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Unhappy May 22, 2020 at 04:51 AM
  #521
I'm sorry shower's hurt so bad @raging vortex ...

I miss being able to get into the tub for a hot soak.

It got to where it was just to painful to get myself back up and out, and I seriously doubt I could even do that now!

When it comes to taking a shower, it isn't so much the pain as how exhausted I am afterwards.

The things that regular folks take for granted tend to destroy those of us that struggle with chronic pain issues.

 
 
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Default May 25, 2020 at 01:01 AM
  #522
I have been gone from PC a long time and never thought I’d return. I’m still not sure about returning. I’ll check in on this post and go from there.

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Red face May 25, 2020 at 10:56 AM
  #523
Hello, @Cocosurviving ...

Just dropped by to see how everyone is doing ...

Fibromyalgia Check-In Thread #5 ...

My body definitely feels like that more often than not ...

Especially on days when the weather is effing everything up even more!

 
 
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Default May 25, 2020 at 02:30 PM
  #524
Hey Coco!!!! Nice to see you

How are you doing ? feeling any better?

Feel free to Pm I'd love to catch up with you

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Default May 25, 2020 at 02:31 PM
  #525
O U C H

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Default May 25, 2020 at 06:22 PM
  #526
Coco, welcome back.
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Default May 25, 2020 at 06:53 PM
  #527
Just stopping by... Still hurting, as usual.

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Default May 25, 2020 at 07:50 PM
  #528
ChildofChaos I am so sorry that you are hurting But I am glad you are voicing it.. Often it helps to just be heard when we struggle with chronic pain...

I've been in a massive flare for 3 months now and I dont think it will ever ease any.. I am binge watching ER and falling in to show allows me a bit of an escape.. I also have a book series I love, Distractions ....

Is there anything you can do that offers you any kind of relief even if just temporary? Sometimes a bath is nice or a shower or doing gentle stretches.. Im still looking for something to help me, If I find something else to try I will let you know so you may want to try

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Default May 25, 2020 at 11:44 PM
  #529
Mostly we try to distract, like you said... We have medicine, but we don't like taking it all the time because it's an NSAID so it can cause stomach problems. However, thinking we're going to take it tonight. With our muscle relaxer.

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Default May 26, 2020 at 10:00 PM
  #530
ChildOf Chaos. I hope that you found some relief and got some much needed sleep

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Red face May 29, 2020 at 03:34 AM
  #531
Happy Pfriday To My Chronic Pain Pals!

Yesterday's storm chasing venture yielded ...

Fibromyalgia Check-In Thread #5 ...

I captured that shot at Smithonia, Georgia. More info on Smithonia available here:
Smithona Farm | History

Watson Mill Bridge State Park, home of the longest covered bridge in the state of Georgia, was also a part of yesterday's chase ...

Fibromyalgia Check-In Thread #5 ...

Fibromyalgia Check-In Thread #5 ...

I'm rather pleased with the results and hope y'all enjoy them too!

 
 
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Default May 29, 2020 at 10:33 AM
  #532
Thanks for the vids Pfrog. Love the bridge! Have you heard anything more about going back to work?
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Red face May 29, 2020 at 03:06 PM
  #533
Thanks, @lizardlady!

That bright bubble that's falling near the beginning of the first video is a raindrop!

Haven't heard anything about work yet.

Phase 1 of reopening starts on 06/15, but that's for the movers and shakers.

We've been instructed to not come to campus until explicitly told to do so which could be another month or so off.

Maybe I'll be one of the last ones called or even be assigned to work from home a little longer.

I have consistently proven to be responsible with that!

As soon as I hear something I'll let y'all know ...

How have you been doing lately?

 
 
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Default May 29, 2020 at 05:03 PM
  #534
Sounds like your employer is being very sensible about taking care of y'all.

In terms of fibro I'm doing okay. In other areas I'm not doing so great. I don't like the way I've gotten to be - negative, judgemental, angry a lot of the time, depressed and cutting myself off from the world. I know it's all a reaction to what's going on in the world. My coping skills are overwhelmed. I know I need to change my thinking. I know the things I ought to be doing to feel better. I just don't have it in me to do those things.
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Exclamation May 30, 2020 at 09:59 AM
  #535
I hear you @lizardlady ...

It is sometimes just too much!

Try to be extra patient, gentle & kind with yourself (even though that can be hard too)!

 
 
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Default Jun 01, 2020 at 06:07 AM
  #536
Thank you all for the responses. I’ve been gone so long I can’t remember how to work the features. Lol
I’m still in Oklahoma right now. Yesterday was really stressful because I was sent messages about fires in Nashville. I’m oldest son and I have other family in Nashville too. It took a while before I was able to reach some of them. All the situations that are unfolding further prevent me and my teenage daughter from being able to return to Nashville.

With the many autoimmune illnesses that I have it was actually recommended I no longer live in Oklahoma because of the environmental toxins. Also this state lacks a lot of resources and getting into see specialists take months.

I messaged one of my best friends that workers at Vanderbilt Medical Center. I was having an emotional moment. May 31st, 2012 was the last day I worked. I was just so flooded with memories and how my life has changed. Thinking about all the medical mismanagement, medical redlining and medical gaslighting.
Over the last two years I have had all my medical records and labs mailed from Nashville, Tennessee to Oklahoma.
I was seeking answers and I was not ready for the outcome. The healthcare field let me down and many others. My medical records and labs clearly had indicators of the multiple chronic illnesses that it took me years to get correctly diagnosed with. Which the lack of “correct” treatment exacerbated my symptoms.
It has been a wild roller coaster 🎢 many days filled with tears, frustration, depression and exhaustion.
Many, many hospital and urgent care trips.
I had to learn to seek my information to research from whoever had it regardless of the state or country they lived in.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default Jun 02, 2020 at 03:18 PM
  #537
Coco, I believe many here can relate to it taking years to get the correct diagnosis. I've probably had fibro and CFS most of my life, but was in mid40s when finally diagnosed.
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Default Jun 02, 2020 at 03:20 PM
  #538
Spent Sunday climbing up and down ladders finishing painting Mom's house. My left knee was kind of cranky yesterday. It is blown up like a balloon and hurts like hades today. Whine, whine, whine...
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Default Jun 03, 2020 at 08:17 PM
  #539
Coco... Yeah Nashville has alot of shyt going on as does the whole nation. Things just have to change

I am so glad that you finally got some much needed answers to explain what was really going on with you

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Default Jun 04, 2020 at 08:57 AM
  #540
I am surprised with how little pain I am in, seeing as it is now thursday and I'm still doing quite good

usually by now I ache like hell

I am thankful to the fibro gods or who ever is making it easy on me
 
 
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