[cakeladie]

Christina I have seen your thread in the bipolar section and my heart is breaking for you. You my friend have not had a good year and I haven't for that matter.

I am glad you are not taking the mexotrexate. I was on it for years and my labs were ok it's when it started getting hard to breath that a CT scan was ordered and the real damage was discovered and I am not the only one this has happened to.

Jan once Belle starts feeling a little better she will forgive you. Sunny turns his head away from me when he's mad.

Well a lady took out a power pole a couple houses down from us. Very scary. Not sure how she did it all the damage was in the driver's side but she knocked the pole completely down hubby was outside when it happened it was around 9:15 am he ran in and told me to call 911 that a transformer had blown up. He thought that because sparks were flying on all of our lines. 1500 homes no power, no phone, no internet. They got most people power within a few hours except for a few of us because the pole had to be replaced. They blocked off our part of the street and they didn't even want people on the sidewalks in case the lines came down.

The lady and her 3 kids walked home. They were shaken up but ok.

So I am not sure how our food faired in the refrigerator and our stand up freezer. We did open up the refrigerator a couple of times Sunnys meds are in there and we each got a bottle of water.

I go to the rhemys today then the pharmacy then home. We are heading into a heat wave so I am glad I am going out today instead of tomorrow

Take care all

[January]

Christina, you are in my thoughts and in my heart.

Cake, I'm sorry you have had no power and that things are not good. You are in my thoughts and heart, too. You know you are.

WC, thank you for the tip on putting butter on Belle's medicine. It really helped last night.

Belle is a little better today. She's not eating or drinking though. She is moving around a little bit.

I'm having trouble getting up from my chair, walking, etc. Sometimes I think I should get Mom's cane out and use it,
but the apartment is tiny and my friend still hasn't helped me put the bedroom back together, so I'm afraid the cane would catch on something and make me fall.

A cold front has moved in and it's going to be quite cool for the foreseeable future. My fall and winter clothes are stacked in totes on the bed and I can't get to them. There are boxes and totes stacked beside the bed and I can't lift them. I keep mentioning my situation to my friend, but she hasn't taken the time to come help me. I don't have anyone else who will help me, even if I paid him/her. I have one sweatshirt and a flannel shirt that I can reach. That's it. No sweaters, no jacket, nothing....

[Wild Coyote]

A warm hello to all!

Jan, I am happy to hear Belle is improving.
I am sorry you are having difficulties walking. I hope your friend will help you soon. You need your warm clothing!

Cake, I hope your refrigerated/frozen goods are fine despite the power outage. Also hoping your meeting with your rheumy is helpful.
It's very important you share your story about methotrexate. People deserve to know as much as possible before they make a medication choice.

It's a cooler day here. Lots of wind, too. I love the cool air; yet, have to keep my body warm to minimize pain, spasms, stiffness, aching. Pulled out my heavier jacket and my wool socks. I so enjoy my wool socks!

Spondi and Child, haven't heard from you in a little while. How are you?
Kiya, Gus, ~Christina, Lucy and Mama - Thinking of you, too.
I hope I have included all; if not, please forgive me.

Peace, Comfort and Joy to all.

WC

[Gus1234U]

i have 3 days of scheduled activities this week, so you might see me missing

[January]

I will miss you terribly, Gus. I love you and I love your pictures.

Belle was still really sick this morning. The vet called and said if she wasn't better by this evening I had to bring her to the vet hospital to be checked. Then, about noon she perked up and while she's not well, she drank some water and actually ate some food!
We are so blessed!

[La.Last.Lucy]

Hi everyone.... I know I’m still an outsider so this topic or issue may seem a bit bold or inappropriate for me to bring to the table- but it has been a topic discussing with a therapist never resolves or I come to an understanding of how it has effects is effecting and will continue to effect me. With Fibro CFS MS chronic pain just any consistent physical ailment there is one (of many parts) part of my emotional physical and mental realm that I have yet to grow and understand. Intimacy... not just the physical act.... but that being a huge component of it obviously. Regardless of age gender identify sexual orientation or single or in a relationship etc.... I feel well sad but also confused and always worried. Wether one is in a wheelchair or quite able bodied the physical limitations and stress and time Dr appointments ER etc that encompasses my life, effects intimacy. I do have nightmares that my significant other will leave me not just because of how stressful my ailments are but the rarity of the physical intimacy. Even trying to lay on the couch, my neck hurts so I have to continuously adjust which is frustrating just to want to be near while watching a movie. How do they feel when after well an activity that I immediately grab ice packs or my tens unit. I know my uh “sexuality” does not define me as a person nor makes me less then others but there is still a pang in my chest that radiates and brings a heaviness to my chest. I am more mature in my years now mentally and in understanding that emotional/physical competent regarding self worth and self esteem and while in a relationship. But I would just like to know that I am not the only one who has had to ruminate or even have to think of this issue. Therapists will have advice and listen of course. But unless you have lived it or are still living in the position of being effected by a physical limitation..... I discount the advice.... just want to know I’m not the only one that maybe even only once, who has had to think about it.... validation yes that’s the “term” lol
Thanks and apologies at the same time

