The Fibromyalgia check in thread #4

lizardlady · Aug 11, 2018 at 07:19 AM

Now that I'm back to working five days a week I may not be here as much. I come home so tired I don't even turn the computer on.

The flare is flaming. I think even my hair and fingernails hurt. CBD oil was a waste of money for me. All I want to do is curl up on the sofa with my blankie. Instead I have to go to Mom's to check on things, weed, etc. It's been two weeks since I was there. Gawd forbid a weed sprout in the flowerbed.

I believe being able to laugh at ourselves over this crap helps. I was so tired one night this week I fell asleep lifting a cookie to my mouth!

Woke myself up dropping the cookie in my lap.

cakeladie · Aug 11, 2018 at 03:06 PM

Take care Liz

cakeladie · Aug 11, 2018 at 03:07 PM

Thanks Gus i am worried about her

Gus1234U · Aug 12, 2018 at 02:55 PM

Wild Coyote · Aug 13, 2018 at 07:11 PM

Struggling with sleep.
Ambien has been very agitating for me. Had to stop taking it; waiting for it to fully get out of my system and hoping the agitation goes with it.

Just checking in.
Love to All!

Wild Coyote · Aug 13, 2018 at 07:15 PM

Liz, Thanks for sharing your experience with CBD oil.
I am finding mmj helpful with a few symptoms. It's expensive though; it costs more than most of my prescriptions (per month).

WC

Gus1234U · Aug 16, 2018 at 10:03 PM

lizardlady · Aug 18, 2018 at 02:45 PM

Most recent flare has calmed down, but I'm still exhausted. I have 1 -2 years before I can retire. That seems like a long, long time right now.

I think of y'all during the day, planning to come and post when I get home. Instead I crash on the sofa until it's time to crawl into bed.

Gus1234U · Aug 18, 2018 at 11:30 PM

Aug 19, 2018 at 09:15 AM

I'm hoping to get myself a new shower chair soon

hopefully a more stable one than what I had- I must admit, I'm a bit apprihensive about trying a new one (because of their instability), but I do need one again- it's got to that point where I am just aching

my pain today is half pain, half tickle. it is strange

I have still not slept

childofchaos831 · Aug 19, 2018 at 11:12 AM

My surgery is scheduled for Wednesday morning. I have my pre-op appt tomorrow. It's starting to sink in this is really happening.

Gus1234U · Aug 19, 2018 at 01:11 PM

{{{{ Child~! }}}} our thoughts and hopes are with you ~

lizardlady · Aug 19, 2018 at 02:23 PM

I'm just feeling overwhelmed today. After a few days of less pain, less exhaustion it's back times 10. Pain is through the roof. Exhausted doesn't come close to describing how I feel. I'm shaking all over. I'm leaning on things when I walk. I'm telling myself this will pass, but I'm having trouble believing it today. Gawd I hate this!

Gus1234U · Aug 20, 2018 at 08:57 AM

seriously, Liz~! i do not know how you keep going~

lizardlady · Aug 20, 2018 at 05:30 PM

Quote:

Originally Posted by Gus1234U

seriously, Liz~! i do not know how you keep going~

Gus, my friends would probably chalk it up to me pigheaded.

I've got to hang on until next summer. I'll be old enough to go on Medicare then. Health insurance at my company sucks rocks, but I have to have health insurance.

childofchaos831 · Aug 21, 2018 at 03:10 PM

Quote:

Originally Posted by Gus1234U

{{{{ Child~! }}}} our thoughts and hopes are with you ~

Got rescheduled for next Wednesday... one of my meds needs to be stopped sooner than they told me to stop it... so now I wait one more week.

possum220 · Aug 22, 2018 at 03:57 AM

Hi guys. Has anybody heard from Jan? Haven't heard from her for ages.

Aug 22, 2018 at 05:05 AM

in a lot of pain today.

I had to go up the shop this morning in order to get some washing up powder (so I could do the laundry), but I wish I hadn't- I was all ready in agony, now it's worse

... no sleep again. just lots and lots of flashbacks

blah

Gus1234U · Aug 22, 2018 at 03:42 PM

Jan is very ill, and not getting better... she continues to go out for food and meds, but it is very hard for her. her state offers her NO HELP (hate that!).

possum220 · Aug 22, 2018 at 07:33 PM

Wondering if there is anything we can do as community for Jan Gus?

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The Fibromyalgia check in thread #4

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cakeladie Magnate Member Since Mar 2015 Location: California Posts: 2,024 9 4,529 hugs given	Aug 11, 2018 at 03:06 PM #702 Take care Liz __________________

cakeladie Magnate Member Since Mar 2015 Location: California Posts: 2,024 9 4,529 hugs given	Aug 11, 2018 at 03:07 PM #703 Thanks Gus i am worried about her __________________

Gus1234U Seeker Member Since Jun 2010 Location: Here Posts: 9,204 13	Aug 12, 2018 at 02:55 PM #704 __________________ AWAKEN~!

