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Default Oct 11, 2017 at 07:08 PM
  #761
I am on the last option for my psoriatic arthritis A Sulfa med ... Im on day 8 so nothing yet IF it doesnt work we will have to consider Biologics. I am very worried about it.

But ....... Since my pain is not all Fibro I am desperate for any kind of help , He said I still have Fibro and said he cant imagine the pain I suffer daily.
I dunno what to do I have to see how this med goes.

I hope all of are kind to yourselves

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Heart Oct 11, 2017 at 07:16 PM
  #762
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Originally Posted by ~Christina View Post
I am on the last option for my psoriatic arthritis A Sulfa med ... Im on day 8 so nothing yet IF it doesnt work we will have to consider Biologics. I am very worried about it.

But ....... Since my pain is not all Fibro I am desperate for any kind of help , He said I still have Fibro and said he cant imagine the pain I suffer daily.
I dunno what to do I have to see how this med goes.

I hope all of are kind to yourselves
I go through similar with FMS and Psoriatic Arthritis. I am on my second trial of methotrexate (MTX). It helps me some. If not this, I've tried everything except biologics too. Its disconcerting, I agree.

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Default Oct 12, 2017 at 10:09 AM
  #763
Morning all. I have an appointment at the hearing clinic this morning. This is my first time out in public in weeks. I'm nervous about all the stimulation but I really want to get this appointment over with because I've postponed it twice now, for different reasons. My wife is coming with me and we'll be taking a taxi because of her injury, so that's helpful. I just want it to be over so I can come back home.

I made a list yesterday of all the symptoms I experience with my as-yet-unnamed condition. It's quite lengthy. But it feels good to have it down because finally when I go in there I can discuss it with her and not have to worry about forgetting anything, minimizing anything, etc. Yesterday was a good day but I'm exhausted today. I barely slept last night after midnight. So I suspect today will be a slow one. Wishing you all an obstacle-free day, whatever that looks like for you.

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Default Oct 12, 2017 at 10:33 AM
  #764
Christina, sulfa takes a while to get into your system and start working. Give it some time.

Gus, the flowers are beautiful!

CW, I hope the methotrexate helps you and doesn't cause any bad side effects. My Drs do blood tests on me every time they see me. They always do liver and kidney panels.

Spondi, I hope your appointment goes great today. It's so good to write your symptoms and problems down so you can use it when you talk to the Dr. I always do that. If I don't I always forget something important. I hope your day goes great and that you come home and get some sleep.

Cake, I watched part of the national news just for you last night. It was about the fires. Are you close to them? Are you safe? Be careful, dear heart. I am worried about you.

I go back to the dentist today to see if they can do anything to fix my lower denture so I can wear it. I am losing hope for it. Also, there is almost a hole worn in the top one already. That can't be right. I've discovered in my research that people with Sjogrens have a lot of trouble wearing dentures. Who in the world would have known that before I started this journey?

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Default Oct 12, 2017 at 12:36 PM
  #765
The Fibromyalgia check in thread #3

sounds like today is a hard one for all of us~! yesterday i rode the little bus for the first time since June (my cousin had been here for the summer), and today i am dosing myself strongly. aw well, i was clever enough to put a roast in the oven before i went shopping, so i had a good dinner with no fuss.

the little critters are putting on weight fast, and the tiniest ones have followed the fatter ones to my house. i'm feeding them a substantial part of my budget, but my heart breaks to know they will starve to death this winter. there are no berries and people are bear-crazy, locking up their trash.


May every being have safety and the causes of safety~!

The Fibromyalgia check in thread #3

The Fibromyalgia check in thread #3

some of them have almost doubled in size in the 7 weeks i've been feeding them~!

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Heart Oct 12, 2017 at 12:52 PM
  #766
Jan, sorry you have been experiencing issues with your dentures. Bummer! I hope the dentist can help. I enjoy your sharing about Sjogrens; it's helpful to understand more about it. Yet, I am sorry you have cause to know.
It's clear you have a sweet, gentle, truly compassionate spirit. The world needs more people like you!

Cake, The fires are just horrible! I hope you are safe!

Spondi, I hope your appointment today is helpful. Waiting to hear how it went for you and your wife.

