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Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12 12.7k hugs
given 
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May 06, 2020 at 08:57 PM
#1
I want to ask that the Moderators please not move this thread as this forum is my home on PC and I need support of friends.. Thank you.
My husband has been ill almost 3 weeks now we tried an antibiotic and it wasnt helping, So chest xray, labs and sputum culture, started a new antibiotic while we waited on culture to grow out.. Well 3 days later another antibiotic based off what the culture grew out... He has Stenotrophomonas ( Pseudomonas) Maltophillia an aerobic Gram-negative bacillus. No idea how he caught this.. Its mainly something you catch in the hospital by way of irrigation solutions, IV fluids, medical implants or Aquatic enviroments ... Which he has had none of these since last August while in the hospital. This is not something that just lingers in the body and pops up months later. I ran by the Oxygen company we use and picked up doubles of Oxygen tubing and nebulzing cups and tubes. They will be cleaned daily and changed out.. He is now on Oxygen fulltime not just at night as his oxygen level is far to low. He is beyond exhausted. Hes awake for me to feed him, Make sure he takes his meds, Nebulizes and I wake him every 2 hours to keep him pushing fluids at a minimum of at least a gallon a day. Vital signs every 4 hours around the clock. We see our Doctor again on Monday unless he spikes a temp or his breathing gets worse while using oxygen 24/7 ... This is a nightmare. __________________ Helping others gets me out of my own head ~ |
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 *Beth*, Anonymous41462, Anonymous46341, BadNews4321, beauflow, BeyondtheRainbow, Bipolarchic14, BipolaRNurse, bizi, Blue_Bird, bpcyclist, bshaffer836, divine1966, fern46, Fuzzybear, giddykitty, Guiness187055, Innerzone, luvyrself, MickeyCheeky, Mopey, Nammu, Polibeth, Rick7892, stahrgeyzer, Sunflower123, TishaBuv, Travelinglady, unaluna, unicornlady, Uykulu, VerMOZZica, Wander, WastingAsparagus, Wild Coyote, wildflowerchild25, wiretwister, WovenGalaxy, xRavenx, zapatoes
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 *Beth*, BipolaRNurse, bpcyclist, MickeyCheeky, Nammu, Rick7892, Wild Coyote
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,226
(SuperPoster!)
9 9,383 hugs
given
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May 06, 2020 at 08:59 PM
#2
prayers for both of you
__________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1700 mg & 100-2 PRN,. 1.5 mg clonazepam., 50 mg Seroquel |
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| Anonymous46341, Rick7892, Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Guest
Posts: n/a
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May 06, 2020 at 09:05 PM
#3
I am very sorry to hear that, Christina.
 I hope your husband gets better soon. His situation sounds immensely stressful on the both of you. For what it's worth, I think you've been doing an excellent job of hanging in there for the past 3 weeks, especially given your own stressors brought about by chronic pain flare ups and COVID-19. You're very caring and selfless, and your husband and family are very lucky to have you and your supportive care. Best wishes. 
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| Anonymous41462, Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 71,285
(SuperPoster!)
13 53.6k hugs
given
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May 06, 2020 at 09:08 PM
#4
:
 :hug oh Christina!
__________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
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| Anonymous41462, Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Guest
Posts: n/a
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May 06, 2020 at 09:09 PM
#5
Christina, that sounds so horrible! Sending positive thoughts and strong wishes of healing to your husband. Sending hugs to you to stay strong during this great challenge, as well. You are clearly a wonderful wife (and nurse) who loves your husband very much. He is lucky to have you! If at all possible, please find some little time for you to relax during this stress. We care very much about you here and know that your husband wants you well, as well.
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| Wild Coyote, ~Christina
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Rick7892, Wild Coyote, ~Christina
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Legendary
Member Since Apr 2012
Location: Earth
Posts: 14,903
(SuperPoster!)
11 5,429 hugs
given
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May 06, 2020 at 09:13 PM
#6
I'm so sorry.
__________________ Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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| Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 16,468
(SuperPoster!)
16 2,545 hugs
given
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May 06, 2020 at 09:15 PM
#7
big hugs!
