Going Off Seroquel/Many Health Issues

Moose72 · Jul 04, 2020 at 12:32 AM

I stopped my Seroquel 35 days ago. I feel fine, though I do have trouble sleeping without melatonin. I need to keep up my exercise because that help one sleep well. I have pre-diabetes and I'm afraid it may turn into diabetes itself. I dont know what I'd do with yet another diagnosis/complaint medically. Seeing that list on Monday at my scope appointment really got to me. Ive lost 40 pounds and I intend to lose another 40 to get to my target weight. That will help with several of the medical issues but especially the pre-diabetes and liver issues.

My pdoc is going to call me on the morning of the 15th. I guess she will tell me to go back on seroquel but thats easy for her to say- literally- its another to combat all these medical issues. I also have hypo thyroid from lithium. I was taken off that but not until I had a very high lithium level and was in the hospital. Boy did my pdoc ever appologize profusely for not checking my lithium level the last time she'd seen me! I hope she doesnt just order me back on Seroquel. That would upset me.

Jul 04, 2020 at 08:20 AM

Quote:

Originally Posted by Moose72

I stopped my Seroquel 35 days ago. I feel fine, though I do have trouble sleeping without melatonin. I need to keep up my exercise because that help one sleep well. I have pre-diabetes and I'm afraid it may turn into diabetes itself. I dont know what I'd do with yet another diagnosis/complaint medically. Seeing that list on Monday at my scope appointment really got to me. Ive lost 40 pounds and I intend to lose another 40 to get to my target weight. That will help with several of the medical issues but especially the pre-diabetes and liver issues.

My pdoc is going to call me on the morning of the 15th. I guess she will tell me to go back on seroquel but thats easy for her to say- literally- its another to combat all these medical issues. I also have hypo thyroid from lithium. I was taken off that but not until I had a very high lithium level and was in the hospital. Boy did my pdoc ever appologize profusely for not checking my lithium level the last time she'd seen me! I hope she doesnt just order me back on Seroquel. That would upset me.

HI Moose. Why must your pdoc order you back on Seroquel if you are doing fine? I assume you are taking other bipolar medications? You didn't quit everything, did you?

Forty pound loses are amazing. I am sure that has made some difference for your health. Certainly more weight off will. I was once pre-diabetic about 9 years ago but haven't since then after losing some weight and maintaining most of the loss. I also developed hypothyroidism from past Lithium use. That's never going away for me. It may have even been somewhat genetic, too, as a couple women in my family developed it even without Lithium. I can't speak for others, but as long as I take my Synthroid, it's really no big deal to me. The pill is even tiny and cheap and gives me zero side effects.

HALLIEBETH87 · Jul 04, 2020 at 11:29 AM

I too got hypothyroidism from
Lithium!

And I’ve gained a ton of weight

*Beth* · Jul 04, 2020 at 09:14 PM

I was on Seroquel for 7 years with the result that I gained well over 100lbs. and have pre-diabetes, high blood pressure, and high cholesterol. I know that Seroquel helps many people; for me, it was poison.

In my experience, improving my health while on Seroquel was impossible. I wish I had been more assertive with my pdocs years ago, regarding Seroquel.

Moose, I strongly support you telling your pdoc No on the Seroquel. Remind her of the very serious health issues Seroquel has caused for you.

~Christina · Jul 05, 2020 at 04:44 AM

If you feeling stable then why go back on it???You've lost weight, I'm sure your Liver is much happier. " Some" Pdocs wear blinders and they hyper focus on just keeping there patients in a okay place psych wise but they need to look at the bigger picture.

There are other meds that can be used on a PRN basis that are more weight friendly if you were to need something.

Sometimes we just have to verbally remind our Pdocs that meds that cause weight gain will effect our liver, kidneys... Lithium can trash a Thyroid etc etc etc and that needs to be kept in mind.

Be your own best advocate

Fuzzybear · Jul 05, 2020 at 02:03 PM

I support your wish to stop the seroquel. I hope the pdoc listens. It is not her body......

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Going Off Seroquel/Many Health Issues

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HALLIEBETH87 Legendary Member Since Oct 2004 Location: usa Posts: 11,196 19 2,740 hugs given	Jul 04, 2020 at 11:29 AM #3 I too got hypothyroidism from Lithium! And I’ve gained a ton of weight __________________ Bipolar 1 w/psychotic features or schizoaffective bipolar type PTSD generalized anxiety OCD celexa, prazosin, Lybalvi and prn zyprexa and klonopin
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Fuzzybear Wisest Elder Ever Member Since Nov 2002 Location: Cave. Posts: 96,325 (SuperPoster!) 21 81.2k hugs given	Jul 05, 2020 at 02:03 PM #6 I support your wish to stop the seroquel. I hope the pdoc listens. It is not her body...... __________________
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