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Exclamation Mar 05, 2020 at 03:45 AM
  #401
That Front! ... This Rain! ... The Pain!

Dayum!

 
 
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Red face Mar 05, 2020 at 03:47 AM
  #402
Fibromyalgia Check-In Thread #5 ...

 
 
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Default Mar 05, 2020 at 07:48 PM
  #403
Pfrog, you find the best memes!👍😁 This gave me a chuckle. Thanks
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Default Mar 05, 2020 at 07:49 PM
  #404
Quote:
Originally Posted by ~Christina View Post

I want off this ride
Oh me too Christina!
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Default Mar 06, 2020 at 02:26 AM
  #405
Well the other day when those storms came through we had very heavy rain and wind... 2 Tornados hit Nashville area.. 25 confirmed died, more have since passed in the hospitals

It’s like a war zone, it’s so hard to wrap my head around what’s happened. Homes lost , business’s destroyed.

Tennessee is the Volunteer state and it truly is.. people are just helping in any way they can, people are going in with food trucks , feeding anyone in need for free, water, clothing, hotels are taking in displaced families for free.. there’s no race or political bullshyt. People just helping each other.

Why must it take a tragedy to bring people from all walks of life together ??

My pain is awful but I have a home, food to eat , Ive not lost any loved ones. I’m grateful

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Exclamation Mar 06, 2020 at 04:28 PM
  #406
Did any of you ever lose friends over your chronic pain issues and illnesses?

Like they quit calling, coming around or inviting you places?

If so, how did you cope and deal with that?

Sort of feeling like a defective reject at present.

When the heart, mind and body are all hurting at the same time ...

Sometimes it's just too much!

 
 
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Default Mar 07, 2020 at 03:25 AM
  #407
I wrote a novel and thankfully deleted it and saved you from reading a mess

I’ve been on both sides .. friends dropped out of my life because I was overwhelming them with chronic pain, so many doctors and tests. I was like an emotional vampire. I was so hurt and mad as they had backed away. I simply was too much.. once I got a T and he helped me understand , I got it

On the other side one friend that did stick with me..she lost her husband, she needed a lot of support but after a year she was still a mess, texting me around the clock , angry if I didn’t respond right away. I told her she needed a T to help her process her grief.. Nope ! I finally had to take a big step back. I feel bad but she was overwhelming me.. she always wanted to come over. When I’m really hurting I simple want to be left alone.

We check on each other if bad storms are hitting, we sent each other a birthday wish on Facebook. A random text here and there..

Both sides of the coin just freaking sucks

Best advice I have is be kind to yourself

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Red face Mar 07, 2020 at 12:46 PM
  #408
Thank you, @~Christina ...

There was a little group of us at work that used to hang out - fishing, road trips, game nights, etc. then it just suddenly stopped.

No reason was given and when I tried to talk with them about it, I'd get that blanket response that makes you feel like you aren't seeing things exactly how they are but you know in your heart that it is exactly what you're seeing.

Anyway, yesterday one of them was discussing an upcoming road trip they're about to go on and asked another co-worker to come along. It was like I wasn't even sitting there - which just kinda stung and opened up an old wound I thought had already healed.

So, I came home and had me a good little crying jag, then I got mad as hell and went through the house and yard and took everything they'd ever given me, drove it up to the dump and tossed it - just like they tossed me!

Who needs their bull@#$%! tokens anyway - or even them for that matter!

I'm starting to settle back down now and will definitely take your advice about being kind to myself to heart.

Thanks!

 
 
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Default Mar 08, 2020 at 12:40 AM
  #409
Yeah, I know that hurts but I also think with anger can come some clarity.

Continue to be kind to yourself

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Default Mar 10, 2020 at 05:54 PM
  #410
(*(*(*(*pfrog*)*)*)*)

Fibro and CFS have cost me any kind of social life. As far as I know no one has stopped being friends with me because of either, but I don't go out. I don't make plans to do things with people because I'm too friggin' tired to do anything after work or on weekends. Does that make sense?
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Red face Mar 12, 2020 at 02:10 AM
  #411
It makes perfect sense, @lizardlady!

