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Default Feb 20, 2020 at 10:21 AM
  #481
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Originally Posted by ~Christina View Post
Yes paid idiots are everywhere unfortunately.

I hate to see you continue to struggle like this.

It’s sad that you live in a big city yet finding a good Pdoc has so many road blocks between insurance or mandatory Therapy.

Do you have a rough idea of how many times you have called ? Maybe ask if he ever returns calls or does idiot always return calls ? I have research cogentin it seems the most logical next step because I truly can not handle this non stop inability to just sit and rest ? Or something like that ??
I don't live downtown anymore. I used to up until recently, though. But I stay out of the city nowadays because the traffic is awful and aggravating.

The idiotic lady always returns calls; he never does. I can certainly ask why he doesn’t though. It seems kinda lazy when all the other pdocs in this office return calls themselves?

I am thinking about telling my therapist tomorrow when I see her. They work in the same office and she reported his former assistant before. Maybe she can do something about it.

I have called at least 4 times already and they do nothing about the akathisia.

I am sure my therapist will be a tattle tale behind my back and tell my pdoc that I stopped my rexulti, but maybe that would be a good thing.
 
 
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Default Feb 20, 2020 at 10:40 AM
  #482
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Originally Posted by wildflowerchild25 View Post
****. Now I have pink eye. I went to the real dr today, not urgent care, and she also diagnosed me with a sinus infection. That would explain the awful pain I’ve been having in my cheeks and forehead. So now I’ll have an oral antibiotic and antibiotic eye drops.

She also wants me to go see a cardiologist. My pulse is usually high, around 100, but today it was 119. She had an ekg done, and it showed one of my abnormalities ( I already had one but my dr wasn’t concerned bc it was the same on all my scans) has worsened. **** me. The cardiologist is in the same complex as my dr so I went over there and got an appt for April 17th.

I just want to feel better! I have **** to do on Saturday! I don’t want to miss it.
That sucks, wildflowerchild! I hope that you start to feel better soon on the antibiotic. I hope the EKG doesn't show anything that concerning. I am treated for tachycardia, and have been for (10 years???). The medication I take for it is great. It does the job with zero side effects for me. Hopefully you won't need a medication, though. You have been under a great deal of stress lately. I am sending well wishes that the stress eases soon, too.
 
 
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Heart Feb 20, 2020 at 11:47 AM
  #483
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For Fuzzybear:

Amateur Photographer Captures Three Bear Cubs '''Dancing''' In The Forest - LADbible

May we all dance together with joy today.
Thank you BirdDancer

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Default Feb 20, 2020 at 12:16 PM
  #484
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Originally Posted by bluebicycle View Post
I don't live downtown anymore. I used to up until recently, though. But I stay out of the city nowadays because the traffic is awful and aggravating.


The idiotic lady always returns calls; he never does. I can certainly ask why he doesn’t though. It seems kinda lazy when all the other pdocs in this office return calls themselves?


I am thinking about telling my therapist tomorrow when I see her. They work in the same office and she reported his former assistant before. Maybe she can do something about it.


I have called at least 4 times already and they do nothing about the akathisia.


I am sure my therapist will be a tattle tale behind my back and tell my pdoc that I stopped my rexulti, but maybe that would be a good thing.


Total suckage. But what choice did you have other than to cut your dose ?? Or Did you stop it totally ??

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Default Feb 20, 2020 at 12:20 PM
  #485
One thing on top of another

Can you work with pink eye? Usually not since it’s so easy to spread. The antibiotics should kick in pretty quick you can also take over the counter mucinex , I buy store brand but it can help break that funk lose quicker.

Lots of fluids and stay warm

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Default Feb 20, 2020 at 12:30 PM
  #486
So as I mentioned before my husbands MRIs and angiogram came back clear so need to see a Neurologist as this constant headache presents like a migraine.

I called earliest is March 17th he’s had this “ migraine “ solid for weeks now. They put him on the cancellation list which is great.

I call our GP and tell them nothing til the 17th , they said they would work on it , the Neurologist office just called they are fitting him in today at 1:30 ... again small town living helps us get things done much quicker than bigger city.

Of course today’s all days it’s freaking snowing.

On a happy note once Neurologist finds a medication that works our GP will take over refills. Which is a huge savings.

Ok gotta get moving

Have a good day everyone

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Default Feb 20, 2020 at 12:44 PM
  #487
I'm feeling ok that I got up at a better hour today, but stressing about this party and not really at all enthused about doing work today. :/

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Default Feb 20, 2020 at 12:55 PM
  #488
I seem to be quite verbal lately (not only on here)
Not sure if this is a ''good'' thing, I hope so

(lists of meds in my siggy line, not for me )

hugs to all

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Default Feb 20, 2020 at 01:24 PM
  #489
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Total suckage. But what choice did you have other than to cut your dose ?? Or Did you stop it totally ??
I stopped it totally because I couldn't bear it any longer. Now I feel tons better. I feel less foggy headed too. It's like a light switch went on (but not in a bad or manic way).

I also wonder if it was giving me anxiety because I totally just went grocery shopping in the middle of the lunch hour with lots of traffic and lots of people there. Normally, I'm super sensitive to my surroundings and feel very anxious around lots of people/traffic, which is why I have (literally) gone days without eating before when I've run out of food in the past. Today? Not so much. I persevered!
 
