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~Christina
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Default Jun 06, 2020 at 02:07 AM
  #541
I saw my Doctor last week for annual exam.

I have been on Flexiril for probably 11-12 years? I honestly dont think it was helping anything. I asked about Baclofen 10 mg... I can take it up to 4 times a day... I have a friend that it was a huge help but had breathing issues so she had to stop. I am so hoping that it will help me. I also want to give Metformin another try I do not have diabetes, But it can help losing psych med weight gain..

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Exclamation Jun 12, 2020 at 05:13 AM
  #542
I hope the Baclofen helps @~Christina, and gentle hugs to you too ...

I posted this at another thread here earlier this week, but I think it fits here too.

Fibromyalgia Check-In Thread #5 ...

The bewildered expression on the face of that bear as he watches his body disintegrating right before his very eyes!

It captures so much of what I'm feeling but often can't find the words to express!

 
 
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Default Jun 12, 2020 at 07:32 PM
  #543
that fits 100% Pfrog

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Default Jun 16, 2020 at 09:29 AM
  #544
struggling a lot with pain this week

this afternoon I watched an australian drama on tv, and it just felt good to be doing absolutely nothing- just watching the show

I mean: it would have been even nicer if I could relax, but like that was going to happen: relaxation just doesn't happen for me
 
 
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Default Jun 17, 2020 at 02:47 AM
  #545
I quit taking that Meloxicam ...

There isn't enough water in the Mississippi River to pfix how dried out (dehydrated) it was making me!

 
 
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Default Jun 17, 2020 at 03:48 AM
  #546
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Originally Posted by Pfrog View Post
I quit taking that Meloxicam ...

There isn't enough water in the Mississippi River to pfix how dried out (dehydrated) it was making me!



not fun.

I hate dry mouth...
 
 
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Default Jun 19, 2020 at 04:26 AM
  #547
I feel like my life is virtually over.

last night I found out that my online support group for incontinence sufferers was closing, meaning that I have lost over 90 percent of my friends (most of my friends I made through that group), and I am now back to a laughing stock- rather than having people that understand what I go through, people look at me now and are like.. wow, really?. that's gross!. and I'm actually feeling really bitter about it I just want to lie their and smell. but I showered today (even though it caused me great pain), and I had a fresh fruit salad- which like I've said before I try to eat more to have a healthy start to the day. but I am doing nothing today, I have no plans, and I generally feel like a big part of my life has just been ripped away
 
 
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Default Jun 19, 2020 at 10:26 AM
  #548
I'm sorry you lost your group support, @raging vortex ...

A lot of people just don't understand how badly these kinds of losses impact other human beings.

And to make fun of those suffering incontinent issues is a disgrace!

It's just plain cruel and has no place in society.

Sadly society just doesn't seem to give a damn anymore!

 
 
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Red face Jun 19, 2020 at 11:11 AM
  #549
An update on my work situation ...

Spoke with the Good Egg today, and he's still on it. We also talked about the disability process a little bit in case the other doesn't work out.

I really hope the other does work out as I really don't want to lose my retirement less than a year away from being vested.



And, here's a little humor because sometimes a little humor helps ...

Fibromyalgia Check-In Thread #5 ...
 
 
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Default Jun 19, 2020 at 01:53 PM
  #550
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Originally Posted by Pfrog View Post
I'm sorry you lost your group support, @raging vortex ...

A lot of people just don't understand how badly these kinds of losses impact other human beings.

And to make fun of those suffering incontinent issues is a disgrace!

It's just plain cruel and has no place in society.

Sadly society just doesn't seem to give a damn anymore!



I couldn't agree more, frog.

thank you for your post. it means a lot

still feeling I don't really belong anywhere, but that's only because of how much that group meant to me
 
 
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Default Jun 23, 2020 at 04:10 AM
  #551
I feel like I am doing too much even though I'm not (I am barely doing anything)

I think it's the heat making the pain bad. heat and my pain never mixed well together
 
 
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Default Jun 23, 2020 at 07:08 PM
  #552
Pfrog, thanks for the humor. I needed a chuckle.

