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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#121
Thanks, Sarah. It turned out that Medicare finally told me to tell the pharmacy to bill the "Linet Program". Apparently it's a division of Medicare that covers scripts for people who are on SSDI & Medicare, but who are still eligible for Medicaid.
I don't know if the Linet Program is in every state. I hope it is. __________________ |
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MuseumGhost
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MuseumGhost
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Location: Tennessee
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#122
My State didn't expand Medicaid here. So even tho our income from SSDI is low, and we have no children under 18 we do not qualify for anything else.
Hope you get what ever you qualify for, Anything helps __________________ Helping others gets me out of my own head ~ |
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*Beth*
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*Beth*
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#123
Quote:
Thanks so much for your support, Christina. You gave me hope when I swore I couldn't fill out one more piece of bureaucratic paperwork. That so sucks about your state. I was told that anyone who is on Medi-Cal (Calif. Medicaid) cannot be taken off for any reason as long as covid is active. So that is sure helpful. __________________ |
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~Christina
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~Christina
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#124
Pdoc tomorrow.
Med increase is helping. I feel more stable, but not so much that I have no creative drive. Actually, I am a bit more mixed than I'd like to be. I believe more of an increase as the days become shorter may be a good idea. -16mg. perphenazine (Trilafon) -350 Lamictal -1mg twice/day K-pin -100mg Amantadine (tremor has slightly increased w/ meds increase) -75mg Pristiq 25mg Seroquel for sleep, plus the ZzzQuil I'm not supposed to be taking __________________ |
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#125
Lamictal increased to 400mg because I am seriously concerned about the impending shortening of the days.
Dr. pdoc was in a crabby mood today, so she said the ZzzQuil is okay to take. I don't think she was up for me being stubborn. __________________ |
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Fuzzybear
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#126
Hugs and love
I love the quote by Camus __________________ |
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*Beth*, Hobbit House
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*Beth*
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#127
One more thing.. if there is a med you need prior-auth for and it comes time for the prio-auth to be renewed pay attention. Start that process a month or two prior to its expiration. I've showed up to the pharmacy and had it denied for lack of a prior auth and had to scramble to get the auth at the last minute/had to go without the medication in the past.
__________________ "I carried a watermelon?" President of the no F's given society. |
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*Beth*
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*Beth*
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#128
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Thank you, Sarah. Good tip! __________________ |
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#129
4th day of Lamictal increase. I keep falling asleep. Have a small rash (the usual Lamictal increase rash) on my upper chest. I'm not sure how I feel, except exhausted.
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#130
(((((((((((((((((((( Beth )))))))))))))))))))))))))
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*Beth*, MuseumGhost
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*Beth*, MuseumGhost
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#131
(mistake)
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#132
Dr. W. raised the Amantadine dose to 200mg/day. Suggested I split Lamictal & Amantadine to AM/PM to try to control the tremor. It has already improved, after just 2 doses.
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~Christina
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~Christina
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#133
Great news Beth
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*Beth*
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*Beth*
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#134
Forget taking Lamictal in the AM. Spent the day yesterday asleep while awake. So back to PM Lamictal.
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~Christina
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~Christina
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#135
Dropped Trilafon dose from 16mg down to 12mg. with the goal of stopping it - if I don't experience a higher level of anxiety than I'm already feeling, which is too high. (Side-effect, gi upset.)
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#136
SO glad I consulted with Dr. W. I had come to a point of losing my judgment. She definitely wants to increase the Trilafon to 20mg/day. That sounds like a relief to me. My mind is so noisy, non-stop music and other sounds, I'm close to tears from the relentless racing.
The doubled Amantadine is helping with the tremor, which would be further helped if I could calm down. __________________ |
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#137
Sounds/music slower, but still nagging at my brain. Anxiety? I'm not even sure whether it's lower, or not. I don't think there's anything else she can suggest. I feel very sleepy all the time. Some... I don't know what to call it...a swimmy feeling in my brain. Off-balance. That med thing. Plus, it's so warm still. I think Thursday is finally supposed to drop down to 80. Please, Universe, no more fires.
I am pretty sure my anxiety level would feel lower if I was shakey. Not exactly the same as hand tremor, but shakey arms, shoulders, jaw. It reminds me of being anxious, so I feel anxious. I am quite sure the shakiness comes from Lamictal, pdoc thinks not. __________________ |
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
Posts: 15,701
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#138
Poor stamina, shakiness (jaw, shoulders, arms), tight muscles (back of neck). body temperature can't regulate well. So sleepy I could sleep for a full day and night. Can't stay awake for more than 90 mins. It's unfortunate, because mentally I feel stable. Such is life.
Dr. W: Decrease Lamictal to 350mg. Decrease Trilafon to 18mg. Add small dose of Cogentin __________________ |
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Fuzzybear
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#139
BethRags
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*Beth*
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
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#140
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Fuzzybear
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