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Snap66
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#1
If someone says "for those who have or want to understand the disorder better" I will loose my banana's!
idk what to do. I'm so annoyed with the lack of care. Sorry to put it that way. I do understand that everyone is volunteers etc, but the problem still remains and I'm pissed off that my Personality disorder is discredited with every non-avpd post. Look at the posts, go back as far as you like and you will be hard pressed to find a post written by and replied to by Avies only. You will find plenty of Avoiding stories or my recent favourite "illusions" but none of that. NONE is applicable to AvPD. Another problem is people who come to learn about AvPD for a family member or someone who is new to the disorder reads the forum and is confused even more. The family treats the person according to what they believe to be true...bc its in the AvPD forum after all. The advice/Information that they receive will come from those without the disorder None of that is helpful, and if the person asks a follow up question good chance that the individual will be confused even more. The individual needs to be able to identify and if they can't identify with a non-avie the circle of confusion continues to spin ... and as a selfish thing Avies need a place especially if it has AvPD written on the door. It's like people don't care all they care about is posting their non-avpd story bc it has the word Avoiding in it, and I'm starting to think the forum doesn't care every time I see another a non-AvPD story. All that seems to matter is if the people are polite with their post.... but, then what's the point of the sub forum, what the point of having a AvPD forum? my original question. I can't go on the women's forum and post something...even if I do it politely!! (male) I cant post in the self injury forum if i accidently cut myself shaving for fear of possibly triggering someone. (I don't cut and I'm not that disrespectful.) So why isn't the same respect shown to those with AvPD? Yes, I'm that upset and figured this is the best way to handle it....hopefully. __________________ Diagnosed: AvPD. It’s never alright. It comes and it goes. It’s always around, even when it don’t show. They say it gets better. well I guess that it might. But even when it’s better, it’s never alright. |
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seesaw
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#2
I'm not sure what you want? You want the sub forum to only be for people with official diagnoses to post? What I have seen on that sub-forum is that if you don't have an official diagnosis of AvPD, then you get ignored or roasted by those who do. No one has been open to answering questions. So others who want to offer support, regardless of Dx, do. You don't have to be bipolar to post in the bipolar sub, and so on. There are only a few subs where you have to be in that demographic to post, and they are not based on Dx.
__________________ What if I fall? Oh, my dear, but what if you fly? Primary Dx: C-PTSD and Severe Chronic Treatment Resistant Major Depressive Disorder Secondary Dx: Generalized Anxiety Disorder with mild Agoraphobia. Meds I've tried: Prozac, Zoloft, Celexa, Effexor, Remeron, Elavil, Wellbutrin, Risperidone, Abilify, Prazosin, Paxil, Trazadone, Tramadol, Topomax, Xanax, Propranolol, Valium, Visteril, Vraylar, Selinor, Clonopin, Ambien Treatments I've done: CBT, DBT, Transcranial Magnetic Stimulation (TMS), Talk therapy, psychotherapy, exercise, diet, sleeping more, sleeping less... |
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Snap66
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#3
...why would I post in the bipolar forum if I don't have bipolar?
