[Kiya]

(((((All)))))

Read a couple pages... very tired. Here’s a copy of what I wrote elsewhere:

It’s been a week, for sure.
New phone, phone issues keeping me offline, a neighbor attempted sui and failed (thankfully) but I’m the one who dealt with it. The next day I drove mom to an oncologist and we learned she likely has slow growing lymphoma-still waiting on the blood test to see what comes next. After that, my neighbor’s greyhound ran off after a coyote... led her to the pack and did a number on her feet and legs. She’s ok but limping. Owner is not ok-very shaken. The dog’s size and speed saved her.
One nice thing was being an extra in another show- much much shorter this time (4 hours) and beautiful weather to film outside. Got to eat at a food cart. The show is “Here, Now”, I think. Last show was “The Librarians” for next year, episode #408.
So!! Oh and my neuro problems... dx’ed with mild catatonia. They do still want me to see a new neuro, but earliest is Jan 2nd. I don’t know when it if the neuropsych eval will take place or the functional MRI.
Mild fibro flare from yesterday’s pt.

Cheering the good news, sitting with you with the nit good news, always in my heart and thoughts.

[spondiferous]

yay Jan!

[childofchaos831]

Hey y'all!

So I took a tramadol and some ibuprofen this morning (around 10am I think), and had a long day... driving and helping mom and an appt and stopping at the pharmacy. It's just past 8pm now, and I just took some more ibuprofen, but I didntf need to take anything in between. I'm holding off on the tramadol til closer to bed. I'm also not needing the back brace as much. I'll put it on if I'm walking or standing for more than 5 minutes, tho. I'm a little sore, but nothing horrible like it's been. Yay! Don't want to get too hopeful, cuz it got better before then got worse again. I don't have to go anywhere the next few days, unless I choose to, so that's good.

[cakeladie]

Awesome news Jan. Sunny our cat is still waking me up between 1-2 am we are working on the problem. I am tired. Physically and emotionally tired.

Monday and yesterday it was close to 90 tomorrow we are supposed to get rain I wish Mother Nature would make up her mind but we need the rain more fires broke out so we need the rain real bad.

I am taking my powerchair in next week to get looked at. Kinda like a tune up on it before our trip. My grandmother is a mess because of the death in the family. She said some people look at living to an old age has something wonderful. Nana will be 91 in January. But she said the down side is you watch all your family and friends die.

I think my daughter has a concussion and maybe a broken nose but she will not got to the doctor. I think she is afraid she will tell how it happened and the doctor will report it and and her boyfriend will take it out on her.

Everyone take care and Kiya it's good to hear from you

Hugs to all

if their are 2 things I know for sure today, they are these:

1. I didn't sleep at all yesterday

2. I am in a world of pain

it took me 48 minits today just to put clothes on

that, my friends, is pain.

you could hear my screams from across the road i'm sure

that's how bad it was

[La.Last.Lucy]

Originally Posted by shattered sanity

you could hear my screams from across the road i'm sure


that's how bad it was

In the middle of the night ...I too often wonder who can hear my silent screaming and flood of tears down my face like a dam that just broke. I guess no one... for the relief never comes and this magical nurse I have conjured in my head that perhaps a good soul called never shows up with the annoying yet comforting noise of the heart monitor the taste of the injection in my mouth and the presence of being in healing hands...,

[BlueEyedMama]

Since I can't sleep I thought that I'd post an update. My lupus has been flaring big time for the past two months causing complications that nearly killed me six weeks ago. This week has been a rough one with me fighting a high fever of 103.6 and having a grand mal seizure on Tuesday. To top things off I had a reaction to a med which caused me to be covered in hives and puke for two hours straight, thus the reason I am not sleeping. I am ready for the war lupus has declared on my body to be over. I am exhausted. I am in pain. I am barely holding on and fighting this battle.

I don't often post but I keep you all in my daily thoughts and prayers. I know that a lot of us are suffering and I pray for that to ease up.

*Leaves gentle hugs for all that may want or need one*

[spondiferous]

Wishing you all ease today, wherever and however you need it. Lots of people going through heavy stuff. I'm too scattered to respond to all of it individually but just know that I see you.