__________________ Wellbutrin XL 300 mg Caplyta 42 mg Ingrezza 80 mg Ativan .5 mg 2x/day Propranolol 20 mg 2x/day Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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| Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12 12.7k hugs
given
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May 06, 2020 at 09:32 PM
#8
Thanks Everyone for the support and kind words, they truly mean alot.. He just has to be okay and get better, He HAS too...
__________________ Helping others gets me out of my own head ~ |
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| *Beth*, Anonymous46341, Mopey, Nammu, stahrgeyzer, unaluna, Wild Coyote
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Wild Coyote
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Guest
Posts: n/a
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May 06, 2020 at 09:33 PM
#9
Thoughts and prayers. It sounds really stressful.
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| Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Legendary Wise Elder
Member Since Sep 2010
Location: North Carolina
Posts: 47,983
(SuperPoster!)
13 22.9k hugs
given
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May 06, 2020 at 09:34 PM
#10
Oh, my. I'm so sorry. I will certainly pray--and wish you both well.
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| Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,196
19 2,739 hugs
given
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May 06, 2020 at 09:42 PM
#11
Like I said earlier I wish I could just hug
You!!!!!! I love you and I’m praying for y’all! __________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin |
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| Fuzzybear, Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Wisest Elder Ever
Member Since Nov 2002
Location: Cave.
Posts: 96,325
(SuperPoster!)
21 81.2k hugs
given
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May 06, 2020 at 09:44 PM
#12
Prayers for both of you
 
__________________ 
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| Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Poohbah
Member Since Jun 2014
Location: Earth
Posts: 1,193
9 2,235 hugs
given
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May 06, 2020 at 09:59 PM
#13
I'm sorry that your husband is so ill. You are doing a phenomenal job taking care of him these past few weeks. Major ((HUGS))
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| Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Wise Elder
Member Since Nov 2009
Location: NW US
Posts: 9,383
14 31.3k hugs
given
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May 06, 2020 at 10:34 PM
#14
Oh sweetie!!!! How horrible and stressful! And you are being an amazing trooper with all that is going on. You both will be in my thoughts. I fervently hope the situation improves. And soon!!
__________________ *********  Mr. Robot Makes me sick to the heart, Oh I feel so tired. And the way the rain comes down hard, that's how I feel inside. --The Cure
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| Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Magnate
Member Since Aug 2017
Location: earth
Posts: 2,063
6 1,598 hugs
given
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May 06, 2020 at 10:44 PM
#15
My prayers and thoughts are with you both! Hopefully, he will recover soon. Please don't forget to take care of yourself too!!
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| Wild Coyote, ~Christina
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luvyrself, Wild Coyote, ~Christina
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
Posts: 15,701
(SuperPoster!)
4 23.7k hugs
given
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May 07, 2020 at 09:26 AM
#17
You both must feel exhausted. I am sending you loving vibes and high hopes for your husband's recovery. Please Christina, take care of yourself, too
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| Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Poohbah
Member Since May 2018
Location: Toronto, Canada
Posts: 1,204
5 79 hugs
given
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May 07, 2020 at 10:02 AM
#18
I'm hoping the best for you and your husband.
__________________ * Dx: Unspecified Bipolar and Related Disorder * Rx: Remeron, Prozac, Klonopin, Vraylar My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016. |
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| Fuzzybear, Wild Coyote, ~Christina
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Wild Coyote, ~Christina
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Legendary
Community Liaison
Member Since Jun 2016
Location: USA
Posts: 12,735
(SuperPoster!)
7 70.9k hugs
given
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May 07, 2020 at 12:35 PM
#19
Hugs
and LOVE  and Prayers. I am here for you anytime and in any way in which I can help. It's beyond time for you AND Steve get a long well-deserved break. Love and healing for both of you! Truly, there are no words, yet I am trying to find some which might approximate my thoughts and feelings.
__________________ May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.
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| Fuzzybear, ~Christina
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~Christina
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Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 71,285
(SuperPoster!)
13 53.6k hugs
given
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May 07, 2020 at 02:30 PM
#20
Sending sparklyness and purple healing vibes to both of you.
__________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
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| Fuzzybear, ~Christina
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~Christina
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