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Default Oct 18, 2020 at 05:17 PM
  #141
Meds decreased as prescribed. No more Seroquel for sleep.

Upper body shaking is still happening, but it's decreased. Back of neck pain/rigidity is gone. Slept a lot, but also had to get up several times to pee. The perphenazine might cause frequent peeing.

Still tired.

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Default Oct 20, 2020 at 04:05 AM
  #142
350mg Lamictal
18mg perphenazine (Trilafon)
2mg of cogentin

I'm feeling substantially better. The shaking of my upper body has not entirely disappeared, but it is improved. My legs aren't quite as unsteady.


I'm not taking Seroquel for sleep. For me, it has been such a damaging med. Of course, I sleep for just a few hours, then awaken. But it's okay, better some insomnia than some Seroquel.

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Default Oct 23, 2020 at 09:13 PM
  #143
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Default Oct 25, 2020 at 06:58 AM
  #144
The upper body shaking is much improved. I don't know if the improvement is due to the decrease in Lamictal and perphenazine, or if the Cogentin is calming the shaking. Or maybe both.

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Default Oct 29, 2020 at 05:08 PM
  #145
Same as above re. upper body tremors. The Cogentin is probably helping.


I've been sleeping much of the day for weeks. I literally cannot keep my head up. I finally decided that falling asleep while folding laundry (or any activity) is unacceptable. So I switched my perphenazine from an A.M. dose of 6mg/ P.M. dose of 12mg to a morning dose of 2mg., bedtime dose of 16mg. I'm slightly sleepy today, but not nearly as much as I have been.

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Default Nov 06, 2020 at 07:19 PM
  #146
Keeping perphenazine at bedtime and definitely don't keep falling asleep all day. I tried taking 2mg this morning (pdoc suggested it to reduce daytime anxiety). Sure enough, I had to sleep for 2 hours. So bedtime it remains.

The rest of my meds are status quo and at this time I feel pretty stable. A little bit of depression that I attribute to the time change. Pdoc wants me to use the light box. I'll try it.

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Default Nov 06, 2020 at 08:21 PM
  #147
BethRags, first of all, thank you for sharing. I've been on Lithium, Lamital, Adderall, and Seroquel for years. But, a slight adjustment can send me into oblivion. Too much Lilthium makes me break out in psoriasis, too much Lamital makes me groggy, too much Seroquel carves out my sinuses and keeps me awake all night. Too much Adderall makes me shake and quake, unable to do anything. I've got a good balance now, but...as you need it (I forget the term)...if I even add 25mg of Seroquel or 5mg or Adderall, I'm over the edge. I truly empathize for what you are experiencing. It has taken me over a decade to balance my meds properly.
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Default Nov 07, 2020 at 12:12 PM
  #148
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Originally Posted by wolftrap View Post
BethRags, first of all, thank you for sharing. I've been on Lithium, Lamital, Adderall, and Seroquel for years. But, a slight adjustment can send me into oblivion. Too much Lilthium makes me break out in psoriasis, too much Lamital makes me groggy, too much Seroquel carves out my sinuses and keeps me awake all night. Too much Adderall makes me shake and quake, unable to do anything. I've got a good balance now, but...as you need it (I forget the term)...if I even add 25mg of Seroquel or 5mg or Adderall, I'm over the edge. I truly empathize for what you are experiencing. It has taken me over a decade to balance my meds properly.

Yes. Finding the best meds, then finding the best med doses, is an enormous challenge. But so worth it when it happens!

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Default Nov 07, 2020 at 08:06 PM
  #149
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Default Nov 20, 2020 at 06:16 PM
  #150
350mg. Lamictal
2mg. Klonopin
16mg. Trilafon
200mg. Amantadine

Pristiq increased last night (from 75) to 100mg. due to depression.

Seroquel for sleep on some nights. ZzzQuil on some nights.

Haven't been taking Cogentin, haven't noticed any upper body shaking.

Angry, not so much depressed.

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Default Nov 22, 2020 at 04:07 PM
  #151
Sincerely promised M. I'd try the light box twice/day for a week and see how I feel. So I'm doing that.

