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Default Oct 02, 2020 at 08:04 PM
  #861
Sorry folks, I need to whine.... I've got body aches to rival one of my worst flares, sinuses are swollen and hurt, sore throat, alternating chills and hot, headache, exhausted, hurts to breathe... I just plain feel like crap. It will be Monday at the earliest before I get test results. Gawd I just want this over.
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Heart Oct 03, 2020 at 05:57 AM
  #862
((( @lizardlady ))) ...

I can't even imagine what you're going through!

I'm hoping and praying that these results are negative too ...

 
 
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Default Oct 04, 2020 at 03:31 AM
  #863
I’ve been dealing with health insurance crap. People that say Medicare for all have no clue. Once you have insurance they go over and beyond to cover only the bare minimum.
After waiting three weeks for insurance to approve an injunction similar to a epipen. It’s for my Hereditary Angioedema. I was approved on last Friday now it’s a matter of finding funding for the injection. Meanwhile my immunology specialist has suggested another injection which is administered every four weeks for my Chronic Idiopathic Urticaria. The injection is $30,000 per year.

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Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default Oct 04, 2020 at 08:28 AM
  #864
My results came back negative. I still feel like crap though. Not sure what to do next. I don'thave a primary care doc. Maybe I'll try teladoc or doc in a box.

I just scheduled an appt at a local doc in a box.

Last edited by lizardlady; Oct 04, 2020 at 08:48 AM..
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Default Oct 04, 2020 at 09:04 AM
  #865
i've gone crazy on the overeating again, and eaten too much so now my tum hurts

along with my back

and legs

and shoulders

and loads of vital body parts
 
 
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Default Oct 04, 2020 at 05:41 PM
  #866
Went to the doc in a box this afternoon. As I suspected all along I have a sinus infection which exacerbated my asthma. I have a baggy of drugs to take. At least I have an answer now and meds to treat it.
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Default Oct 04, 2020 at 10:29 PM
  #867
liz, sinus infections aren't any fun. I hope your baggy of meds gets you fixed up soon.

What distresses me is that COVID19 can cause body aches and such. Just what sufferers of fibro need! More pain....
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Default Oct 05, 2020 at 02:42 AM
  #868
I came across this post and had to share it. 💜💜💜

♻️♻️♻️ RePosted @withregram • @worrywellbeing Over the past few days, I’ve been struggling and having dealt with mental health problems for a long time, I’ve learnt to recognise the signs that I’m finding things harder than usual. I can’t really pinpoint what’s wrong, I just don’t feel right. I’ve been finding it hard to get up in the mornings, I’ve had panic attacks (something I haven’t experienced in months), my thoughts have felt completely uncontrollable. If you’re going through a difficult time at the moment, you’re not alone. I’m not sure what the answers are, this account has never been about giving advice and telling people how to be happy, it’s about me being honest, sharing my experiences, sharing things that have helped me, reminding you that you’re not alone. I am struggling at the moment, but that’s okay. And if you’re struggling, that’s okay. You will get through this. Recognising you are struggling is the first important step in helping yourself feel better💚

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Red face Oct 05, 2020 at 04:34 AM
  #869
Whew, Two!

Great news again, @lizardlady ...

I hope the meds knock that sinus infection out and you're pfeeling better soon.

I also hope that your good boss realizes the implications of having in person meet-ups and allows you to go back to teleworking.

Some people are more at risk than others and should be given extra special considerations!

 
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Default Oct 06, 2020 at 06:52 AM
  #870
Quote:
Originally Posted by lizardlady View Post
Went to the doc in a box this afternoon. As I suspected all along I have a sinus infection which exacerbated my asthma. I have a baggy of drugs to take. At least I have an answer now and meds to treat it.


I hope that the meds work. be sure to let us know
 
 
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Default Oct 06, 2020 at 06:53 AM
  #871
you know it's going to be a bad day when your first thought is, " why am I here?"

litirally doing nothing
 
 
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Default Oct 06, 2020 at 04:05 PM
  #872
The first few days I take new meds they kick my behind. It's getting kicked hard. On the other hand I seem to be breathing a little better sand coughing less.