Child, Thinking of you, hoping the healing is going well. I hope you are comfortable.

~Christina, I hope your needs are being met. Much Love to you!

Gus, Thanks for sharing beauty with us! Awesome! I am sorry you are suffering today. I can also feel you compassion for all. Also awesome!

Liz and Kiya, I know you are often participating here. I hope all is well for each of you.

Oh, Jan, thanks for the well wishes. I get labs done every month now. Initially, I'd had labs every two weeks. I have a standing order there, so I can go in anytime.

The weather is changing and pain/stiffness are acting up. I am also on prednisone daily and morphine (for the past 15 years). I am hoping the MTX will work well enough that I can finally decrease the prednisone and the morphine. I am not in full swing with the MTX, as I have been increasing slowly and my joints are in a lot of pain today. I'll have another injection soon.

It's a beautiful day! If I can get the pain to quiet enough, DH and I are going to take a ride through another part of the mountains, in order to view the foliage. I hope I can make it today. If not, then another day soon.

Love All Around!

WC

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Default Oct 12, 2017 at 01:14 PM
  #767
Christina - good luck with your meds. I know it can be so frustrating. I hope you can find something that works for you. I will be thinking about you.

Gus, I love your critters! So sweet! And I get it. We're surrounded by animals here - bunnies, deer, raccoons, squirrels, all kinds of birds - and I worry about their wellbeing all the time.

Jan, I'm sorry to hear your dental stuff is still such a problem. I know this has been going on for a long time for you. I hope they can help you figure out what to do in a way that works for you.

WC - good luck with the MTX. It sounds like you live somewhere beautiful, though that could just be my bias since I've spent most of my life within easy reach of mountains and I know how wonderful they are. Hopefully you get to go out today and experience them firsthand.

Hope everyone else is doing okay today. Cake, I hope you're managing to stay safe from the fires, and not too heavily affected by the smoke and whatnot.

The appointment was good. Originally I just went because I needed forms for my university, to register with the disability resources centre. Even though i'm withdrawn I'm still going to file them. Picking them up is one of the things I did today. So I did the hearing test and he gave me a new pair of hearing aids to trial and they're not perfect but they're a heck of a lot better than the ones I already have. I wasn't expecting that at all. To be honest I've had so many things wrong for so long that I've given up hope that anything can help, and I'd kind of fallen in a rut. But anyway, I was going to get the aids, but the ministry of social assistance (the regulators of disability assistance in my province) doesn't cover any aids above $4000 (for the pair), and only every 3 years. So I was going to have to pay $5300 out of my own pocket and I was going to do it but then I withdrew from school and didn't think I'd have the money. Well it turns out that they're going to cover $4000 of it so I'll only have to pay the difference, AND I can get a yearlong payment plan! No interest or anything. So I'm getting new hearing aids next Friday! So excited.

Anyway, I came home and got a bunch of stuff done (not sure where I got the energy...) but now I'm exhausted and taking a break. I'm determined to get a load of dishes going before I settle down for my nap.

Wishing you all ease and light.

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Heart Oct 12, 2017 at 01:15 PM
  #768
Quote:
Originally Posted by Gus1234U View Post
The Fibromyalgia check in thread #3

sounds like today is a hard one for all of us~! yesterday i rode the little bus for the first time since June (my cousin had been here for the summer), and today i am dosing myself strongly. aw well, i was clever enough to put a roast in the oven before i went shopping, so i had a good dinner with no fuss.

the little critters are putting on weight fast, and the tiniest ones have followed the fatter ones to my house. i'm feeding them a substantial part of my budget, but my heart breaks to know they will starve to death this winter. there are no berries and people are bear-crazy, locking up their trash.


May every being have safety and the causes of safety~!

The Fibromyalgia check in thread #3

The Fibromyalgia check in thread #3

some of them have almost doubled in size in the 7 weeks i've been feeding them~!
Gus, thanks so much for sharing! I love wildlife! I used to feed the rabbits and had made pets of them. However, the population grew so, the neighbors were very unhappy. A neighbor baited them into compassionate traps and moved them. It's against state law to do this because even though compassionate traps are used, the majority of rabbits are too disoriented with the move and cannot be safe. The majority perish. Thus, the best thing I could do was to stop encouraging them from hanging out with me because doing so means they fall prey to my neighbor and may get moved and lose their lives. I deeply miss them. When we move again, we hope to be in an even more rural area so we can have more wildlife on the land.