I actually walked up to campus and back yesterday, somewhere around 4-6 blocks which is a gargantuan feat for me. I go out again today for a doctor's appointment so I'm a lot more hopeful about it than I was this time last week. I have another appointment tomorrow as well.

[Wild Coyote]

Wow! Participation here is up! Sweet! The only problem is I cannot address each participant.

jan, Congrats on the great news!

Blue eyed mama, I am sorry for all you endure.
Cake, Please stay safe.
Kiya, Hi!
Child, You are doing a good job of being patient.
Gus, That was quite a walk! Thanks for the picture!
Shattered,
Spondi,
~Christina,

Went on a day trip with DH yesterday. Colors are muted a bit, yet still beautiful! I was exhausted. We ate out and I was ill through the night. Rested today.

Love to All!
WC

[January]

Belle has no idea she's having her surgery tomorrow, so she's just fine. I'm trying not to be a nervous wreck,
but you know how I am about her. I have to go buy special food for her tomorrow while she's in surgery because they have to remove two teeth her abuser broke. The Dr. said since Belle is so afraid of cages, I can hang around until she's ready to go home.
They are going to take her first. Please send good thoughts/prayers our way for tomorrow.

[Gus1234U]

i love fall, it draws me out~ of my bed, my house, my self-absorption and inactivity~~!

[spondiferous]

Jan - I am thinking of you and Belle. I will hold you in my prayers tonight and tomorrow.

Gus: I too love fall. To me it holds the promise of change. Plus the colours, the smells, and the air finally cooling after what are generally miserably hot summers...plus the rain, the rain, the rain...my favourite.

Wild:

to the rest of you would like them. Hoping your days have been, at the very least, manageable.

Well, it's official y'all: my doctor concurs with me that I do in fact have fibro. I don't know why I'm so happy about that. I guess because it's validation that all of this stuff I've been experiencing since I was about 18 (before that actually, but acutely since I was then) is not all in my head. I love my doctor, I absolutely love her to pieces and I am going to be really sad when neither my wife nor I are students here and we have to give her up. (She works out of the university clinic.)

Peaceful dreams, my friends and family.

[Kiya]

(((Mama)))
Hoping and praying for ease for you! This round sounds particularly nasty on you may you get some relief!!!
Hugs

[Kiya]

((((Cake))))) lots of thoughts, not coming together- you’ll have to mind read hugs.
And I pray your daughter will get the help she needs in time.

[Kiya]

Tests came back on my mom. Lymphoma, slow growing. Bone marrow biopsy Tuesday.

[Wild Coyote]

Originally Posted by January

Belle has no idea she's having her surgery tomorrow, so she's just fine. I'm trying not to be a nervous wreck,
but you know how I am about her. I have to go buy special food for her tomorrow while she's in surgery because they have to remove two teeth her abuser broke. The Dr. said since Belle is so afraid of cages, I can hang around until she's ready to go home.
They are going to take her first. Please send good thoughts/prayers our way for tomorrow.

(((((( Jan and Belle ))))))

Sending positive vibes.

[Wild Coyote]

Originally Posted by Gus1234U

i love fall, it draws me out~ of my bed, my house, my self-absorption and inactivity~~!

I love it, too!

[Wild Coyote]

Originally Posted by Kiya

Tests came back on my mom. Lymphoma, slow growing. Bone marrow biopsy Tuesday.

(((((( Kiya and Mom ))))))

Thinking of you and your mom.


WC

[Wild Coyote]

Originally Posted by spondiferous

Jan - I am thinking of you and Belle. I will hold you in my prayers tonight and tomorrow.

Gus: I too love fall. To me it holds the promise of change. Plus the colours, the smells, and the air finally cooling after what are generally miserably hot summers...plus the rain, the rain, the rain...my favourite.

Wild:

to the rest of you would like them. Hoping your days have been, at the very least, manageable.

Well, it's official y'all: my doctor concurs with me that I do in fact have fibro. I don't know why I'm so happy about that. I guess because it's validation that all of this stuff I've been experiencing since I was about 18 (before that actually, but acutely since I was then) is not all in my head. I love my doctor, I absolutely love her to pieces and I am going to be really sad when neither my wife nor I are students here and we have to give her up. (She works out of the university clinic.)

Peaceful dreams, my friends and family.

Validation!
It's healing to have such a great relationship with your doctor.

WC