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Legendary Wise Elder
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~Christina
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Member Since: Jul 2011
Location: Tennessee
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#142
Oh sorry for the confusion, we went back on April. I had gone twice before years ago ... long before we ever knew each other.
I love the history and the place is gorgeous, so many things to investigate. My Husband had a fantastic time, what I love about Savannah is the trollies, we bought the 3 day deal, my husband has bad COPD and needs oxygen at night. So being able to hop on and off to get from one square to another was a huge blessing. The weather was a perfect 72-74 and no humidity. Hope your having a good day __________________ Helping others gets me out of my own head ~ |
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#143
Derp!
The confusion probably stemmed from the hour of the day and the coffee having yet to kick in. Sounds like y'all had a wonderful time! Got the lab results back and it's psoriasis not discoid lupus. Therefore, the doctor suspects psoriatic arthritis and wants me to see a rheumatologist for further investigation. I am doing well at present and hope you are too. I'll keep y'all posted as I find out more. In the meantime, I hope all of us have as many "easy" pain days as possible! |
~Christina
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Legendary Wise Elder
Community Liaison
~Christina
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Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
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12.7k hugs
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#144
Aghhh psoriatic arthritis (PsA) ( waving hands! Over here join my cool club! , errrr it’s not really a fun club)
I am glad it’s not Lupus ! PsA can be treated. Enbrel helped for 1.5 years and it really helped , then it just quit. I have a huge psoriasis skin flare and my joints were back to hurting like hell. I’m now 3 shots into Humira I have high hopes it will get things under control sooner rather than later. If you have any questions feel free to PM me. __________________ Helping others gets me out of my own head ~ |
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#145
Thank you, @~Christina, and will do!
I'm relieved it's not lupus too! And while PsA does not sound like a fun club, it does seem to have better treatment options available than lupus does! Here's looking forward to finding some relief and hopefully experience more good days than bad! |
~Christina
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lizardlady
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#146
I don't know if it's the stress of Dorian, the high pressure area that pushed it away from us or just the perversity of fibro, but I'm having a horrible flare. Everything hurts, I'm exhausted and the fog is unbelievable.
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Anonymous41006
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~Christina
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#147
Been thinking about you @lizardlady ... Sorry to hear you're having a rough go!
Maybe It could be a combination of those things and not just one or the other? Either way, chronic pain sucks - BIG! |
lizardlady
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Legendary Wise Elder
Community Liaison
~Christina
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Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
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12.7k hugs
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#148
(((((((( Liz ))))))) I hope you find relief soon
__________________ Helping others gets me out of my own head ~ |
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lizardlady
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#150
Pfrog, all I needed was a letter from my doc giving my diagnosis and what accommodations he thought I needed.
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Anonymous41006
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#151
It's just anxiety, @lizardlady ... I overthink things sometimes.
It's only four parts here ... The actual request I complete, then my employer does parts II & III (job description and duties), and my doctor does part IV. I've done my part, my supervisors (that support me & my request 100%) are working on their part, and I'm dropping part IV by my doctor's office this week. I'm also worried that if it does turn out to be psoriatic arthritis if the diagnosis is coming too late to do anything about it. We could've been treating it all this time and it not gotten to the point it is now. Kinda makes me sad, but one thing's for sure, I'm a tough cookie and shall persevere! Certainly appreciate yours and @~Christina's support too! |
lizardlady
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sarahsweets
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Member Since: Dec 2018
Location: New Jersey
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#152
So I had rotator cuff surgery on the right shoulder in March and I have to have it on the left September 20th! I injured them both at the same time but the right one was worse. I followed all the directions and I swear, it was the easiest surgery I have ever had. People had all sorts of horror stories about it but it was a cinch for me because i listened to the doc instead of playing the doc.
__________________ "I carried a watermelon?" President of the no F's given society. |
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~Christina
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#153
If this does end up being Psoriatic Arthritis (PsA), I'm wondering if the diagnosis has come too late for treatment to be of much benefit.
Been trying to piece together a timeline and I can remember noticing the first spots back in the mid 90's and wondering what they were. I was in my mid 30's at that time, had no health insurance and only went to ER if really, really sick. Of course back then I would only see one or two spots (about the size of a nickle, dime or quarter) pop up throughout the year. Then as time progressed it would be three or four going on at the same time on random locations all over my body & more frequently throught the year. The pain started about 10 years later and has progressively gotten worse since then, but I had no clue it may be connected to those spots on my skin. I'm almost 60 and the last time I can remember being relatively pain free was back when I was 48 years old! Since then it's all gone downhill so fast - especially these last 2-3 years. If it is PsA, that means I've gone nearly 25 years without diagnosis and treatment. |
lizardlady, Travelinglady
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Legendary Wise Elder
Community Liaison
~Christina
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Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
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12.7k hugs
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#154
Treatment for my PsA is to prevent further degeneration and damage.
But honestly Enbrel was offering me some decrease in pain. I hope Humira works well for me. PsA causes the inflammation rate in your body to increase from a normal range so everything is going to hurt more, at least that’s how it works for me. If my numbers are staying lower I have less PsA pain daily. Right now my rate is way up, my rheumatologist said Humira typically works faster than Enbrel does, I’m holding out hope that Humira works well. __________________ Helping others gets me out of my own head ~ |
Anonymous41006, lizardlady
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lizardlady
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#155
Just need to whinge.... I hurt and I'm exhausted....
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Anonymous41006, Travelinglady
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Legendary Wise Elder
Community Liaison
~Christina
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Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
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12.7k hugs
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#156
Gentle hugs Liz
__________________ Helping others gets me out of my own head ~ |
Anonymous41006, lizardlady
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lizardlady
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#157
Thanks for that information @~Christina, fingers x'd that the Humira works for you too.
I kept turning that exact thought over in my head yesterday that we (my treatment team and I) may not be able to do anything about the damage already done, but at least we can slow down and/or prevent further progression. I'm still a bit sad (and angry) about how my other doctor (the one that quit) could have missed all this, but then I think I don't need to feed into that because I will need all the energy I've got to battle what lies before me! Sorry you are hurting and are exhausted on top of that @lizardlady - as if the pain isn't enough! |
lizardlady
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lizardlady, ~Christina
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Legendary
lizardlady
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Member Since: Nov 2002
Location: Mid World
Posts: 17,463
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7,501 hugs
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#158
more whinging....
Pain is causing me to clench my jaws. I don't even realize I'm doing it until my jaws start to ache. The emotional side of fibro is kicking in too. My emotions are all over the board. I'm ready to cry over absolutely nothing. Gawd almighty I hate this. |
Anonymous41006, Travelinglady
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~Christina
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Legendary Wise Elder
Community Liaison
~Christina
has no updates.
Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12.7k hugs
given |
#160
I really struggle with how physically I am going downhill. Yeah I’m getting things checked out , but I think nothing will be found. So I’ll just feel like “ this” forever ??
I’m so discouraged between Bipolar PsA , Fibromyalgia and whatever the hell else is going on. Today I just give up. Maybe wonder woman will come back to you soon __________________ Helping others gets me out of my own head ~ |
Anonymous41006, lizardlady, Travelinglady
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