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JanePleet
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Default Jul 30, 2018 at 06:46 AM
  #1
Several very traditional psychiatrists and psychologists have diagnosed me with generalized anxiety, panic disorder, major depressive disorder, PTSD, and BPD. At first, when I was diagnosed with BPD, I was relieved to just have a diagnosis finally because my doctors didn’t know what to do with me and none of the IOPs or other programs/treatments were helping at all.

Then most people I dealt with in the medical field, even just primary care providers, started treating me differently. When they saw that diagnosis I became viewed as a problem patient. My husband even treated me differently at first because he read “Walking on Eggshells” and began acting like I was constantly trying to manipulate him. We wound up separated and in counseling for a year over this.

And, after doing a few years now of research, the BPD diagnosis just seems like a huge umbrella diagnosis originally for “difficult” women that pretty much anyone can be given. When I was last hospitalized, most patients whom I asked why they were there either knew, or said “They’re not sure yet...” and the next day they’d tell me they “found out” they have been dealing with BPD.

It’s too easy for doctors and way too difficult for patients. The set of symptoms in the DSM for BPD are too broad. I have found Pete Walker’s book on C-PTSD much more relatable and less stigmatizing.

Why isn’t C-PTSD in the DSM yet, and has anyone else dealt with being misdiagnosed/having C-PTSD confused for BPD by a mental health professional? Any other advice is more than welcome. C-PTSD/BPD/whatever-this-is has really, truly ruined my life. I don’t know what to do with it anymore.
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Default Aug 05, 2018 at 12:19 PM
  #2
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Originally Posted by JanePleet View Post
Several very traditional psychiatrists and psychologists have diagnosed me with generalized anxiety, panic disorder, major depressive disorder, PTSD, and BPD. At first, when I was diagnosed with BPD, I was relieved to just have a diagnosis finally because my doctors didn’t know what to do with me and none of the IOPs or other programs/treatments were helping at all.

Then most people I dealt with in the medical field, even just primary care providers, started treating me differently. When they saw that diagnosis I became viewed as a problem patient. My husband even treated me differently at first because he read “Walking on Eggshells” and began acting like I was constantly trying to manipulate him. We wound up separated and in counseling for a year over this.

And, after doing a few years now of research, the BPD diagnosis just seems like a huge umbrella diagnosis originally for “difficult” women that pretty much anyone can be given. When I was last hospitalized, most patients whom I asked why they were there either knew, or said “They’re not sure yet...” and the next day they’d tell me they “found out” they have been dealing with BPD.

It’s too easy for doctors and way too difficult for patients. The set of symptoms in the DSM for BPD are too broad. I have found Pete Walker’s book on C-PTSD much more relatable and less stigmatizing.

Why isn’t C-PTSD in the DSM yet, and has anyone else dealt with being misdiagnosed/having C-PTSD confused for BPD by a mental health professional?
Any other advice is more than welcome. C-PTSD/BPD/whatever-this-is has really, truly ruined my life. I don’t know what to do with it anymore.
Hi,

I relate 100% with you about C-PTSD. A lot of theories exist surrounding the closed door meetings of the A.P.A. and the Diagnostic and Statistical Manual. C-PTSD SHOULD definitely be added. Professionals from all around the world have admitted there is a need for the diagnosis and that BPD has become riddled with issues. It is common for C-PTSD and BPD to have co-morbidity because (arguably) both stem from trauma. That is why the symptoms are so similar.

I have been diagnosed with BPD, however, I certainly relate more to all the literature about C-PTSD, especially Pete Walkers book.

I am a member of a C-PTSD group and the facilitator is EXTREMELY well versed and has spent countless hours researching and reading all the literature he can get his hands on. He has apparently spoken to leading researchers and several "Professionals" who agree that C-PTSD should be included in the DSM. His take is that nearly all the diagnosis in the DSM could be explained through a trauma background and that could potentially rid of a lot of existing diagnosis as well as the treatment modalities and medications that are designed to treat them. Pharmaceuticals is a massive industry and unfortunately the DSM and the entire medical profession is bullied and influenced by it. If they were to include C-PTSD, he believes that it would cause major issues in the "Professional" community because they would actually help people. Lol. It would mean people would look at mental health issues within the trauma framework versus the chemical imbalance framework and thus, they would actually get to the core of their problems instead of making billions of dollars masking the problem with drugs and ineffective therapies.