Why would someone post in the AvPD forum is they don't have AvPD? If you asked me a question on the AvPD forum how could I answer you? I don't have:- Primary Dx: C-PTSD and Severe Chronic Treatment Resistant Major Depressive Disorder Secondary Dx: Generalized Anxiety Disorder with mild Agoraphobia. So you might feel ignored however if we happen to answer your question according to our PD thereis good chance that you might snap back or ignore us in return bc what we had to say isn't in keeping with your dx. See it's a balance thing for us where if we're talking to an Avie we understand them making us a little more confident in replying, plus we can back up our answers bc we share similar headspaces and experiences. If I answered one of your question on some other PD forum and you wanted more information, I'm going to look stupid and therefore I will be pulled apart emotionally by Avie. You might not snap back at us, but we don't know that bc we're talking from different PD perspectives. Thanks for replying Seesaw. __________________ Diagnosed: AvPD. It’s never alright. It comes and it goes. It’s always around, even when it don’t show. They say it gets better. well I guess that it might. But even when it’s better, it’s never alright. |
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seesaw
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#4
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And FYI, what you quoted is what I've chosen to share. Dont believe you know everything about someone and what they may or may not be diagnosed with. And you know, anyone could say they have a Dx. How are you going to verify that everyone who goes in there has that Dx? And again, even when people are searching for answers the people who are Dx'd ignore them. People might post or respond to a post in those forums bc they see that someone isnt getting any responses and want them to know they arent going unheard. And yet I still dont know what it is that you are asking for. That only people who have the official Dx post there? That's not the intent of the forum. If you want to create a private social group then you can exclude whomever you want, I suppose, but none of the sub forums are exclusive here except the ones based on gender and age, none based on Dx. You still havent clarified exactly what you are asking for. __________________ What if I fall? Oh, my dear, but what if you fly? Primary Dx: C-PTSD and Severe Chronic Treatment Resistant Major Depressive Disorder Secondary Dx: Generalized Anxiety Disorder with mild Agoraphobia. Meds I've tried: Prozac, Zoloft, Celexa, Effexor, Remeron, Elavil, Wellbutrin, Risperidone, Abilify, Prazosin, Paxil, Trazadone, Tramadol, Topomax, Xanax, Propranolol, Valium, Visteril, Vraylar, Selinor, Clonopin, Ambien Treatments I've done: CBT, DBT, Transcranial Magnetic Stimulation (TMS), Talk therapy, psychotherapy, exercise, diet, sleeping more, sleeping less... |
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Snap66
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#5
This is from my opening post.... maybe you missed it?
Another problem is people who come to learn about AvPD for a family member or someone who is new to the disorder reads the forum and is confused even more. The family treats the person according to what they believe to be true...bc its in the AvPD forum after all. The advice/Information that they receive will come from those without the disorder None of that is helpful, and if the person asks a follow up question good chance that the individual will be confused even more. The individual needs to be able to identify and if they can't identify with a non-avie the circle of confusion continues to spin. If you think I'm snapping at you, you have read this with anger to begin with... That also makes me think that you're being argumentive to begin with? I'm asking for help/advice, I'm just putting it out there that there is a problem that has gone over looked You're welcome to post there, go for it! Just take into account the source when it comes to AvPD information and if you push us out any information given with come from those without the disorder rending any info useless. Any information given will come from those without the disorder making it a guess and worthless.. basically lip service. Which would be quite sad for someone newly dx or if they weren't but needed some information or if they just needed to identify first with an Avie to feel safe before they post. (Avies aren't like others who can fill the forum with countless posts ) The forum should be for those who have the same personality, hence the reason it has AvPD on the door, plus it would stop all of this from happening, reinforcing a point __________________ Diagnosed: AvPD. It’s never alright. It comes and it goes. It’s always around, even when it don’t show. They say it gets better. well I guess that it might. But even when it’s better, it’s never alright. |
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#6
Hey @Snap66 just so I understand... are you saying that not enough people with AVPD post there? Or that too many without AVPD post there?
__________________ "I carried a watermelon?" President of the no F's given society. |
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seesaw
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#7
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I didnt miss that from your previous post. You r post jumps around and is unclear. You are still avoiding the question of what exactly you think it should be. So there should be a requirement that someone shows medical records with a Dx to post there? That means people who have questions cant ask them either. __________________ What if I fall? Oh, my dear, but what if you fly? Primary Dx: C-PTSD and Severe Chronic Treatment Resistant Major Depressive Disorder Secondary Dx: Generalized Anxiety Disorder with mild Agoraphobia. Meds I've tried: Prozac, Zoloft, Celexa, Effexor, Remeron, Elavil, Wellbutrin, Risperidone, Abilify, Prazosin, Paxil, Trazadone, Tramadol, Topomax, Xanax, Propranolol, Valium, Visteril, Vraylar, Selinor, Clonopin, Ambien Treatments I've done: CBT, DBT, Transcranial Magnetic Stimulation (TMS), Talk therapy, psychotherapy, exercise, diet, sleeping more, sleeping less... |
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Snap66
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#8
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People ignore the fact that it's a personality disorder. They brush clean over that with their only focus on a story that contains the word Avoiding-avoidant or avoid. That's basically discrediting those who have AvPD, belittling us. We don't hold ourselves with high esteem to begin with, so how you think we feel when we see that our PD is viewed as nothing. . __________________ Diagnosed: AvPD. It’s never alright. It comes and it goes. It’s always around, even when it don’t show. They say it gets better. well I guess that it might. But even when it’s better, it’s never alright. |
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#9
Hi Snap, while I appreciate hearing your perspective -- and in an ideal world, I would agree with you -- our community doesn't require a person to have a specific disorder in order to post to a specific forum. We'd have no way of policing such a policy, so we don't have one like that.
