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Default Jul 15, 2017 at 10:19 AM
  #441
Kiya, it's so good to hear from you. I'm glad your EEG went well and I, too, hope you never need another one.
I'm so glad things seem to have come out normal. Great news!

Cake, I'm sorry you're so sick. Rats on not letting the cat out! I hope you feel better very soon.

I can't take a picture of the rash. I don't have a camera or a smart phone. As my Mom used to say, "Poor people have poor ways." Does this mean the rash is going to come and go?

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Default Jul 15, 2017 at 11:18 AM
  #442
Yes the rash can come and go

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Default Jul 15, 2017 at 01:35 PM
  #443

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Default Jul 15, 2017 at 05:58 PM
  #444
i think we have some of these! But they're not honey suckle.... Can't remember...

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Default Jul 15, 2017 at 06:03 PM
  #445
OW!!! Nerve pain all over. Admit it's hard to cope today... Discarding my thoughts of "quick and easy" coping.

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Default Jul 15, 2017 at 10:27 PM
  #446
Thank you for the info Gus. I used to eat the stamens of honeysuckle when I was a kid. They were sweeter than candy.

Kiya, I'm so sorry you're in such pain today. Be well, my friend and know you are loved.

I received a copy of the actual referral today. They told me about the mass in my throat. They did not tell me I have a mass in my lip and one within my oral cavity. The Dr. is not only an Entarologist, ( I didn't spell that right.), but she is also a plastic surgeon of the head and neck areas. That explains why there is no one here who can treat me. I feel sick, but there's nothing for it but to buck up and do the best I can.

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Default Jul 16, 2017 at 10:20 AM
  #447
Felt reasonably okay yesterday. Today is a whole nuther matter. Slept 11 hours and am still exhausted. Body aches, fibro fog, y'all know the drill. I had plans for things I wanted to accomplish today. Instead I'm going to spend the day rolled in a ball on the sofa.

Today is a struggle not to catastrophize.We are in a slow period at work right now. The pace will go through the roof when the kids return to school in a few weeks. I keep wondering how the h e l l I'm going to survive when they come back. Work like a demon all week and spend the weekend on the sofa is no way to live life. *sigh*

Gus, thanks for the info about the herbs. I will look into them.

Am afraid to address folks individually for fear of missing someone. Best wishes to all.
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Default Jul 16, 2017 at 12:29 PM
  #448
The Fibromyalgia check in thread #3

The Fibromyalgia check in thread #3

apparently there are several varieties of honey suckle. we used to pull the flower off and suck the nectar out of them, too. wild mountain honey~

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Default Jul 16, 2017 at 03:55 PM
  #449
It's 97 degrees here to day which is not good for me. Yesterday I was so sick I had to send my son to the store for some ginger ale which he had to walk to go get but he was happy to go because I gave him money for lunch.

McGee and Sunny our cats are domestic terrorists. I am convinced. McGee is only 9 lbs but boy can he cause havoc then he looks at you so sweet like "what did I do" really do you see the toilet paper all over the front room good god almighty and if that wasn't bad enough my daughter had trouble with her boyfriend last night. Why does everything have to happen at 1 am. I swear I am going to run far far away

This heat is making my stomach upset and I just want to sleep

Ok I am done now sorry for the rant

Has anyone heard from Christina ? I hope she is ok

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Default Jul 16, 2017 at 04:13 PM
  #450
Liz, I hope you feel better. Dealing with the new school year must be so overwhelming. I don't have solid advice for you, but know I care and I'm sending good thoughts your way.

Gus, we have pink honeysuckle as well as yellow honeysuckle here. Oh, it's so good!

Cake, I worry about you and the heat. I'm glad Mikey was able to get your ginger ale. It really helps. Your cats sound like fur ball terrorists. Thank heavens Belle hasn't been able to reach the tp! I hope you feel better very soon.

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Default Jul 17, 2017 at 10:21 AM
  #451
The Fibromyalgia check in thread #3

(did you know that hummers can't walk ? )

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Default Jul 18, 2017 at 05:26 PM
  #452
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Originally Posted by Gus1234U View Post
The Fibromyalgia check in thread #3

(did you know that hummers can't walk ? )
At all?!?!?! How do they get around when not flying?
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Default Jul 18, 2017 at 05:29 PM
  #453
I started wondering why I hurt so much when I'm at work (mostly sitting at a desk) and have less pain when home doing things around the farm. Started hurting today so I got up and went for a brisk walk. It seemed to help. I'm still exhausted, but not hurting so much. Am gonna try to make sure I go for a walk a couple of times a day if I'm stuck at my desk, see if it helps.
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Trig Jul 18, 2017 at 05:40 PM
  #454

sorry, I should have used a trigger icon on this. Came back and fixed that. Am going to put the post in a trigger box because of the nasty potty mouthed language I used. Sorry folks, inside this mild mannered lizard lives a foul mouthed redneck.
Possible trigger:

Last edited by lizardlady; Jul 18, 2017 at 06:45 PM.. Reason: added trigger icon and box
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Default Jul 18, 2017 at 07:23 PM
  #455
I am so sorry Liz. People get ideas in there heads that they are always right and everyone else is wrong. It's so wrong.

I got bad news today. My lupus forum that I have been on for 10 years is going away. The lupus foundation of America needs the money for something else. The moderator and I are friends and he gave me a heads up. They are going to have a nonprofit set something up but these people don't know lupus or a lot of them the moderators have a god complex.

I am hurt, scard and pretty pissed off

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Default Jul 18, 2017 at 11:56 PM
  #456
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Originally Posted by lizardlady View Post
At all?!?!?! How do they get around when not flying?
They can perch and rest or sleep.

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Default Jul 19, 2017 at 12:08 AM
  #457
Whew looks like it's been a hard week all around ((( group hug )))
Solar storms? I know we had some doozies.
So wish I could take a magic wand and make us all better. Hurts to watch my friends get worse 😿 I lubs y'all
Pain was so bad for me this week, it had me taking a hard look at the aspirin bottle... I'm stronger than that, I have to remind myself. I got through. It sucked and everything else (including or especially DBT) got put on hold.
One "good" moment was laying back in my papasan chair, watching the sky... trees.... clouds. Distancing myself from my pain for a little while.
Monday brought pain to the therapy table and I didn't realize how much emotion I was holding until it all came out. I've been with this t since January so she doesn't know that side of me- well, she does now.

I care so much about you all, my friends, I'm sorry you hurt so much.
Deep regards,
Kiya

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Default Jul 19, 2017 at 09:31 AM
  #458
The Fibromyalgia check in thread #3

(actually, hummers don't sleep either~! technically, they hibernate at night with their heart rate and breathing dropping to just above terminal, like bears... imagine how long a day and a night are to hummers~! )

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Default Jul 19, 2017 at 04:53 PM
  #459
McGee caught his first mouse. I am not sure who was prouder my hubby or McGee

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Default Jul 20, 2017 at 02:19 PM
  #460
Thank you for the pics and the info on hummers. What a magical life they lead!

Liz, I don't blame you for being angry! I'm glad you passed this info on up the ladder. It's good for them to know and good for you to keep your *bottom* covered. How are you doing now? Are you feeling better?

Kiya, I hope you feel better.

Cake, yay for McGhee! Belle is working on catching her first fly. She's too short to do it!

I have found a motel that will allow me to bring Belle. I am so relieved. My friend will watch her while I'm in with the Dr. We are missing the big football rush. That is also very good news.

I love you all!

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