ENJOY the wildlife!


WC

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Heart Oct 12, 2017 at 03:00 PM
  #769
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Originally Posted by spondiferous View Post
Christina - good luck with your meds. I know it can be so frustrating. I hope you can find something that works for you. I will be thinking about you.

Gus, I love your critters! So sweet! And I get it. We're surrounded by animals here - bunnies, deer, raccoons, squirrels, all kinds of birds - and I worry about their wellbeing all the time.

Jan, I'm sorry to hear your dental stuff is still such a problem. I know this has been going on for a long time for you. I hope they can help you figure out what to do in a way that works for you.

WC - good luck with the MTX. It sounds like you live somewhere beautiful, though that could just be my bias since I've spent most of my life within easy reach of mountains and I know how wonderful they are. Hopefully you get to go out today and experience them firsthand.

Hope everyone else is doing okay today. Cake, I hope you're managing to stay safe from the fires, and not too heavily affected by the smoke and whatnot.

The appointment was good. Originally I just went because I needed forms for my university, to register with the disability resources centre. Even though i'm withdrawn I'm still going to file them. Picking them up is one of the things I did today. So I did the hearing test and he gave me a new pair of hearing aids to trial and they're not perfect but they're a heck of a lot better than the ones I already have. I wasn't expecting that at all. To be honest I've had so many things wrong for so long that I've given up hope that anything can help, and I'd kind of fallen in a rut. But anyway, I was going to get the aids, but the ministry of social assistance (the regulators of disability assistance in my province) doesn't cover any aids above $4000 (for the pair), and only every 3 years. So I was going to have to pay $5300 out of my own pocket and I was going to do it but then I withdrew from school and didn't think I'd have the money. Well it turns out that they're going to cover $4000 of it so I'll only have to pay the difference, AND I can get a yearlong payment plan! No interest or anything. So I'm getting new hearing aids next Friday! So excited.

Anyway, I came home and got a bunch of stuff done (not sure where I got the energy...) but now I'm exhausted and taking a break. I'm determined to get a load of dishes going before I settle down for my nap.

Wishing you all ease and light.
GREAT NEWS!
I am glad it went so much in your favor! Wow!


WC

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Default Oct 12, 2017 at 05:51 PM
  #770
Okay so this might sound kind of weird, but those of you who nap, how do you do it? I've always despised napping because it makes me anxious but I need to be doing it now and it's hit or miss. It takes me upwards of an hour to actually fall asleep, and then I need to get at least 3 hours in order to feel like I've gotten what I've needed out of it. Which is fine - the duration, that is. I'm just wondering if anyone has any tips for how to more consistently fall asleep. I'm lost.

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Heart Oct 13, 2017 at 08:32 AM
  #771
It's another gorgeous Fall morning here! The sun is bright, the air is crisp and the colors are brilliant! This is my favorite time of the year!

Spondi, I am sorry I don't have an answer for a reliable napping strategy. I try to stay away from napping so I can sleep at night. I've been having a lot of insomnia lately, even with sleeping meds at bedtime. It's likely due to stress and meds changes, in my case.

I am going to try to take my mother on a foliage tour today. It will depend upon whether she is feeling up to going. Some of you know my mother lives with us. She was too lonely once my stepdad had passed on. My husband is often sent out on the road for his work. It's nice to have my mother around while he is away, too. It all works out well.

I hope everyone finds Peace, Comfort and Joy in their day today!
May we each feel surrounded by Love.


WC

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Default Oct 13, 2017 at 10:44 AM
  #772
WC - that's how I've always been too, I prefer to wait until nighttime to sleep. But for some reason even when I do end up sleeping late with napping (i.e. 5 pm) I'm no less tired at bedtime. So that's my first clue that I need it. But also no matter how tired I am at bedtime it doesn't guarantee me sleep anymore which is so frustrating because in the past, no matter how bad things got with mental or physical health, I always had a full night's sleep to look forward to. It was always a built-in reset button, really. Now, not so much. Although I slept okay last night.

