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Old 10-05-2019, 09:24 PM   #211
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Default Re: Fibromyalgia Check-In Thread #5 ...

Love it Pfrog!
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Old 10-05-2019, 09:47 PM   #212
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Default Re: Fibromyalgia Check-In Thread #5 ...

Yes!!!!! Almost daily lol

Thanks for this
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Old 10-09-2019, 07:39 PM   #213
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Default Re: Fibromyalgia Check-In Thread #5 ...

*sigh* I have another flare building.
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Ring the bells that still can ring
Forget your perfect offering
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That's how the light gets in
Leonard Cohen

This world has a way of shaking your faith
I've been broken again and again
But I need all the cracks in my shattered heart
'Cause that's where the love gets in
Dierks Bentley
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Old 10-11-2019, 12:41 PM   #214
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Unhappy Re: Fibromyalgia Check-In Thread #5 ...

I'm sorry, @lizardlady ...

Do they seem to happen more for you once the weather starts getting colder?

It seems that way for me.
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Old 10-11-2019, 01:29 PM   #215
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Exclamation Re: Fibromyalgia Check-In Thread #5 ...

I think I've found a rheumatologist I'm willing to give a try and have asked my PCP to make a referral to him for me.

It will be after the first of the year before they can work me in though.

To go or not to go ... That's the question!

I've been dealing with pain for over 10 years now, so what's three more months I ask myself.

I'm pretty sure that more damage is occurring even as I sit here and type this!

I can feel pain, stiffness and tightness in joints that haven't been involved before.

The time I'm able to stand and walk before the pain kicks up to that go ahead and put me out of my misery level is getting shorter and shorter.

I used to tell myself what a tough nut and cookie I am.

Now it's all I can do to just be present without bursting into tears.

I don't know what to think, feel or believe ... I'm just tired and want to not be in pain anymore.

The ADA thing is slowly plodding along, and ...

The much dreaded colder weather will be here before we know it.

Sometimes I just want off this pfreakin' ride!

Thank you for just letting me give all that jumbled up mess in my head a little bit of air!

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Old 10-11-2019, 04:30 PM   #216
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Default Re: Fibromyalgia Check-In Thread #5 ...

Quote:
Originally Posted by Pfrog View Post
Do they seem to happen more for you once the weather starts getting colder?
Oh h e l l yes!
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Ring the bells that still can ring
Forget your perfect offering
There is a crack in everything
That's how the light gets in
Leonard Cohen

This world has a way of shaking your faith
I've been broken again and again
But I need all the cracks in my shattered heart
'Cause that's where the love gets in
Dierks Bentley
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Old 10-12-2019, 08:41 AM   #217
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Default Re: Fibromyalgia Check-In Thread #5 ...

Quote:
Originally Posted by Pfrog View Post
I think I've found a rheumatologist I'm willing to give a try and have asked my PCP to make a referral to him for me.

It will be after the first of the year before they can work me in though.

To go or not to go ... That's the question!

I've been dealing with pain for over 10 years now, so what's three more months I ask myself.

I'm pretty sure that more damage is occurring even as I sit here and type this!

I can feel pain, stiffness and tightness in joints that haven't been involved before.

The time I'm able to stand and walk before the pain kicks up to that go ahead and put me out of my misery level is getting shorter and shorter.

I used to tell myself what a tough nut and cookie I am.

Now it's all I can do to just be present without bursting into tears.

I don't know what to think, feel or believe ... I'm just tired and want to not be in pain anymore.

The ADA thing is slowly plodding along, and ...

The much dreaded colder weather will be here before we know it.

Sometimes I just want off this pfreakin' ride!

Thank you for just letting me give all that jumbled up mess in my head a little bit of air!



I am sorry you are struggling so much, frog.

hope you start to feel better soon.

(remember we are always about if you need to talk!.)
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Old Yesterday, 12:14 PM   #218
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Exclamation Re: Fibromyalgia Check-In Thread #5 ...

I think it unconscionable that our insurance plans can dictate we jump through hoops (step therapy) before approving the medications our doctors think are best for us and our conditions!

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Some things that get broken simply aren't able to be put back together again ... I've healed as well as I can, but it's not lost on me how much was, is and shall remain broken; up until the day I leave this patch of dirt called earth.

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Old Yesterday, 06:34 PM   #219
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Default Re: Fibromyalgia Check-In Thread #5 ...

Amen to that pfrog!
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Ring the bells that still can ring
Forget your perfect offering
There is a crack in everything
That's how the light gets in
Leonard Cohen

This world has a way of shaking your faith
I've been broken again and again
But I need all the cracks in my shattered heart
'Cause that's where the love gets in
Dierks Bentley
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Old Today, 12:55 AM   #220
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Default Re: Fibromyalgia Check-In Thread #5 ...

As for Fibro my insurance required Neurontin first ... then after 3 months or so my Doctor sent prior auth and I was stared on Lyrica.

First biologic was Enbrel , which is what my Rhuematologist uses as his first choice. It did fail after a bit more than a year.

Humira is the next option as far as my insurance goes, but if I find no relief he will send a pre auth for the next one. I forget whats next.

My Dermatologist and Rhuematologist both want me on Taltzs as they both think it would be best because I have major problems with the psoriasis showing up on my lady parts .. yes! OMG !! It was awful.

But yes Im a poodle and I must jump through flaming hoops in order to find what will work

Big Pharma can bite me!
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