They gave me an asthma med that makes me a little shakey when I use my inhaler. They also gave it to me to use in a nebulizer. Boy howdy, I was shaking all other like a leaf in a hurricane. I'm going to have to time using it to not interfere with things from now on.
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Default Oct 07, 2020 at 03:02 AM
  #873
The last two days I’ve been in a lot of pain. When weather fluctuations happen I get flares from my autoimmune illnesses. I have continued walking 15-20 minutes each day. My legs, shoulders, back and torso experience severe pain.
I’ve been utilizing my cannabis license seeking to reduce my pain and other symptoms.
Yesterday I had a Zoom meeting to receive training on a new treatment for my Hereditary Angioedema. I watched a video a few days prior. I’m very nervous to be honest.

I have experience administering my Epipen which the needle is not visible. However this new treatment injection the needle is visible. It gets very overwhelming constantly juggling multiple autoimmune diseases/rare diseases.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Heart Oct 09, 2020 at 03:51 AM
  #874
It's amazing what a difference a couple of inches makes!

Got my ADA toilet seat installed ...

My hips & knees certainly appreciate it!

Hope all are pfaring as well as possible considering our various conditions ...

Gentle hugs pfor us all ...

 
 
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Default Oct 09, 2020 at 02:00 PM
  #875
I showered today.

wow it was painfull. a job that should take 10/15 minits at most takes me about 45 now

that's the amount of pain I am in- even with my shower chair
drained me for the day and so then I just sat here eating chips

**** my life
 
 
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Default Oct 09, 2020 at 08:19 PM
  #876
Hey Ladies

Sorry I have been MIA .. Im getting stuck in my head I had Mri brain, US of thyroid and Mammo Wednesday , they called Thursday to tell me nothing is growing, Thank goodness my mammo was fine, I worry I lost both grand mothers to breast cancer and my Mom had many biopsies done and removed some masses.. So yeah.. I have Rhuemy appt on Monday just a follow up, I am hurting PsA and Fibro of course .. Hate it all ! and winter will probably mow down Fall. Fall is my favorite time of the year..

Liz are you okay? Nebulizing has me shaky as hell too ... But hey we gotta breathe.. Hope your feeling better.

Pfrog glad the seat helps!

Coco, Yeahhh the weather is a killer to me too, right now especially

RV im sorry showering is such a hard thing but I can so relate. I usually jump in and out quick, Sometimes the water in a shower feels like knives..

Much love to Everyone ,Gentle hugs

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Red face Oct 10, 2020 at 07:32 AM
  #877
It's good to see you anytime @~Christina ...

Glad your test results were good.

Autumn is my pfavorite season too ...

Fibromyalgia Check-In Thread #5 ...

Enjoy!

 
 
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Default Oct 11, 2020 at 09:18 AM
  #878
Pfrog, good news about the new seat!

RV, I'm sorry showers are so hard for you.

Christina, glad you got good results on tests.

This damn disorder is so weird. RV struggles with showers. They are a good send for me helping ease the pain away. A friend suffers horribly in hot weather and loves the cold. I am the opposite.

I'm not sure what's going on with the sinus infection/asthma. I stupidly did not use the nebulizer Thursday. I really hate the shaking. I know the shaking is because of the med. It's a physical reaction, but my brain registers it as the way I feel when anxious. Add to that I worked around the farm and my mom's house the last couple of days. Bottom line is I feel like poop today. Going to spend the day vegging to see if it helps.
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Red face Oct 12, 2020 at 07:05 AM
  #879
Spent my special anniversary doing a little leaf peeping yesterday ...

Fibromyalgia Check-In Thread #5 ...

The trees are just starting to put on a little show up there in the N. Georgia Mountains.

Getting around gets more and more difficult every day, so I'm hoping this wasn't my last mountain road trip, but ...

I made sure to enjoy it extra special just in case!


Last edited by Anonymous41006; Oct 12, 2020 at 10:08 AM.. Reason: Corrected A Typographical Error ...
 
 
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Default Oct 12, 2020 at 08:32 PM
  #880
Oh pfrog, how pretty! Thanks for posting the pic.
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