Beth's Keeping Track Post

*Beth* · Sep 10, 2020 at 04:46 PM

Thanks, Sarah. It turned out that Medicare finally told me to tell the pharmacy to bill the "Linet Program". Apparently it's a division of Medicare that covers scripts for people who are on SSDI & Medicare, but who are still eligible for Medicaid.

I don't know if the Linet Program is in every state. I hope it is.

~Christina · Sep 10, 2020 at 05:30 PM

My State didn't expand Medicaid here. So even tho our income from SSDI is low, and we have no children under 18 we do not qualify for anything else.

Hope you get what ever you qualify for, Anything helps

*Beth* · Sep 10, 2020 at 06:40 PM

Quote:

Originally Posted by ~Christina

My State didn't expand Medicaid here. So even tho our income from SSDI is low, and we have no children under 18 we do not qualify for anything else.

Hope you get what ever you qualify for, Anything helps

Thanks so much for your support, Christina. You gave me hope when I swore I couldn't fill out one more piece of bureaucratic paperwork.

That so sucks about your state. I was told that anyone who is on Medi-Cal (Calif. Medicaid) cannot be taken off for any reason as long as covid is active. So that is sure helpful.

*Beth* · Sep 14, 2020 at 11:06 PM

Pdoc tomorrow.

Med increase is helping. I feel more stable, but not so much that I have no creative drive. Actually, I am a bit more mixed than I'd like to be. I believe more of an increase as the days become shorter may be a good idea.

-16mg. perphenazine (Trilafon)
-350 Lamictal
-1mg twice/day K-pin
-100mg Amantadine (tremor has slightly increased w/ meds increase)
-75mg Pristiq
25mg Seroquel for sleep, plus the ZzzQuil I'm not supposed to be taking

*Beth* · Sep 15, 2020 at 07:52 PM

Lamictal increased to 400mg because I am seriously concerned about the impending shortening of the days.

Dr. pdoc was in a crabby mood today, so she said the ZzzQuil is okay to take. I don't think she was up for me being stubborn.

Fuzzybear · Sep 16, 2020 at 04:36 PM

Hugs and love

I love the quote by Camus

sarahsweets · Sep 17, 2020 at 03:39 AM

One more thing.. if there is a med you need prior-auth for and it comes time for the prio-auth to be renewed pay attention. Start that process a month or two prior to its expiration. I've showed up to the pharmacy and had it denied for lack of a prior auth and had to scramble to get the auth at the last minute/had to go without the medication in the past.

*Beth* · Sep 17, 2020 at 11:06 AM

Quote:

Originally Posted by sarahsweets

One more thing.. if there is a med you need prior-auth for and it comes time for the prio-auth to be renewed pay attention. Start that process a month or two prior to its expiration. I've showed up to the pharmacy and had it denied for lack of a prior auth and had to scramble to get the auth at the last minute/had to go without the medication in the past.

Thank you, Sarah. Good tip!

*Beth* · Sep 19, 2020 at 05:33 PM

4th day of Lamictal increase. I keep falling asleep. Have a small rash (the usual Lamictal increase rash) on my upper chest. I'm not sure how I feel, except exhausted.

~Christina · Sep 19, 2020 at 09:45 PM

(((((((((((((((((((( Beth )))))))))))))))))))))))))

*Beth* · Sep 20, 2020 at 06:17 AM

(mistake)

*Beth* · Sep 25, 2020 at 01:44 PM

Dr. W. raised the Amantadine dose to 200mg/day. Suggested I split Lamictal & Amantadine to AM/PM to try to control the tremor. It has already improved, after just 2 doses.

~Christina · Sep 26, 2020 at 03:21 PM

Great news Beth

*Beth* · Sep 26, 2020 at 05:14 PM

Forget taking Lamictal in the AM. Spent the day yesterday asleep while awake. So back to PM Lamictal.

*Beth* · Sep 28, 2020 at 06:06 PM

Dropped Trilafon dose from 16mg down to 12mg. with the goal of stopping it - if I don't experience a higher level of anxiety than I'm already feeling, which is too high. (Side-effect, gi upset.)

*Beth* · Sep 29, 2020 at 04:50 PM

SO glad I consulted with Dr. W. I had come to a point of losing my judgment. She definitely wants to increase the Trilafon to 20mg/day. That sounds like a relief to me. My mind is so noisy, non-stop music and other sounds, I'm close to tears from the relentless racing.

The doubled Amantadine is helping with the tremor, which would be further helped if I could calm down.

*Beth* · Oct 05, 2020 at 02:25 PM

Sounds/music slower, but still nagging at my brain. Anxiety? I'm not even sure whether it's lower, or not. I don't think there's anything else she can suggest. I feel very sleepy all the time. Some... I don't know what to call it...a swimmy feeling in my brain. Off-balance. That med thing. Plus, it's so warm still. I think Thursday is finally supposed to drop down to 80. Please, Universe, no more fires.

I am pretty sure my anxiety level would feel lower if I was shakey. Not exactly the same as hand tremor, but shakey arms, shoulders, jaw. It reminds me of being anxious, so I feel anxious. I am quite sure the shakiness comes from Lamictal, pdoc thinks not.

