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yellow_fleurs
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Default May 10, 2020 at 08:51 PM
  #41
I hope he's doing okay today, and not feeling any worse.
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Default May 11, 2020 at 09:29 AM
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I'm thinking about you and your husband and hope that you both start feeling much better soon.
 
 
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Default May 11, 2020 at 09:59 AM
  #43
I hope you had a non eventful day and that everything went smoothly.

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Default May 11, 2020 at 12:20 PM
  #44
~CONTINUED LOVE AND PRAYERS ~

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Default May 11, 2020 at 02:32 PM
  #45
I’m thinking of you and your husband

You’re both in my thoughts and prayers every day (more than every day)

((((((((((( ~Christina and hubby ))))))))))))

Much love always

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Default May 11, 2020 at 04:23 PM
  #46
Continued prayers for you and your husband.
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Default May 11, 2020 at 04:25 PM
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Thinking of and praying for you two
 
 
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Default May 11, 2020 at 07:38 PM
  #48
Thanks everyone

Saw the Doctor today.. Steve's not getting worse but not getting better. So another 10 days of Bactrium. and followup appt Monday.. There are a couple other antibiotics that can be tried if need be.. We are all working hard to keep him out of the Hospital his Vitals are still doing okay, Low oxygen level even on oxygen but that is what it is with COPD.

Thank you all for the support, Im truly white knuckling all of this.

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Default May 11, 2020 at 11:14 PM
  #49
Continuing best wishes & prayers for both of you!

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Default May 12, 2020 at 12:33 AM
  #50
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Originally Posted by ~Christina View Post
Thanks everyone

Saw the Doctor today.. Steve's not getting worse but not getting better. So another 10 days of Bactrium. and followup appt Monday.. There are a couple other antibiotics that can be tried if need be.. We are all working hard to keep him out of the Hospital his Vitals are still doing okay, Low oxygen level even on oxygen but that is what it is with COPD.

Thank you all for the support, Im truly white knuckling all of this.
Grateful it is not worse. Still praying for you guys. Hang in there!!!!

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Default May 12, 2020 at 09:03 AM
  #51
Lots and lots of and continuing thoughts for strength and healing.

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Default May 12, 2020 at 08:41 PM
  #52
Hey.. Just another day. Hes not worse infection wise, Vitals are all stable. He is exhausted.. Exhausted fighting this monster and we have no idea how he got it.

Thanks everyone

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Default May 13, 2020 at 08:30 AM
  #53
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Originally Posted by ~Christina View Post
Hey.. Just another day. Hes not worse infection wise, Vitals are all stable. He is exhausted.. Exhausted fighting this monster and we have no idea how he got it.

Thanks everyone
I did some googling and apparently you can catch this bacteria in tap water.

Quote:
S. maltophilia is a waterborne organism, and exposure to this bacterium can occur both in and outside the clinical setting. In the health care environment, S. maltophilia has been isolated from several sources, including suction system tubing of dental chair units (DCUs) (250), contaminated endoscopes (179), and tap water (297), all of which present possible patient exposure sources. S. maltophilia-contaminated central venous catheters and tap water faucets have been implicated in cutaneous and soft tissue infections in patients with neutropenia (297).
source: Stenotrophomonas maltophilia: an Emerging Global Opportunistic Pathogen

I'm obviously not a doctor, but I wonder if your husband has neutropenia? Apparently people with neutropenia oftentimes do NOT show any symptoms, other than increased risk for infections. That could possibly explain why you didn't catch it, but he did. If he is on certain meds, then those meds can trigger neutropenia. I think you should google his meds to see if they carry this risk. Possibly also check your water filters since it sounds like people on oxygen usually require water as part of the humidifier? If you really want, you can ask for a neutropenia blood test if there are other reasons for a blood test (e.g., if he has diabetes, cholesterol, etc. as well). You can test all those conditions at the same time, so you wouldn't be going out of your way to get it tested if you're also testing for diabetes, cholesterol, etc..

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You probably won't know that you have neutropenia. People often only find out when they've had blood tests for other reasons.
Source: Neutropenia (low neutrophil count) - Mayo Clinic
 
 
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Default May 13, 2020 at 01:35 PM
  #54
(((Hugs))) Christina! Sending my best thoughts for you and your husband. Hope he recovers soon! And hope for extra patience for the both of you. <3

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Default May 13, 2020 at 01:59 PM
  #55
Still thinking of you and hubby. *waves wand sending healing vibes hubby's way. *

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Default May 13, 2020 at 06:11 PM
  #56
Hey Blue ... Thanks so much!!! For taking time to look into this further.. Thank you Thank Thank you !!! Yes he has extensive blood work done to rule out neutropenia.. they are also running blood cultures.

We have a well over 300 ft deep, We filter our water, We have sent in a sample of our water for testing.. prior filter and after. We do not run Humidifyers, He hasnt used the water bottle on his Oxygen concentrater for a couple years as that can build up moisture in tubing, We change out his tubing every 2 weeks, But now we are week..

Our Doctor is also frustrated because this infection doesnt want to budge. Im sure next appt on Monday we will be switching to another antibiotic.. We have 2 more oral antibiotics that we can try. The whole goal is to keep him out of the hospital at all costs, because if he catches something on top of this, he wont make it..

Thanks everyone for support..

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Last edited by ~Christina; May 13, 2020 at 06:27 PM..
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Default May 13, 2020 at 10:02 PM
  #57
I hope they find an antibiotic that helps, quickly. Thinking of you both.
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Default May 14, 2020 at 12:48 AM
  #58
Still praying for you guys here...

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Default May 14, 2020 at 02:07 AM
  #59
Continued prayers for you and your husband.
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Default May 14, 2020 at 02:16 PM
  #60
Much love and continued prayers for you and your husband

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