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Old 11-21-2020, 08:50 PM   #11
NaoSky
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Default Re: How do you accept it?

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Originally Posted by BethRags View Post
I was diagnosed some decades ago and have been on meds since I was in my 20's (I'm now 57). I still have times of great doubt, panic, almost, thinking that I don't have a disorder at all and have been taking meds for absolutely no reason.

But then I stop and remember the times when I wasn't properly medicated and the reality, the truth, hits me all over again: This is real.

I have no spectacular answers. I have learned (finally) to take life day by day. Some days I'm stronger, some days I'm not at all. I keep a routine that suits my mental and physical health.

Something that has been quite helpful for me is watching films or documentaries about bipolar disorder. From those I obtain information and understand that I am not alone in this, not by a long shot.

This forum is a tremendous support. Therapy is essential, as is being consistent with meds. For me, support groups have always been helpful (before covid).

I think that anyone diagnosed with BD is, to one degree or another, in a slight state of shock. It's a very strange feeling, I think, to be diagnosed with a disorder that is so much a part of the essence of your Self.
Right... thatís probably the hard part because it is a part of who we are... itís part of our personality... if only we could live in the hypomania long term... itís like a punishment for being happy... I was doing so well and accomplishing so much. I thought I was just happy... I had also been on a diet, was doing keto so I thought keto was giving me energy... it was a slap in the face when I went down. I still think itís not fair. My mom had 6 kids and I hope my other siblings donít get this. I also pray my 2 kids donít get it. I donít understand how people can accept this and be ok with it. I have a cousin who has learned to, but itís taken him years.

I might try watching some films and documentaries. I know I saw modern love series and one of them was a woman who had bipolar... it was extreme. I watched it over the summer and thought there was no way I had bipolar.

Thank you for your response... I am taking this one day at a time.
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Old 11-21-2020, 09:50 PM   #12
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Default Re: How do you accept it?

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@NSky-
Thank you for this raw & real post.

The best advice Iíve gotten from a fellow bipolar friend:
F*cking live it up on the stable days. F*cking make the most of life on those days. Over the past few years, the stable days have been rare for me... but I feel like I may finally be finding my way?

My other favorite advice: in the lows, take care of yourself. Be gentle to yourself. Treat yourself like itís the flu. Donít beat yourself up.

Ok one more favorite gem: connect with others who understand. Check in here often. We have some incredible supportive amazing people here <3
Sending you wishes for inner peace <3

Beautiful post, daladico.
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Old 11-21-2020, 09:59 PM   #13
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Nao Sky, check out the thread about film suggestions. Look at Soupe du jour's post in which she gives links to a documentary. I watched it last night and found it fascinating.

Do keep in mind that the people in it all seem to have BD1 and some of them, the entertainers, are (I think) just a bit hyperbolic - or perhaps just intense. Nevertheless, it's an excellent doc.

Nevermind, here are the links:
Part 1 Stephen Fry: The secret Life of a Manic Depressive (part 1) - YouTube

Part 2 Stephen Fry - The Secret Life Of The Manic Depressive Part 2 - YouTube
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Old 11-21-2020, 10:23 PM   #14
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He got an apartment and now that Iím trying to make it work with him, he wonít move back to the house. Everything changed. He puts himself first now and wants to live in an apartment long term. Itís so complicated.
Can you guys go to marriage counseling? My husband has a therapist and I have a therapist that work together to keep us a strong family unit.
24 years is a long time and you not accepting it all the way doesnít make me feel any better but it helps me know that this is just a freaking hard illness to deal with. My Dx road have been hard very few drs agree with how to diagnose me. Some drs want me heavily medicated others think it's more personality. A lot have no idea what to do. I'm now on the highest AP and AD I've been on ever. 2.5 meds vs. 5 meds. If the Dx was consistent over the years I think I'd have an easier time excepting it. I still ask my treatment team if they are sure and they say they are. If you have to ask your dr. or therapist. Do you have a therapist?
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Old 11-22-2020, 12:38 AM   #15
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Hey Naosky,

Awww thank you Scotland is gorgeous. The scenery is just stunning. My city is full of history dating back to like 1300's if not longer. Apparently the legends say William Wallace came to a private school in my city. We will never know lol. I love Loch Lomond though that's stunning was meant to be there st the start of November but the joys of Covid-19 huh.

I have been suicudal for years but always manage to save myself. I have a support team from the local Community Mental Health Team in this team I have a Psychiatrist, Community Psychiatric Nurse (CPN), Community Support Worker (who is discharging me i think on Friday) and a Peer Support Worker. They all work in the same building and should communicate but don't. Don't even read each other's notes. My Psychiatrist did not know I have been med free since April 2020. Everyone else did who work with me. I have waited over a month for a Depot Injection for Aririprazole to be approved by a board through the local health board NHS. As its being used as both an Mood Stabliser and an Anti-Psychotic. I got the injection on 19th November. So we'll see if this makes a difference in my mood. Being suicidal is really rubbish. I do pay privately to speak to a Therapist. She too knows everything as well I'm honest (eventually).

I'm what they call med non-compliant. But I'm now willing to try anything. The longest I manage on meds is roughly 4-6 months then I'm off them. This time 7 months is the longest I have been off them. I currently have to take 10mg Aririprazole daily for 1 month then I will be oral free and just receiving the depot. I think the depot was 400mg. My CPN made it up and stuck me How do you accept it? I was really anxious but I did it.

I would say all your responders are right. Its a journey we are all on and a different journey for each and every single one of us. Even if we have the same diagnosis Bipolar 1 you and I would be massively different.... environmental factors, life factors, genetics, predispositions, health care we receive, experiences of mental health you have had, witnessed and heard of etc etc list is endless

Hope your OK though, and your wee girl is keeping you busy How do you accept it? just remember there are people who you can talk to on here ok How do you accept it?
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Old 11-22-2020, 11:53 AM   #16
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Default Re: How do you accept it?