 
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Default Feb 20, 2020 at 01:31 PM
  #490
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Possible Trigger - SI

University begins in five days. The Fibromyalgia/Chronic Fatigue is getting worse, and my hip is still causing major issues. Despair is flooding in. I don't know if I will cope with the load, and if I can't I don't know if I can cope with the loss. I am not depressed, but still very suicidal. No one can help me or fix this. All I can do is wait and see what unfolds. I'm scared I won't make it. Sorry to be so down. I have tried so hard to stay positive. Living a life so limited physically and mentally(cognitive) is not one I want to live. This has to improve ASAP.
Do you have an action plan written out? Is there an emergency number to call at your pdoc's? As much as your brain is telling you not to I think you should reach out to those whose job it is to help you. You won't always feel this way. I call this "brain bad" when i get SI. I also try to distract my brain- read or watch Netflix or call a friend. It usually works- only once did I ever get hospitalized. I'll skip the details of that.

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Default Feb 20, 2020 at 01:34 PM
  #491
I am cleaning for a few minutes, then I'm going to pick up N2 from work. Been a relaxing cleaning kind of day. Too much coffee though- had a second cup- now I'm wired!

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Default Feb 20, 2020 at 01:56 PM
  #492
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Originally Posted by Wander View Post
Possible Trigger - SI

University begins in five days. The Fibromyalgia/Chronic Fatigue is getting worse, and my hip is still causing major issues. Despair is flooding in. I don't know if I will cope with the load, and if I can't I don't know if I can cope with the loss. I am not depressed, but still very suicidal. No one can help me or fix this. All I can do is wait and see what unfolds. I'm scared I won't make it. Sorry to be so down. I have tried so hard to stay positive. Living a life so limited physically and mentally(cognitive) is not one I want to live. This has to improve ASAP.
I am so sorry you are struggling with all this, Wander. I have been there with the SI stuff. It was so bad when I joined PC, I really thought I would not survive. But I did. And you can, too. Don't give up!! Maybe there is a change that can be made to help with your depression med-wise?

Sending you strength and support!!!! You can do this!!! Stay strong!!!!

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Default Feb 20, 2020 at 02:22 PM
  #493
The increase in Wellbutrin seems to have helped a bit, on 450 now. I've been on that dose before, so it is nothing really new. Will see pdoc in a couple of weeks and we will maybe reduce the Depakote a bit. That would be nice.

Was able to do 55 miles on the bike yesterday. It was a bit harder than it should have been, with insane winds, like, 25 mph. Brutal. Got passed by a guy in his thirties who made me look like I was standing still, which was not so good for my ego, but hey, I am not in my thirties, am I? At least I was out there, doing it.

Sending hugs and love to all, especially those struggling with physical and emotional pain. We can do it!!!!

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Default Feb 20, 2020 at 02:29 PM
  #494
I don’t think I have ever found cleaning relaxing.. I tend to have a lot of anxiety and sub optimal thoughts when my brain is not fully engaged in a task. Maybe mindfulness might help

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Default Feb 20, 2020 at 02:41 PM
  #495
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The increase in Wellbutrin seems to have helped a bit, on 450 now. I've been on that dose before, so it is nothing really new. Will see pdoc in a couple of weeks and we will maybe reduce the Depakote a bit. That would be nice.

Was able to do 55 miles on the bike yesterday. It was a bit harder than it should have been, with insane winds, like, 25 mph. Brutal. Got passed by a guy in his thirties who made me look like I was standing still, which was not so good for my ego, but hey, I am not in my thirties, am I? At least I was out there, doing it.

Sending hugs and love to all, especially those struggling with physical and emotional pain. We can do it!!!!
OMG! 55 miles? That would be like me riding my bike from my house to Brooklyn, NY. I'd surely be dead by that time. Actually, I'd likely not even make it 20% there. You're doing great!
 
 
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Default Feb 20, 2020 at 03:04 PM
  #496
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I don’t think I have ever found cleaning relaxing.. I tend to have a lot of anxiety and sub optimal thoughts when my brain is not fully engaged in a task. Maybe mindfulness might help
I put music on. It fills the gaps in my brain and gives it something to do.

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Default Feb 20, 2020 at 03:23 PM
  #497
I'm feeling a bit better after a good night at Scrabble. I won all my games! I played a new man, handsome and about my age. I felt nervous and rattled. I had a big play with PANTIES and i was so nervous to play it but i managed to. He didn't react. I played some good words with him and was pleased to do so well.

My doctor hasn't replied to my email. I guess going up on the Lamictal is an option.
 
 
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Default Feb 20, 2020 at 05:09 PM
  #498
All my tests this week have turned up good results. I’m both happy and relieved.

Still doing well.

Warm regards to all and hugs to those that are struggling.
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Default Feb 20, 2020 at 05:13 PM
  #499
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All my tests this week have turned up good results. I’m both happy and relieved.

Still doing well.

Warm regards to all and hugs to those that are struggling.
Congrats, Jennifer! I'm happy to hear that your tests gave good results.

I know how daunting it is to wait for test results, especially ones that imply bad things might be happening.
 
 
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Default Feb 20, 2020 at 05:20 PM
  #500
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Originally Posted by bpcyclist View Post
The increase in Wellbutrin seems to have helped a bit, on 450 now. I've been on that dose before, so it is nothing really new. Will see pdoc in a couple of weeks and we will maybe reduce the Depakote a bit. That would be nice.

Was able to do 55 miles on the bike yesterday. It was a bit harder than it should have been, with insane winds, like, 25 mph. Brutal. Got passed by a guy in his thirties who made me look like I was standing still, which was not so good for my ego, but hey, I am not in my thirties, am I? At least I was out there, doing it.

Sending hugs and love to all, especially those struggling with physical and emotional pain. We can do it!!!!
55 miles? Amazing!!!
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