FAQ/Help |
Calendar |
Search |
Guest
Posts: n/a
|
#521
I'm sorry shower's hurt so bad @raging vortex ...
I miss being able to get into the tub for a hot soak. It got to where it was just to painful to get myself back up and out, and I seriously doubt I could even do that now! When it comes to taking a shower, it isn't so much the pain as how exhausted I am afterwards. The things that regular folks take for granted tend to destroy those of us that struggle with chronic pain issues. |
lizardlady, ~Christina
|
lizardlady, ~Christina
|
Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,891
11 308 hugs
given |
#522
I have been gone from PC a long time and never thought I’d return. I’m still not sure about returning. I’ll check in on this post and go from there.
__________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Anonymous41006, lizardlady, ~Christina
|
~Christina
|
Guest
Posts: n/a
|
#523
Hello, @Cocosurviving ...
Just dropped by to see how everyone is doing ... My body definitely feels like that more often than not ... Especially on days when the weather is effing everything up even more! |
Cocosurviving, lizardlady
|
childofchaos831, lizardlady
|
Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12 12.7k hugs
given |
#524
Hey Coco!!!! Nice to see you
How are you doing ? feeling any better? Feel free to Pm I'd love to catch up with you __________________ Helping others gets me out of my own head ~ |
Anonymous41006, Cocosurviving
|
Cocosurviving
|
Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12 12.7k hugs
given |
#525
O U C H
__________________ Helping others gets me out of my own head ~ |
Anonymous41006
|
Legendary
Member Since Nov 2002
Location: Mid World
Posts: 17,488
(SuperPoster!)
21 7,515 hugs
given |
#526
Coco, welcome back.
|
Anonymous41006
|
Elder
Member Since Nov 2016
Location: Texas
Posts: 5,037
7 15 hugs
given |
#527
Just stopping by... Still hurting, as usual.
__________________ Diagnoses: PTSD with Dissociative Symptoms, Borderline Personality Disorder, Generalized Anxiety Disorder, Fibromyalgia and Chronic Pain |
Anonymous41006, lizardlady
|
Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12 12.7k hugs
given |
#528
ChildofChaos I am so sorry that you are hurting But I am glad you are voicing it.. Often it helps to just be heard when we struggle with chronic pain...
I've been in a massive flare for 3 months now and I dont think it will ever ease any.. I am binge watching ER and falling in to show allows me a bit of an escape.. I also have a book series I love, Distractions .... Is there anything you can do that offers you any kind of relief even if just temporary? Sometimes a bath is nice or a shower or doing gentle stretches.. Im still looking for something to help me, If I find something else to try I will let you know so you may want to try __________________ Helping others gets me out of my own head ~ |
Anonymous41006
|
Elder
Member Since Nov 2016
Location: Texas
Posts: 5,037
7 15 hugs
given |
#529
Mostly we try to distract, like you said... We have medicine, but we don't like taking it all the time because it's an NSAID so it can cause stomach problems. However, thinking we're going to take it tonight. With our muscle relaxer.
__________________ Diagnoses: PTSD with Dissociative Symptoms, Borderline Personality Disorder, Generalized Anxiety Disorder, Fibromyalgia and Chronic Pain |
Anonymous41006, ~Christina
|
~Christina
|
Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12 12.7k hugs
given |
#530
ChildOf Chaos. I hope that you found some relief and got some much needed sleep
__________________ Helping others gets me out of my own head ~ |
Anonymous41006
|
Guest
Posts: n/a
|
#531
Happy Pfriday To My Chronic Pain Pals!
Yesterday's storm chasing venture yielded ... I captured that shot at Smithonia, Georgia. More info on Smithonia available here: Smithona Farm | History Watson Mill Bridge State Park, home of the longest covered bridge in the state of Georgia, was also a part of yesterday's chase ... I'm rather pleased with the results and hope y'all enjoy them too! |
~Christina
|
~Christina
|
Legendary
Member Since Nov 2002
Location: Mid World
Posts: 17,488
(SuperPoster!)
21 7,515 hugs
given |
#532
Thanks for the vids Pfrog. Love the bridge! Have you heard anything more about going back to work?
|
Anonymous41006
|
Guest
Posts: n/a
|
#533
Thanks, @lizardlady!
