FAQ/Help |
Calendar |
Search |
Guest
Anonymous35014
has no updates.
Edit
Posts: n/a
|
#1
I think I have akathisia right now, but never TD or dystonia (thankfully). What about you?
|
Reply With Quote |
bpcyclist, Fuzzybear, Sunflower123, Wild Coyote
|
Wild Coyote
|
Legendary Wise Elder
Blue_Bird
is ready for recovery!
Member Since: Jun 2013
Location: Hogwarts
Posts: 36,660
(SuperPoster!)
14.3k hugs
given |
#2
I’ve had Akathisia, TD, and RLS at different points but never dystonia
__________________ R.I.P mom 8/6/55-1/15/16 “All the darkness in the world cannot extinguish the light of a single candle.” -St. Francis of Assisi
|
Reply With Quote |
bpcyclist, Sunflower123, Wild Coyote
|
Wild Coyote
|
Guest
Anonymous46341
has no updates.
Edit
Posts: n/a
|
#3
Akathisia on a few antipsychotics. On one it was quite severe and highly distressing.
Dystonia on one 1st generation antipsychotic. It stopped when my dose was reduced by half, but since the smaller dose didn't work sufficiently at curbing my mania, it was soon after replaced. Last edited by Anonymous46341; Feb 11, 2020 at 09:23 AM.. |
Reply With Quote |
bpcyclist, Sunflower123, Wild Coyote
|
Wild Coyote
|
Member
Nola0250
has no updates.
Member Since: Dec 2017
Location: California
Posts: 285
65 hugs
given |
#4
I have had akesthesia from Latuda. My pdoc wanted me to just take it right before bed with a sleeping pill that would keep me asleep until the akesthesia wore off. Didn’t work. Now we are tapering the dose. So far I am still waking up but only slightly restless
|
Reply With Quote |
bpcyclist, Sunflower123, Wild Coyote
|
Wild Coyote
|
Legendary
Community Liaison
Wild Coyote
has no updates.
Member Since: Jun 2016
Location: USA
Posts: 12,735
(SuperPoster!)
70.9k hugs
given |
#5
Hey Blue!
Akasthisia, RLS and dystonia., No TD. I'd had the RLS and the dystonia without any meds. I hope you find relief soon. __________________ May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths. |
Reply With Quote |
bpcyclist, Sunflower123
|
Guest
Anonymous43918
has no updates.
Edit
Posts: n/a
|
#6
I've had akathisia from a few different antipsychotics. Not fun.
|
Reply With Quote |
bpcyclist, Sunflower123, Wild Coyote
|
Wild Coyote
|
Legendary
bpcyclist
has no updates.
Member Since: Sep 2019
Location: Portland
Posts: 12,681
(SuperPoster!)
40.2k hugs
given |
#7
I have had all but TD. I now also have Periodic Limb Movement Disorder, which is a real pain in the backside to try to sleep with. Basically, my left ankle jerks and kicks involuntarily every 45 seconds or so while I am trying to sleep. I believe in me it is antipsychotic-related.
__________________ When I was a kid, my parents moved a lot, but I always found them--Rodney Dangerfield |
Reply With Quote |
Anonymous46341, Sunflower123, Wild Coyote
|
Wild Coyote
|
Member
Grad0507
has no updates.
Member Since: Mar 2010
Posts: 43
|
#8
My husband has bipolar and restless leg syndrome
|
Reply With Quote |
Anonymous46341, bpcyclist, Sunflower123
|
Legendary
HALLIEBETH87
Tired
Member Since: Oct 2004
Location: usa
Posts: 11,175
2,739 hugs
given |
#9
Ive had ocular Dystonia and akathesia! Miserable !!
__________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
Reply With Quote |
Anonymous46341, Sunflower123
|
Member
Rick7892
has no updates.
Member Since: Dec 2013
Location: Between Here & There
Posts: 188
941 hugs
given |
#10
I have bipolar and Periodic Limb Disorder unrelated to medications. I once was diagnosed with Restless Legs, but it was probably Periodic Limb disorder.
__________________ A virtual to all in a time of physical social distancing! Trying to practice coping tools to live in my own skin more gently, peacefully, & comfortably One Day a Time (sometimes one breath at a time) |
Reply With Quote |
Anonymous46341, Sunflower123
|
Legendary Wise Elder
Sunflower123
has no updates.
Member Since: Jan 2015
Location: USA
Posts: 26,543
(SuperPoster!)
95k hugs
given |
#11
I’ve had RLS and akathisia. The RLS was miserable.
|
Reply With Quote |
Anonymous46341, Wild Coyote
|
Wild Coyote
|
Guest
Anonymous35014
has no updates.
Edit
Posts: n/a
|
#12
It's very interesting to see how many people get these nasty side effects -- yet doctors rarely seem to mention the risk for developing these symptoms on antipsychotics and the like.
I know that many of us need antipsychotics for various reasons, but still, I feel like more care could be put toward the patients who are prescribed these classes of drugs. I only know about akathisia because of this forum. NONE of my pdocs ever mentioned what akathisia is or that you can get it from antipsychotics etc.. |
Reply With Quote |
Anonymous46341, Wild Coyote
|
*Beth*, Wild Coyote
|
Legendary Wise Elder
Community Liaison
~Christina
has no updates.
Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12.7k hugs
given |
#13
I think a few Pdoc’s probably don’t say “hey this can cause you to want to climb out of your skin and pace a million miles “ because a person is very much in need of a medication and they don’t want to I dunno “spook anyone” ? but when that person calls with akathesia type side effects.... They need to react ... right ... away...
Maybe I’m wrong but standard from my Pdoc and any IP Pdocs I ever had was Inderal if no relief in 24/48 hours then add Cogentin right away if no relief then it’s time to decrease dose of current med(s) and see if that helps in 3/5 days but if someone is not finding relief then that Medication has to go ASAP I got it with Abilify so ... , Inderal , Cogentin , decrease dose , no relief I stepped down off it and I “ think” I went back onto Seroquil ?? All of the above took place in 10-12 days. I know lots of people that have gone to the ER because they just couldn’t handle it anymore. Akathesia is something ER Doctors see far to often and they almost always give a person a weeks worth and told to see Pdoc asap. Maybe that would be an option if you just can’t get help from your Pdoc? __________________ Helping others gets me out of my own head ~ |
Reply With Quote |
Wise Elder
BeyondtheRainbow
has no updates.
Member Since: Apr 2015
Location: US
Posts: 9,193
(SuperPoster!)
9,275 hugs
given |
#14
They can also use gabapentin if for some reason propanolol or cogentin can't be used. I actually combined a manic episode with akathesia and landed IP and couldn't have propranolol (maybe my MAOI? I can't remember). I also can't remember if I had cogentin but I think I did. But I did definitely have gabapentin which they said was the 2nd line of defense. The problem was I needed so much (and in combination with more AP for the mania) that I was really sedated. However I was able to lower the gabapentin fairly soon and the akathesia went away. In that case it wasn't from my psych meds but from something given during anesthesia.
Never, ever combine mania and akathesia. I wound up with 1:1 in the hospital for a couple days because I was so agitated and the aide was supposed to help me stay calm with crafts and "can you help us sort these markers?" and the like. I know I made my fellow patients want to hide when I was coming. __________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1700 mg & 100-2 PRN,. 1.5 mg clonazepam., 50 mg Seroquel |
Reply With Quote |
Wild Coyote
|
Wild Coyote
|
Poohbah
luvyrself
has no updates.
Member Since: Dec 2015
Location: Phoenix
Posts: 1,280
136 hugs
given |
#15
I had akathesia (intense restlessness) from Latuda, also it gave me panic attacks.
Antipsychotics gave my friend tremors (tardive dyskinesia)which can become permanent if you don’t change meds. __________________ Bipolar 2 with anxious distress mixed states & rapid cycling under severe stress tegretol 200 mg wellbutrin 75 mg, cut in half or higher dose as needed Regular aerobic exercise SKILLSET/KNOWLEDGE BASE: Family Medical Advocate Masters in Library Science Multiple Subject Teaching Credential-15 yrs in public schools |
Reply With Quote |
downandlonely, Wild Coyote
|
Wild Coyote
|
New Member
CindyNotSindy
has no updates.
Member Since: Jun 2015
Location: Brea
Posts: 7
|
#16
Yesssss 😖. It was awful. I felt like I wanted to just crawl out of my skin and leave my body. It was so uncomfortable, I honestly thought I was going crazy. I tried to tough it out because I thought it was just my imagination but ended up calling my psychiatrist who told me to stop the Abilify I had recently started. Symptoms resolved about two days later.
My heart goes out to anyone who is experiencing this! |
Reply With Quote |
downandlonely, Wild Coyote
|
Wild Coyote
|
Member
Misfit Toy
is the Black Sheep
Member Since: Mar 2019
Location: On The Island, USA
Posts: 64
15 hugs
given |
#17
I had TD with Abilify at 10 mg. My pdoc lowered it to 5 mg and the TD stopped. Abilify stopped my chronic migraines, so I didn't want to come completely off of it.
__________________ King Moonraiser: A toy is never truly happy until it is loved by a child. |
Reply With Quote |
downandlonely, Wild Coyote
|
Wild Coyote
|
Silver Swan
Moose72
has no updates.
Member Since: Jan 2008
Location: USA
Posts: 16,414
(SuperPoster!)
2,511 hugs
given |
#18
I've had akathisia several times. Its maddening! I was on the bed curled up in a ball rocking back and forth unable to stop moving. Pacing in circles over and over before and after that. Its horrible!
__________________ Wellbutrin XL 300 mg Caplyta 42 mg Ingrezza 80 mg Ativan .5 mg 2x/day Propranolol 20 mg 2x/day Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
Reply With Quote |
Wild Coyote
|
Wild Coyote
|
Member
Coolbreeze74
has no updates.
Member Since: Dec 2019
Location: Washington
Posts: 334
930 hugs
given |
#19
I've had akathisia a couple times and from latuda. It was awful! I hope you find relief soon...
|
Reply With Quote |
Wild Coyote
|
Wild Coyote
|
Silver Swan
Moose72
has no updates.
Member Since: Jan 2008
Location: USA
Posts: 16,414
(SuperPoster!)
2,511 hugs
given |
#20
Welcome to Psych Central's forums @Coolbreeze74 ! I'm sorry you suffered from akathisia, too.
__________________ Wellbutrin XL 300 mg Caplyta 42 mg Ingrezza 80 mg Ativan .5 mg 2x/day Propranolol 20 mg 2x/day Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
Reply With Quote |
Wild Coyote
|