Something to think about.

Ultimately, I definitely relate more to C-PTSD than BPD and we know ourselves best. Professionals are limited by what we tell them and by what they observe. This is problematic because it is only a fraction of our lives. How could they possibly know for sure if we have BPD or C-PTSD if they are not with us day in and day out? Not to mention they are basing their findings on a foundation of knowledge that is constantly changing due to paradigm shifts and research. Their profession is infant and new. We place so much emphasis on what the professionals say yet their own knowledge is based in fallacy and conflicts of interest, contradiction and absolutely zero credibility. I bet you 50 years from now the profession will look back and realize how abusive current day treatments are. We can do that right now if we look back at how they treated mentally ill 50 years from today. Hell, currently it is abusive!!! Therapy is a very dangerous environment. The power imbalance between professional and patient is extraordinarily dangerous and hazardous. I am surprised the profession still exists.

Thanks,
HD7970ghz

I believe there is a lot to this and I know the A.P.A. is corrupt.

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Default Aug 05, 2018 at 02:15 PM
  #3
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Originally Posted by JanePleet View Post
Why isn’t C-PTSD in the DSM yet, and has anyone else dealt with being misdiagnosed/having C-PTSD confused for BPD by a mental health professional? Any other advice is more than welcome. C-PTSD/BPD/whatever-this-is has really, truly ruined my life. I don’t know what to do with it anymore.
it is in the DSM 5 just not called that direct label...

short version there are many countries around the world that call the same thing by different names.

here in america we have a much more individualized mental health system since may 2013.

the first part of this change over was taking everything that other countries call CPTSD and adding those symptoms to many different mental disorders.

this prevents people from just getting thrown into a catch all diagnosis. A person actually has to meet specific diagnostics. not everyone with CPTSD has the same combination and severity. by having a much more individualized and specific diagnostic process here in america more people are able to get better treatment and more treatment options are open to them.

example...

my CPTSD is called Acute Stress Disorder.
my siblings CPTSD is called PTSD
A child relative's CPTSD is called Reactive Attachment Disorder
another person that I know their CPTSD is called OSTSRD (this also includes a list of disorders a person gets labeled as and told about when they are diagnosed this, the actual disorder labels can not be found online)

my point is just because you dont see the ...........name.............CPTSD in the dsm5, does not mean america does not have that ..........disorder. we do its just called other things based on each persons own individual list and severity of symptoms.

if you would like to know what your CPTSD diagnosis transfers over to in the more updated standards contact your treatment providers. they will be able to evaluate your situation then tell you what your CPTSD is now called in the DSM 5.
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Default Aug 06, 2018 at 01:07 AM
  #4
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Originally Posted by amandalouise View Post
it is in the DSM 5 just not called that direct label..
The problem with these other labels you've listed is that, with the exception of RAD, which is only diagnosed in children, they fail to address the particular effects of chronic interpersonal trauma. There is a great deal of difference between the way trauma manifests in someone who was beaten daily throughout childhood versus, say, an adult who was mugged. Currently, those who have suffered extensive developmental trauma and consequently have interpersonal difficulties are typically given personality disorder diagnoses. This is problematic for many reasons, not the least of which is the lack of effective therapies for said "personality disorders." We need to do a significantly better job treating these issues. Whether CPTSD, Developmental Trauma Disorder, or some other designation, creating a clearly delineated category for those affected by chronic interpersonal trauma would be a start.
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Default Aug 06, 2018 at 02:30 AM
  #5
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Originally Posted by JanePleet View Post

And, after doing a few years now of research, the BPD diagnosis just seems like a huge umbrella diagnosis originally for “difficult” women that pretty much anyone can be given.
Yes - this has always been my major concern with the 'diagnosis' - there is a huge amount of sexist, controlling and judgemental baggage surrounding the history of women's mental health, going right back to the old 'hysteria/conversion disorder' and I think it's a legitimate concern that BPD is overused as a modern form of the old 'hysteria' label (the 'manipulative' slur particularly angers me).

I think C-PTSD will be in the next DSM (possibly under another name as I think there is some confusion with PTSD that needs addressing) - certainly my own psychiatrist is lobbying for this and agrees with me about the gender bias around over applied BPD diagnoses, more should do so to get change. Psychiatry as a discipline is still in the middle ages in many ways.
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