RV, I'm sorry you are losing your support group. Is there some place on the web where y'all could continue to meet? Maybe invite your friends to join PC?
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Default Jun 23, 2020 at 07:14 PM
  #553
Have any of you ever heard the period between flares referred to as being in remission? I was reading an article about fibro that used the term. It struck me as odd. I looked up the definition of the word "a disappearance of signs or symptoms of a disease". I suppose that could be true, but my symptoms never totally go away. I tend to think more in terms of symptoms flaring and fading.
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Default Jun 23, 2020 at 07:18 PM
  #554
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I feel like I am doing too much even though I'm not (I am barely doing anything)

I think it's the heat making the pain bad. heat and my pain never mixed well together
RV, I have a friend with fibro who suffers with the heat. I'm the opposite. Cold dang near kills me, but I love the heat. After all, I are a lizard! I joke that I'm solar powered. I will go outside and stand in the sun with my arms stretched out soaking up the Ray's.

I'm sorry the heat is making you miserable. :sad:
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Red face Jun 24, 2020 at 04:37 AM
  #555
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Have any of you ever heard the period between flares referred to as being in remission? I was reading an article about fibro that used the term. It struck me as odd. I looked up the definition of the word "a disappearance of signs or symptoms of a disease". I suppose that could be true, but my symptoms never totally go away. I tend to think more in terms of symptoms flaring and fading.
I find "remission" an odd description as well, @lizardlady.

I've often likened mine to being in a vice-grip.

Clamping down then letting loose.

Flare & Fade ... Squeeze & Ease ...

Way more accurate than all that medical mumbo-jumbo the "experts" use IMHO!

 
 
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Default Jun 24, 2020 at 08:37 AM
  #556
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Have any of you ever heard the period between flares referred to as being in remission? I was reading an article about fibro that used the term. It struck me as odd. I looked up the definition of the word "a disappearance of signs or symptoms of a disease". I suppose that could be true, but my symptoms never totally go away. I tend to think more in terms of symptoms flaring and fading.


it makes me think of cancer, so I tend not to use it
 
 
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Default Jun 24, 2020 at 08:41 AM
  #557
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Originally Posted by lizardlady View Post
Pfrog, thanks for the humor. I needed a chuckle.

RV, I'm sorry you are losing your support group. Is there some place on the web where y'all could continue to meet? Maybe invite your friends to join PC?


my plan is to start a thread in the women focused support to gage interest in a social group, then I'm thinking about creating one here on this site. sadly, my old support group members never wanted to share their contact outside the group (which I suppose is fair enough). I have looked for other places, but the 2 comunities I've found are extremely dead (one of them even stopped with having other moderators around, and just anything is posted on topic or not)
 
 
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~Christina
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Default Jun 24, 2020 at 08:36 PM
  #558
Hiya Ladies

I do not get "remissions" My pain is always stupid but a 6.5-7 I muddle through but when it hits 8 and climbing. Argh ! Its impossible to breath deep. The ONLY time I have ever had a steady decrease in pain and hovered at about a 4 was while doing the Lidocaine infusions .. Oh I miss that. It truly was a miracle. Oh course the trial was ended years ago.. But No one was making enough money to make it worth there while. My copay weekly was 32.00

Im down to the last couple days of Steroids for this Bronchitits and Asthma flare.. So literally no sleep for 2 weeks now, My Husband was in the hospital, Honestly when I dropped him at the hospital ER door I wasnt sure I would see him alive again. So more health problems, Diabetes type II ... but hes home, Safer at home that to be there and a chance to catch COVID or some other shyt per the Hospital Doctor.

So pain is ugly ! Its hot muggy miserable and I had to put a bra on today, go to town for phone T session and pick up a med at Hellmart

Liz........ I know you like the heat but I saw the heat advisory for the next few days Becareful and hydrate ! My Daughter is keeping herself inside and plans to hop in and out of the shower for days ..

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Default Jun 24, 2020 at 08:57 PM
  #559
Christina, I had to put on a bra today for the first time in weeks. Hateful things aren't they?

I will be careful about the heat. When I went out to feed the horses it was 99 degrees inside the barn, in the shade!

I don't think of fibro in terms of remission either. I think of it more in terms of flares.
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Exclamation Jun 25, 2020 at 03:29 AM
  #560
Supposed to go have physical Monday.

Got a new PCP and everything.

Also very anxious about Covid-19 exposure because cases are jumpin' higher than a grasshopper on hot pavement in our area.

So .....

Most likely gonna cancel!

 
 
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