That bright bubble that's falling near the beginning of the first video is a raindrop! Haven't heard anything about work yet. Phase 1 of reopening starts on 06/15, but that's for the movers and shakers. We've been instructed to not come to campus until explicitly told to do so which could be another month or so off. Maybe I'll be one of the last ones called or even be assigned to work from home a little longer. I have consistently proven to be responsible with that! As soon as I hear something I'll let y'all know ... How have you been doing lately? |
~Christina
|
Legendary
Member Since Nov 2002
Location: Mid World
Posts: 17,488
(SuperPoster!)
21 7,515 hugs
given |
#534
Sounds like your employer is being very sensible about taking care of y'all.
In terms of fibro I'm doing okay. In other areas I'm not doing so great. I don't like the way I've gotten to be - negative, judgemental, angry a lot of the time, depressed and cutting myself off from the world. I know it's all a reaction to what's going on in the world. My coping skills are overwhelmed. I know I need to change my thinking. I know the things I ought to be doing to feel better. I just don't have it in me to do those things. |
Anonymous41006, ~Christina
|
~Christina
|
Guest
Posts: n/a
|
#535
I hear you @lizardlady ...
It is sometimes just too much! Try to be extra patient, gentle & kind with yourself (even though that can be hard too)! |
lizardlady, ~Christina
|
lizardlady, ~Christina
|
Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,891
11 308 hugs
given |
#536
Thank you all for the responses. I’ve been gone so long I can’t remember how to work the features. Lol
I’m still in Oklahoma right now. Yesterday was really stressful because I was sent messages about fires in Nashville. I’m oldest son and I have other family in Nashville too. It took a while before I was able to reach some of them. All the situations that are unfolding further prevent me and my teenage daughter from being able to return to Nashville. With the many autoimmune illnesses that I have it was actually recommended I no longer live in Oklahoma because of the environmental toxins. Also this state lacks a lot of resources and getting into see specialists take months. I messaged one of my best friends that workers at Vanderbilt Medical Center. I was having an emotional moment. May 31st, 2012 was the last day I worked. I was just so flooded with memories and how my life has changed. Thinking about all the medical mismanagement, medical redlining and medical gaslighting. Over the last two years I have had all my medical records and labs mailed from Nashville, Tennessee to Oklahoma. I was seeking answers and I was not ready for the outcome. The healthcare field let me down and many others. My medical records and labs clearly had indicators of the multiple chronic illnesses that it took me years to get correctly diagnosed with. Which the lack of “correct” treatment exacerbated my symptoms. It has been a wild roller coaster 🎢 many days filled with tears, frustration, depression and exhaustion. Many, many hospital and urgent care trips. I had to learn to seek my information to research from whoever had it regardless of the state or country they lived in. __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Anonymous41006, lizardlady, ~Christina
|
~Christina
|
Legendary
Member Since Nov 2002
Location: Mid World
Posts: 17,488
(SuperPoster!)
21 7,515 hugs
given |
#537
Coco, I believe many here can relate to it taking years to get the correct diagnosis. I've probably had fibro and CFS most of my life, but was in mid40s when finally diagnosed.
|
Anonymous41006
|
~Christina
|
Legendary
Member Since Nov 2002
Location: Mid World
Posts: 17,488
(SuperPoster!)
21 7,515 hugs
given |
#538
Spent Sunday climbing up and down ladders finishing painting Mom's house. My left knee was kind of cranky yesterday. It is blown up like a balloon and hurts like hades today. Whine, whine, whine...
|
Anonymous41006
|
Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
12 12.7k hugs
given |
#539
Coco... Yeah Nashville has alot of shyt going on as does the whole nation. Things just have to change
I am so glad that you finally got some much needed answers to explain what was really going on with you __________________ Helping others gets me out of my own head ~ |
Anonymous41006
|
Guest
Posts: n/a
|
#540
I am surprised with how little pain I am in, seeing as it is now thursday and I'm still doing quite good
usually by now I ache like hell I am thankful to the fibro gods or who ever is making it easy on me |
Anonymous41006, lizardlady
|
Closed Thread |
|