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Old 09-08-2019, 03:06 AM   #151
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Red face Re: Fibromyalgia Check-In Thread #5 ...

It's just anxiety, @lizardlady ... I overthink things sometimes.

It's only four parts here ...

The actual request I complete, then my employer does parts II & III (job description and duties), and my doctor does part IV.

I've done my part, my supervisors (that support me & my request 100%) are working on their part, and I'm dropping part IV by my doctor's office this week.

I'm also worried that if it does turn out to be psoriatic arthritis if the diagnosis is coming too late to do anything about it.

We could've been treating it all this time and it not gotten to the point it is now.

Kinda makes me sad, but one thing's for sure, I'm a tough cookie and shall persevere!

Certainly appreciate yours and @~Christina's support too!

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Old 09-08-2019, 03:44 AM   #152
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Default Re: Fibromyalgia Check-In Thread #5 ...

So I had rotator cuff surgery on the right shoulder in March and I have to have it on the left September 20th! I injured them both at the same time but the right one was worse. I followed all the directions and I swear, it was the easiest surgery I have ever had. People had all sorts of horror stories about it but it was a cinch for me because i listened to the doc instead of playing the doc.
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Old 09-10-2019, 02:39 AM   #153
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Exclamation Re: Fibromyalgia Check-In Thread #5 ...

If this does end up being Psoriatic Arthritis (PsA), I'm wondering if the diagnosis has come too late for treatment to be of much benefit.

Been trying to piece together a timeline and I can remember noticing the first spots back in the mid 90's and wondering what they were.

I was in my mid 30's at that time, had no health insurance and only went to ER if really, really sick.

Of course back then I would only see one or two spots (about the size of a nickle, dime or quarter) pop up throughout the year.

Then as time progressed it would be three or four going on at the same time on random locations all over my body & more frequently throught the year.

The pain started about 10 years later and has progressively gotten worse since then, but I had no clue it may be connected to those spots on my skin.

I'm almost 60 and the last time I can remember being relatively pain free was back when I was 48 years old!

Since then it's all gone downhill so fast - especially these last 2-3 years.

If it is PsA, that means I've gone nearly 25 years without diagnosis and treatment.

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Old 09-10-2019, 06:37 AM   #154
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Default Re: Fibromyalgia Check-In Thread #5 ...

Treatment for my PsA is to prevent further degeneration and damage.

But honestly Enbrel was offering me some decrease in pain.

I hope Humira works well for me.

PsA causes the inflammation rate in your body to increase from a normal range so everything is going to hurt more, at least thatís how it works for me. If my numbers are staying lower I have less PsA pain daily.

Right now my rate is way up, my rheumatologist said Humira typically works faster than Enbrel does, Iím holding out hope that Humira works well.
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Old 09-10-2019, 07:21 PM   #155
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Default Re: Fibromyalgia Check-In Thread #5 ...

Just need to whinge.... I hurt and I'm exhausted....
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Old 09-10-2019, 10:53 PM   #156
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Default Re: Fibromyalgia Check-In Thread #5 ...

Gentle hugs Liz
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Old 09-11-2019, 01:52 AM   #157
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Red face Re: Fibromyalgia Check-In Thread #5 ...

Thanks for that information @~Christina, fingers x'd that the Humira works for you too.

I kept turning that exact thought over in my head yesterday that we (my treatment team and I) may not be able to do anything about the damage already done, but at least we can slow down and/or prevent further progression.

I'm still a bit sad (and angry) about how my other doctor (the one that quit) could have missed all this, but then I think I don't need to feed into that because I will need all the energy I've got to battle what lies before me!

Sorry you are hurting and are exhausted on top of that @lizardlady - as if the pain isn't enough!

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Old 09-12-2019, 07:51 PM   #158
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Default Re: Fibromyalgia Check-In Thread #5 ...

more whinging....

Pain is causing me to clench my jaws. I don't even realize I'm doing it until my jaws start to ache.

The emotional side of fibro is kicking in too. My emotions are all over the board. I'm ready to cry over absolutely nothing. Gawd almighty I hate this.
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This world has a way of shaking your faith
I've been broken again and again
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'Cause that's where the love gets in
Dierks Bentley
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Old 09-14-2019, 01:53 PM   #159
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Unhappy Re: Fibromyalgia Check-In Thread #5 ...

Fibromyalgia Check-In Thread #5 ...

I'm tired of trying to be and do what I'm not able to be and do anymore!

But instead of it being Elvis has left the building, it's Wonder Woman has left this body!

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Old 09-15-2019, 12:20 AM   #160
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Default Re: Fibromyalgia Check-In Thread #5 ...

I really struggle with how physically I am going downhill. Yeah Iím getting things checked out , but I think nothing will be found. So Iíll just feel like ď thisĒ forever ??

Iím so discouraged between Bipolar PsA , Fibromyalgia and whatever the hell else is going on.

Today I just give up.

Maybe wonder woman will come back to you soon
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