[Gus1234U]

i dream of a world where i am not invalid, impoverished, in solitude, in pain; and i find that world is inside ~

[Kiya]

(((( Gus )))))

[Kiya]

Checking in- really bad cold/or mild flu- little sleep but am taking mom to her bone mart biopsy today. I can’t go in with her, sick as I am. I’ll have to wait in the car. Good thing I have blankets in there.
I can’t decide with will hurt less: lying in bed or an epsom salt bath...

[Gus1234U]

this is how i see each of you~! beautiful spirits, beloved friends~

[January]

Gus, what a wonderful, wonderful picture and your thoughts on it have really touched my heart. I hope you know your spirit looks the same way.

[cakeladie]

Not going to be a good day that's for sure.

I have a kidney infections, I am throwing up. Sammy the dog has not eaten since Saturday I am trying to get her into the vet and it's going to be 90 degrees today just what someone with lupus needed.

Then I find out that the car that hit the electric pole next door was driven by kids. They took their moms car out for a joy ride at 9:20 am. Wtf really those parents should be ashamed of themselves and should be held responsible for ALL cost. Right now I know the electric company will go after them but the homes that had their lines pulled out the home owner now has to take time off from work and have cable and the phone company come out to run new lines and THEY HAVE TO PAY FOR IT. How on earth is that fair? My children are far from angels lord I can write a book about my daughter but I would know if they took the car even if they took it at night ant it wasn't night time. If you ask me and no one is and I am taking my frustration out on you guys but those girls and unfortually they were girls should have had their butts in church good god almighty

People here have been talking non stop about the wild fires (I live in the San Francisco Bay Area) and people are saying how could people not have seen the fire when it started. Let me tell you how. When the girls hit the electric poles at least 20 houses had sparks flying from their electrical lines my house included. Add to dry weather, wind and it being night time that's how all those people lost their homes. I am thankful that the accident happened in the morning and I am doubly thankful that my hubby was home. He checked our roof just to make sure and our elderly neighbors roof.

Ok I am done I am going to throw up again. Sorry for being a Debbie downer but I have had a rough year and it seems like it's going to continue till the end.

[La.Last.Lucy]

Attachment 8108


This beautiful art is for you.... although she is clearly in agonizing pain... there is still life ... beauty and growth coming forth!

[Kiya]

((( Cake xox ))))

[Kiya]

((( Gus ))) that’s how we see you, too

[lizardlady]

Holy crow!!! I haven't been here for a few days (for the same ol' same ol' reason) and come back to FOUR pages of new posts! Sounds like many of you have some serious shyte going on.

Jan, someone else already made the suggestion I was going to make for getting food into Belle. Liquify it and use a syringe to feed it to her. It sounds like she is eating now though. Maybe you could still liquify the food and let her lap it up?

Cake, I worry about you and everyone else in California. Scary stuff!

I don't have time to respond to everyone, or the energy to do it. Hugs to all who need/want them.

[spondiferous]

hey all. sorry to hear of the various things going on. i'm at a pretty low place with the fatigue right now. i suspect i have CFS along with fibro. anyway i've read all the updates but i can't focus enough to respond individually to everyone. just know that i have been thinking of all of you. i've been feeling kind of crappy because i feel like every time i open my mouth the same story comes out of it and i know it's important to talk about stuff, and that's why i love this forum (because as much as it hurts me to know that all of you are struggling too, at least we can understand, empathize with, and support each other) but i'm the only person in my life in the outside world who has anything close to what i have and it's taking me to some dark places lately. anyway. hugs for all who want/need them.

[Gus1234U]

exhausted, and tomorrow isn't even here yet....
got a lot done, tho. naming Friday - NAPday~

[Wild Coyote]

Had a fun day yesterday. Spent time out with DH and friends.
Am paying a price today; I feel very stressed today, more pain, fatigue, etc.
I am glad I went out yesterday.

I have read through. I am touched by each post.

Cake, I hope you get a break soon!
Lucy, I also live with some of the same concerns.
Gus, SWEET!
Spondi, I hear you. Truly.
Jan, So glad to hear Belle is doing better.
Liz,
Kiya, I hope you feel better soon.
~Christina,

Love all around.

WC

[spondiferous]

Just a quick check-in before I go down for the night. Today was actually a good day. I made it out of the house on my own! I have literally one friend (who is close enough to hang out with) and I went out to meet him for breakfast, and then he came back here and we played some games and then he stayed and had dinner with us. Now I'm exhausted but it was totally worth it. wishing all of you the best.