I always joke that the spirit is willing but the flesh is weak ...

But, oh how my heart still wants to be able to go and do all the stuff I used to be able to go and do.

I did find a therapist, and am going to work through some of the more darker & hurt places.

I'm also asking them to help me with my medical anxiety so I can get myself in to be seen by a rheumatologist.

Y'all keep your fingers crossed for me, and hopefully I'll find some relief physically and emotionally!

Again, your and @~Christina's sharing, support and advice is most appreciated!

 
 
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Exclamation Mar 15, 2020 at 09:28 AM
  #412
Dear @lizardlady & @~Christina ...

Just want y'all to know that I will be sending extra good thoughts & prayers your way during this Corona Virus thing.

I know that y'all are most likely on immunosuppressants which, no doubt, adds another layer of concern for you.

Here's hoping all of us stay healthy while this thing runs its course!

,
Pfrog!
 
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Default Mar 15, 2020 at 09:34 AM
  #413
Thanks pfrog. Sending good thoughts to everyone here.

Stay safe. Be healthy.
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Default Mar 15, 2020 at 10:30 PM
  #414
Gentle hugs ladies

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Default Mar 17, 2020 at 11:51 PM
  #415
Well my insomnia has been dreadful for weeks now. I just drugged myself to sleep last night, 12 hours! which is great but ..... Between the Fibro and PsA I almost had to call my husband to help me out of bed I was so stiff

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Red face Mar 18, 2020 at 05:27 AM
  #416
Glad you got a good night's sleep @~Christina! Also glad you were able to get out of bed - even if it took a minute!

I will be getting that much needed break I've been wanting but not taking because I'm trying to save my leave.

Our University has shut down to bare bones operations on campus proper and I'll be working from home on the days I'm not driving.

As of now I'm not scheduled to drive again until next Wednesday.

So as bad as everything is with Corona Virus restrictions, there's a silver lining right there!

 
 
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Default Mar 18, 2020 at 07:44 AM
  #417
Christina, I'm glad you got some sleep even if hubby had to help you up. funny on myself - there are mornings I literally roll of the bed to the floor then use the bed to haul myself to my feet. I suspect it would make a funny video.

Senior management where I work are proving themselves to be the buttheads we knew they were. They sent out an email yesterday that started out talking about how we are all family and how much they care about us. The rest of the message basically said "get your ***** to work." They said if we need to do home visits to call ahead and see if anyone in the house is sick first. CDC is recommending social distancing AND says people can be sick but not have symptoms. Oh yeah, if we can't do a home visit Skype with the family. Most of my clients live below the poverty level. THEY CAN'T FRIGGIN' SKYPE!!!!

I don't want to sound like I'm panicking, but I'm afraid to do home visits. I'm afraid of catching this damned virus.
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Exclamation Mar 18, 2020 at 03:27 PM
  #418
I would say your fears are justified, @lizardlady!

Too many "responsible" people are being extremely irresponsible about just how serious this is!

It's scary.

 
 
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Default Mar 19, 2020 at 05:35 PM
  #419
The CNN app has a really good article about people who appear healthy, but have conditions like fibro, lupus, RA, who could die if they catch corona. I found myself nodding and agreeing as I read it.
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Default Mar 19, 2020 at 11:06 PM
  #420
Liz I do not see how they can expect you to do in person visits.. With all the constant stay home , social distancing being on repeat etc etc etc

I know a Teacher that was being told everyone had to come into work to offer phone help.. Numerous teachers called the state. Well now they are going to be allowed to work from home.

Call the state and complain. There is no reason to walk into someones home as people can take a couple weeks before showing a symptom , Hell No! to walking into a possible Petri dish. I am sorry your boss's are so ill informed..

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