*Beth* · Oct 16, 2020 at 05:09 PM

Poor stamina, shakiness (jaw, shoulders, arms), tight muscles (back of neck). body temperature can't regulate well. So sleepy I could sleep for a full day and night. Can't stay awake for more than 90 mins. It's unfortunate, because mentally I feel stable. Such is life.

Dr. W:
Decrease Lamictal to 350mg.
Decrease Trilafon to 18mg.
Add small dose of Cogentin

Fuzzybear · Oct 16, 2020 at 08:09 PM

BethRags

*Beth* · Oct 16, 2020 at 10:07 PM

Quote:

Originally Posted by Fuzzybear

BethRags

Thank you so much for your support, Fuzzy.

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Beth catches the flowers Member Since Jul 2019 Location: Downtown Vibes, California Posts: 15,701 (SuperPoster!) 4 23.7k hugs given	Sep 10, 2020 at 04:46 PM #121 Thanks, Sarah. It turned out that Medicare finally told me to tell the pharmacy to bill the "Linet Program". Apparently it's a division of Medicare that covers scripts for people who are on SSDI & Medicare, but who are still eligible for Medicaid. I don't know if the Linet Program is in every state. I hope it is. __________________
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~Christina Legendary Wise Elder Community Liaison Member Since Jul 2011 Location: Tennessee Posts: 22,450 (SuperPoster!) 12 12.7k hugs given	Sep 10, 2020 at 05:30 PM #122 My State didn't expand Medicaid here. So even tho our income from SSDI is low, and we have no children under 18 we do not qualify for anything else. Hope you get what ever you qualify for, Anything helps __________________ Helping others gets me out of my own head ~
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Beth catches the flowers Member Since Jul 2019 Location: Downtown Vibes, California Posts: 15,701 (SuperPoster!) 4 23.7k hugs given	Sep 15, 2020 at 07:52 PM #125 Lamictal increased to 400mg because I am seriously concerned about the impending shortening of the days. Dr. pdoc was in a crabby mood today, so she said the ZzzQuil is okay to take. I don't think she was up for me being stubborn. __________________
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Fuzzybear Wisest Elder Ever Member Since Nov 2002 Location: Cave. Posts: 96,325 (SuperPoster!) 21 81.2k hugs given	Sep 16, 2020 at 04:36 PM #126 Hugs and love I love the quote by Camus __________________
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Beth catches the flowers Member Since Jul 2019 Location: Downtown Vibes, California Posts: 15,701 (SuperPoster!) 4 23.7k hugs given	Sep 19, 2020 at 05:33 PM #129 4th day of Lamictal increase. I keep falling asleep. Have a small rash (the usual Lamictal increase rash) on my upper chest. I'm not sure how I feel, except exhausted. __________________
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~Christina Legendary Wise Elder Community Liaison Member Since Jul 2011 Location: Tennessee Posts: 22,450 (SuperPoster!) 12 12.7k hugs given	Sep 19, 2020 at 09:45 PM #130 (((((((((((((((((((( Beth ))))))))))))))))))))))))) __________________ Helping others gets me out of my own head ~
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Beth catches the flowers Member Since Jul 2019 Location: Downtown Vibes, California Posts: 15,701 (SuperPoster!) 4 23.7k hugs given	Sep 20, 2020 at 06:17 AM #131 (mistake) __________________
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Beth catches the flowers Member Since Jul 2019 Location: Downtown Vibes, California Posts: 15,701 (SuperPoster!) 4 23.7k hugs given	Sep 25, 2020 at 01:44 PM #132 Dr. W. raised the Amantadine dose to 200mg/day. Suggested I split Lamictal & Amantadine to AM/PM to try to control the tremor. It has already improved, after just 2 doses. __________________
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~Christina Legendary Wise Elder Community Liaison Member Since Jul 2011 Location: Tennessee Posts: 22,450 (SuperPoster!) 12 12.7k hugs given	Sep 26, 2020 at 03:21 PM #133 Great news Beth __________________ Helping others gets me out of my own head ~
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Beth catches the flowers Member Since Jul 2019 Location: Downtown Vibes, California Posts: 15,701 (SuperPoster!) 4 23.7k hugs given	Sep 26, 2020 at 05:14 PM #134 Forget taking Lamictal in the AM. Spent the day yesterday asleep while awake. So back to PM Lamictal. __________________
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Beth catches the flowers Member Since Jul 2019 Location: Downtown Vibes, California Posts: 15,701 (SuperPoster!) 4 23.7k hugs given	Sep 28, 2020 at 06:06 PM #135 Dropped Trilafon dose from 16mg down to 12mg. with the goal of stopping it - if I don't experience a higher level of anxiety than I'm already feeling, which is too high. (Side-effect, gi upset.) __________________
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Fuzzybear Wisest Elder Ever Member Since Nov 2002 Location: Cave. Posts: 96,325 (SuperPoster!) 21 81.2k hugs given	Oct 16, 2020 at 08:09 PM #139 BethRags __________________
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