I hear your frustration, though, and empathize. I wish we had more people with every disorder we cover in each group, but we can only work with the people who find us... __________________ Don't throw away your shot. |
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Snap66
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#10
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Perhaps a drop down or a sticky that brings it to the attention that it is a Personality disorder and not a place to run to with your Avoidant stories. What I mean by avoidant stories is if someone has avoided a person/place or situation they automatically run here to post. They don't post bc its AvPD related... they post bc there only bc they know the forum as Avoidance,. They ignore /forget or don't care that its a Personality disorder forum...and their is a huge difference between Avoiding and AvPD. People can post there but the mods should also be in on it to remove any posts if them deem misplaced to this forum such as... "illusions that others can hear my thoughts" Avies as factual people... things like this have no bearing on AvPD and should have been moved else where long ago, but no here it still sits even after I brought it to the attention on a moderator. __________________ Diagnosed: AvPD. It’s never alright. It comes and it goes. It’s always around, even when it don’t show. They say it gets better. well I guess that it might. But even when it’s better, it’s never alright. |
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seesaw
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#11
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Perhaps as an analogy: when people say they are triggered and really they are just upset by something. It's not the same as being triggered and having PTSD, which means I'm having a panic attack or flashback or other PTSD related reaction. That's like people coming on the AvPD forum for avoidance issues versus for AvPD. That makes sense, and I'd support a sticky that makes that distinction. __________________ What if I fall? Oh, my dear, but what if you fly? Primary Dx: C-PTSD and Severe Chronic Treatment Resistant Major Depressive Disorder Secondary Dx: Generalized Anxiety Disorder with mild Agoraphobia. Meds I've tried: Prozac, Zoloft, Celexa, Effexor, Remeron, Elavil, Wellbutrin, Risperidone, Abilify, Prazosin, Paxil, Trazadone, Tramadol, Topomax, Xanax, Propranolol, Valium, Visteril, Vraylar, Selinor, Clonopin, Ambien Treatments I've done: CBT, DBT, Transcranial Magnetic Stimulation (TMS), Talk therapy, psychotherapy, exercise, diet, sleeping more, sleeping less... |
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Snap66
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Snap66
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#12
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Absolutely. Their panic attack cannot be measured the same as PTSD bc we are talking about two different ignition sources. I might have said that wrong but hopefully you get the gist of it. People withdraw and avoid bc of Depression too. If a person is diagnosed with Depression then their avoiding story will be better received and answered by those who share disorder simply bc those people will recognise, understand the pain in themselves making them better equipped to give personal and helpful advice. Just an example AvPD is rare....and everyone avoids a person , place or situation, If "avoiding was avoiding" then everyone would have AvPD. HUGE Thanks for understanding Seesaw Hopefully a mod who reads this thread can make a ruling either way? __________________ Diagnosed: AvPD. It’s never alright. It comes and it goes. It’s always around, even when it don’t show. They say it gets better. well I guess that it might. But even when it’s better, it’s never alright. |
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Snap66
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#13
Sorry Dr John, I just saw your post.
Can a sticky or some kind of drop down be used bringing some kind of attention to the nature of the forum? __________________ Diagnosed: AvPD. It’s never alright. It comes and it goes. It’s always around, even when it don’t show. They say it gets better. well I guess that it might. But even when it’s better, it’s never alright. |
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#14
Thanks for the suggestion --- Done!
__________________ Don't throw away your shot. |
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Snap66
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#15
Welcome to the online world!
__________________ Social Anxiety and Depression. Cluster C traits. Trying to improve my English. My apologies for errors and mistakes in advance. Mankind is complex: Make deserts blossom and lakes die. ( GIL SCOTT-HERSON) Last edited by AzulOscuro; Feb 10, 2020 at 12:11 AM.. |
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#16
I’m sorry. I was very rude up there.
I’m with you, indeed. I think people should be very responsible of what they write and where they write, even online, when we have our faces safe. __________________ Social Anxiety and Depression. Cluster C traits. Trying to improve my English. My apologies for errors and mistakes in advance. Mankind is complex: Make deserts blossom and lakes die. ( GIL SCOTT-HERSON) |
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#17
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