I'm not sure about the 25mg Pristiq increase. I feel so on edge and have scary intrusive thoughts. Who knows whether the Pristiq increase has any effect, or not.

Could be the rough night, but I'm feeling that damned November edginess and fear. When this happens I feel like I want a massive dose of Haldol or Thorazine, stick me in a 1950's "mental hospital", let me roll up in a ball on a bed, and just let me sleep through until February, when the flowers come out.

I'm thinking I'll increase my Trilafon by 2 mgs.

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Default Nov 25, 2020 at 07:51 PM
  #152
After a really rough last night, there is a slight possibility that I feel 1/8" better today. I attribute any possible improvement to the Pristiq and (maybe) Trilafon increases. It's been a few days now, so maybe..... fingers and toes crossed xx

If I could just have a peaceful and pleasant Thanksgiving I won't mind being alone and watching movies.

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Default Nov 28, 2020 at 09:13 PM
  #153
Maintaining. Promised Dr. W. I'd take 25mgs of Seroquel before bed for a month or 2. I am sleeping well. Of course, I'd like to sleep for 20 hours a day. But better that feeling than the dreadful depression and fear.

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Default Nov 29, 2020 at 11:29 PM
  #154
As it always seems to be the 25mgs of Seroquel works for a few nights, then kinda craps out. Tonight I'll take 12.5mgs and ZzzQuil. Hopefully that'll reset the system.

*I remain in pursuit of decent sleep*

Since Thursday, I haven't been overwhelmed with the depression/fear beast. I believe the Pristiq increase is helping. Also, the Trilafon is taking the edge off of paranoia.

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Default Dec 05, 2020 at 04:12 PM
  #155
Severe depression is staying away, so far. Later afternoon and into the night there's a higher degree of depression and anxiety and, though manageable, sleep is very welcomed when it comes.

25mg. Seroquel for the past 2 nights. Slept well.

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Default Dec 15, 2020 at 08:52 PM
  #156
So-so. More depression that I want to live with.

Suddenly felt odd this evening...dizzy, ears buzzing, strange feeling in my brain (similar to "zaps"). I'm considering that the Klonopin reduction may be affecting me. I certainly hope not. (Cutting down to 1.5mg instead of 2mg on Sundays and Thursdays.) Ah, benzos.....

Been taking 25mg. Seroquel and ZzzQuil to sleep. *sigh*

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Default Dec 15, 2020 at 09:10 PM
  #157
I hope you start feeling better soon.

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Default Dec 16, 2020 at 12:06 PM
  #158
Quote:
Originally Posted by BethRags View Post
So-so. More depression that I want to live with.

Suddenly felt odd this evening...dizzy, ears buzzing, strange feeling in my brain (similar to "zaps"). I'm considering that the Klonopin reduction may be affecting me. I certainly hope not. (Cutting down to 1.5mg instead of 2mg on Sundays and Thursdays.) Ah, benzos.....

Been taking 25mg. Seroquel and ZzzQuil to sleep. *sigh*
Hope you feel better

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Default Dec 17, 2020 at 06:51 PM
  #159
Feel better Beth

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Default Dec 22, 2020 at 03:19 PM
  #160
Haven't been using the light box. I swear that thing is such a useless joke, at least for me. All it does is irritate my already dry as fu*k eyes.


The K-pin withdrawal is going...well? I've had 2 not pleasant times when I had brain zaps and an unsteady sensation, but I'm not necessarily attributing those to the benzo w/d. Although, I'm definitely not doing the w/d any faster than I am now. (1/2mg reduction Sunday p.m., 1/2 Thursday p.m.)

I've had such depression and mild mixed this fall, so much SI. I thought it over and decided to drop my Lamictal by 25mg. to hopefully bring in a bit of hypomania.


So I'm at 220mg. Interestingly - and rather disturbingly - after a few days of the reduction I stopped having SI. The thoughts just don't stick. Now I'm planning to drop down to the original 200mg. See how it goes. My irritability is somewhat higher, but I believe I need to use some therapy methods to deal with that.

I have some time to play around a bit, because my pdoc is out for 3 weeks.

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