last night and went to the library to print it. Boy the printing process their has gotten complicated. All in the name of security! Then today went for a longer test drive and figured out the buttons. Signed over half my savings and got the keys. Been running around ever since getting last minute stuff before the storm hits. 5-8 inches of snow with ice will hit us tomorrow. Had to get cheese! If I've got cheese I can survive a shut in.


So exciting!!!!! I’d be out running around too

Snow with Ice ? No no thank you Id be sitting at home too

Congratulations on your new ride

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Default Jan 16, 2020 at 08:49 PM
  #160
Honestly, I am stable. I'm so stable it's scary!

Hear me out guys, I think this may be my anxiety or just me self-sabotaging.

I am on a good med-combo, working full-time and I have been sleeping well.

My boyfriend comes home in less than 5 days and I'm so excited!!!

So why this agonizing feeling of mania over the horizon, waiting, lurking and scheming to ruin my life???!!!

AHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!

Bad thoughts STOP!!!!

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