I did yoga this morning. I used to do it all the time. I find it's one of the only forms of 'exercise' I can do that actually benefits my body in every way. It's been a long time since I've done it though and it felt weird. But I'm looking forward to making it a regular thing again. It helps everything: body, mind, etc.

Hope you all have a good day today.

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Default Oct 13, 2017 at 11:25 AM
  #773
WC, thank you for your very kind words. You touched my heart. You really did. I love autumn, too.
It's my very favorite time of year.Cherish every second you have with your Mom. I lost mine seven years ago the day before my birthday. Even though we didn't always get along, I miss her so much. I am so happy you can spend time with your Mom.

Spondi, I'll try to think of some good nap time hints. I nod off all the time!

I have another Dr's appt. today. I'll let you guys know what happens, but first I wanted to write and ask if anyone has heard anything from Cake. I watched the news and it's dire out there where she lives. I am worried about her. Have any of you heard from her at all?

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Default Oct 13, 2017 at 11:31 AM
  #774
The Fibromyalgia check in thread #3

last nite i tore a ligament in my right eye, diabetes, high blood pressure and heavy lifting... wouldn't you know, both eye docs take friday off in this hamlet~! couldn't they trade, one monday and one friday ? ?? anyway, it's better this morning, but i don't dare risk blindness, so off to the races Monday morningl. i couldn't get there on the little bus... so i'm riding with Paratransit, at 4x the cost.

wish me well!

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Default Oct 13, 2017 at 12:51 PM
  #775
Jan - good luck with your appointment today. Let us know how it goes. Hoping you get what you need out of it. I have not seen/heard from Cake since their last post here.

Gus - I did not know it was possible to tear a ligament in the eye. It sounds painful. Wishing you well, indeed.

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Default Oct 14, 2017 at 03:13 AM
  #776
The Fibromyalgia check in thread #3

thanks, Spondi,,, oddly, there is no pain, just leakage of fluids from inside the eye, which cause flashes of light and spots. apparently, from what i can tell, it's not a big tear, and can be lazared in the doc's office.

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Default Oct 14, 2017 at 03:22 AM
  #777
Gus - that's a relief! I hope you're able to get in and see them quickly. It is rather hard to believe they're both off on Fridays.

Well here it is, 1:15 am. I went to bed 4 hours ago and I've just been up this whole time. Argh this is so frustrating. My eyes are burning and I'm exhausted. Back pain is also keeping me up, as are the back spasms. So much fun.

Hope y'all have good days tomorrow.

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Default Oct 14, 2017 at 04:20 AM
  #778
I am here Jan been really sick and trying to wrap my head around what's going on here. We have friends and family who lost everything and it's not over yet.

I see the neurologist on Monday the pulmonary doctor on Tuesday and the rhemy on the 23rd.

Havent heard from Liz, Kiya, or Christina hope all is well with them

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Default Oct 14, 2017 at 04:51 AM
  #779
Oh Gus, you poor thing! Please take it easy this weekend and let your eyes rest. You must have been doing some awfully heavy lifting! Just rest.

Cake, it is so good to hear from you! I'm so sorry about your friends losing everything. That's just awful, but I am glad they are safe and have their lives.

Cake, take care of yourself. I know you. You'll over do things.
Take care, ok?

Spondi, I hope you are gently dreaming, resting oh so peacefully.

I love you all!!!! I will write more later.

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Default Oct 14, 2017 at 11:01 AM
  #780
Cake, I'm so happy to hear from you. I'm sorry it's still going on though. I have been thinking of you.

Jan, I hope your day went okay yesterday, your appointment and everything. If you posted about it and missed it I apologize. My brain's running on empty these days with lack of sleep.

Well I finally made it to bed around 2:45 and woke up at 7:30. The good news is that by the time I actually got there, I fell asleep straight away and didn't wake up at all until 7:30. So I got some solid sleep. I still feel like a bit of a trainwreck today - everything's too loud, too bright, etc - but I will be the first to acknowledge that it could really be much worse.

Wishing everyone ease and light and comfort today.

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