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Thank you for you for reading and your response!! Iím really hoping for a better day soon so I can live it up, for sure! Iíve been depressed since July and have actually been teaching high school. I had zero belief that I could teach, but somehow I have managed for the last 4 months. It gives me some hope that I can keep my job with this disorder. Iím not 100% hopeful, but so far Iíve made it. I just donít know what else to do with my life. Iíve been a teacher for 10 years. I never wanted to do anything else. Iím not sure if my marriage will last and my husband told me that he cannot support me if I lose my job... so I fight like hell to keep going despite how I feel. I keep thinking the routine will help me get back to normal, but I really donít know what normal will feel like.

So even with all of the medication you take, the stable days arenít there everyday? I thought the medication is supposed to help us but I feel like so many take so much and still donít feel normal. I only take lithium and donít want to add anything else. I tried a few things and nothing helped. I know it can take years to figure out the cocktail, but I have so much fear about adding anything else. I feel better knowing I just take one. I also stopped the sleep meds because they stopped working. I sleep the same amount with or without them.

Thank you, Iím trying to be patient with myself. I was mad for awhile because I canít sleep... but I had to learn to adjust and accept only getting 3-4 hours. I think I may have gotten 5 this week once or twice.

Yes I will check in here often. It has helped knowing Iím not alone in this..... maybe we will live long enough for them to come up with an actual cure!!

Oh man, it can be freaking tough keeping a job through all the lows [and bad highs]. Iím super lucky that I have an amazing boss who knows what I go through and is super supportive. Looking back though, I still have no idea how I managed to keep my job through the past three years. There were many days I thought I would have to resign due to my brain. Shear grit and determination haha.

Just in the past month, I finally gave in and applied for intermittent FMLA and it was approved. Now I wish I had applied sooner. I hope to not use it, but it will make me feel so much less guilty when I have to call off on the worst of the days. Maybe something you could look into?

And yes, ďnormalĒ is an interesting concept haha. My entire sense of normal has changed. My new normal however, is much more raw and deep and more covered in gratitude than it ever was before. Iíve grown to be crazy grateful for the days that resemble ďnormal.Ē

Meds: man, for me itís been a journey. Yes- most days over the past 3 years I have not felt stable, despite taking all my meds. Tweaking dose here, changing med there with pdoc every 1-3 months. Thankfully I have an amazing psychiatrist. My biggest recommendation: speak up for your needs. If you arenít feeling right, tell them. If a med isnít working right, tell them. You are your biggest advocate.

I used to feel like you and only want one med (if any). I now know that isnít feasible for me personally. Everyone is different though. (I do know people who are pretty stable on just one med.) Iím sensitive to meds and still have a big fear of med changes. But Iím so grateful I gave in and worked with my pdoc to do a total med change this last time, cuz now it is the best Iíve felt in years. [And my job is SO much easier as a result!!] There are sooooo many different med options and combinations and each works slightly differently for each individual... hoping you find the meds that work the best for you my friend <3

Sending you lots of love and good thoughts
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Old 11-22-2020, 12:07 PM   #17
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Default Re: How do you accept it?

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Thatís so amazing that your marriage got stronger and your husband supports you!! I wish I could say that happened with me. During my mania I kicked my husband out of the house. He got an apartment and now that Iím trying to make it work with him, he wonít move back to the house. Everything changed. He puts himself first now and wants to live in an apartment long term. Itís so complicated. I stay with him during the week, but I still have my house. Iím torn between selling it or staying separated and keeping it. The main reason I want to stay with him is because I canít stand thinking I wonít have my little girl every day. Sheís only 2 and the main reason I wake up each day and do anything. She keeps me moving when I donít want to.

24 years is a long time and you not accepting it all the way doesnít make me feel any better but it helps me know that this is just a freaking hard illness to deal with. It takes a lot of support for sure.

It sounds like you have an amazing son too!! I also have a 21 year old daughter. Iím hoping I can give my 2 year old as much love and attention that I was able to give my 21 year old. I feel like Iíve failed her coming down with this, but it brings me hope that I can still be a good mom to her. Sheís my world right now.

I wish I could keep things more simple, maybe one day. For now I am still living my life like I did before my diagnosis because I have to, not because I want to. I keep hoping one day I will feel normal....

My husband and I have been married for over 30 years. About 12 years ago, between my BD and his OCD/hoarding we decided to live separately. He lives in the house he and his sister inherited from his parents (he lives there alone). I live in my nice, tidy little apartment with my cats.

Husband and I live exactly 1 mile apart. Yes, it is far from ideal. But we remain best friends and our relationship works so well this way. It works for us and I think it's takes a burden off our (adult) children.

BUT, having a toddler puts a very different spin on things. I feel for you.
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And the wind did howl
and the wind did moan
La la la la la
La la la la lee
A little bird lit down on Henry Lee

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Old 11-22-2020, 12:31 PM   #18
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Default Re: How do you accept it?

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Originally Posted by BethRags View Post
[FONT=Arial][SIZE=2][B]I

I think that anyone diagnosed with BD is, to one degree or another, in a slight state of shock. It's a very strange feeling, I think, to be diagnosed with a disorder that is so much a part of the essence of your Self.
Love this Beth 💛💛💛
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Old 11-24-2020, 05:45 PM   #19
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I try to live as normally as possible. I try not to let my mental illness hinder me. I take my meds, i make goals, and i achieve them.
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Old 11-24-2020, 07:39 PM   #20
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Default Re: How do you accept it?

I have come to realize that because of and as a result of my illness that i experience guilt more than i should. The illness doesn't need to define the conversation. Hope this helps.
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