Wild Coyote Legendary Community Liaison Member Since Jun 2016 Location: USA Posts: 12,735 (SuperPoster!) 7 70.9k hugs given	Aug 13, 2018 at 07:11 PM #705 Struggling with sleep. Ambien has been very agitating for me. Had to stop taking it; waiting for it to fully get out of my system and hoping the agitation goes with it. Just checking in. Love to All! __________________ May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.

Wild Coyote Legendary Community Liaison Member Since Jun 2016 Location: USA Posts: 12,735 (SuperPoster!) 7 70.9k hugs given	Aug 13, 2018 at 07:15 PM #706 Liz, Thanks for sharing your experience with CBD oil. I am finding mmj helpful with a few symptoms. It's expensive though; it costs more than most of my prescriptions (per month). WC __________________ May we each fully claim the courage to live from our hearts, to allow Love, Faith and Hope to enLighten our paths.

Gus1234U Seeker Member Since Jun 2010 Location: Here Posts: 9,204 13	Aug 16, 2018 at 10:03 PM #707 __________________ AWAKEN~!

lizardlady Legendary Member Since Nov 2002 Location: Mid World Posts: 17,478 (SuperPoster!) 21 7,511 hugs given	Aug 18, 2018 at 02:45 PM #708 Most recent flare has calmed down, but I'm still exhausted. I have 1 -2 years before I can retire. That seems like a long, long time right now. I think of y'all during the day, planning to come and post when I get home. Instead I crash on the sofa until it's time to crawl into bed.

Gus1234U Seeker Member Since Jun 2010 Location: Here Posts: 9,204 13	Aug 18, 2018 at 11:30 PM #709 __________________ AWAKEN~!

Anonymous32451 Guest Posts: n/a	Aug 19, 2018 at 09:15 AM #710 I'm hoping to get myself a new shower chair soon hopefully a more stable one than what I had- I must admit, I'm a bit apprihensive about trying a new one (because of their instability), but I do need one again- it's got to that point where I am just aching my pain today is half pain, half tickle. it is strange I have still not slept

childofchaos831 Elder Member Since Nov 2016 Location: Texas Posts: 5,037 7 15 hugs given	Aug 19, 2018 at 11:12 AM #711 My surgery is scheduled for Wednesday morning. I have my pre-op appt tomorrow. It's starting to sink in this is really happening. __________________ Diagnoses: PTSD with Dissociative Symptoms, Borderline Personality Disorder, Generalized Anxiety Disorder, Fibromyalgia and Chronic Pain

Gus1234U Seeker Member Since Jun 2010 Location: Here Posts: 9,204 13	Aug 19, 2018 at 01:11 PM #712 {{{{ Child~! }}}} our thoughts and hopes are with you ~ __________________ AWAKEN~!

lizardlady Legendary Member Since Nov 2002 Location: Mid World Posts: 17,478 (SuperPoster!) 21 7,511 hugs given	Aug 19, 2018 at 02:23 PM #713 I'm just feeling overwhelmed today. After a few days of less pain, less exhaustion it's back times 10. Pain is through the roof. Exhausted doesn't come close to describing how I feel. I'm shaking all over. I'm leaning on things when I walk. I'm telling myself this will pass, but I'm having trouble believing it today. Gawd I hate this!

Gus1234U Seeker Member Since Jun 2010 Location: Here Posts: 9,204 13	Aug 20, 2018 at 08:57 AM #714 seriously, Liz~! i do not know how you keep going~ __________________ AWAKEN~!

possum220 Legendary Member Since Jan 2009 Location: Uppa Gumtree West Posts: 19,397 (SuperPoster!) 15 7,983 hugs given	Aug 22, 2018 at 03:57 AM #717 Hi guys. Has anybody heard from Jan? Haven't heard from her for ages.

Anonymous32451 Guest Posts: n/a	Aug 22, 2018 at 05:05 AM #718 in a lot of pain today. I had to go up the shop this morning in order to get some washing up powder (so I could do the laundry), but I wish I hadn't- I was all ready in agony, now it's worse ... no sleep again. just lots and lots of flashbacks blah

Gus1234U Seeker Member Since Jun 2010 Location: Here Posts: 9,204 13	Aug 22, 2018 at 03:42 PM #719 Jan is very ill, and not getting better... she continues to go out for food and meds, but it is very hard for her. her state offers her NO HELP (hate that!). __________________ AWAKEN~!

possum220 Legendary Member Since Jan 2009 Location: Uppa Gumtree West Posts: 19,397 (SuperPoster!) 15 7,983 hugs given	Aug 22, 2018 at 07:33 PM #720 Wondering if there is anything we can do as community for Jan Gus?