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Old 06-18-2019, 03:56 PM   #11
tevelygo
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Default Re: Anyone have Traumatic Amnesia and Severe Chronic Fatigue from CPTSD?

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Originally Posted by seesaw View Post
Yes, I have had a lot of trouble with my memory, but through journaling and other techniques I have regained a lot of memories that I had pushed away. I know this isn't possible for everyone. There's a lot that I just don't remember though. Then there are distinctly things that I do.

Regarding chronic fatigue, YES. I've struggled with this for a long time. I'm sure you struggle with insomnia or some form of sleep disorder (most of us with cPTSD have some trouble with sleep), so the chronic fatigue isn't just from the immense amount of adrenaline we are always pumping, but also from the utter lack of real rest that we get.

I practice super vigilant sleep hygiene and also have been very strict with my diet and physical activity to try and gain control over chronic fatigue. I've managed to build up my stamina over time, but there are days when I can't overcome the fatigue. I also suffer from sleep paralysis and other symptoms that point to narcolepsy, although I have yet to do the sleep study. I'm sort of refraining because I'm not interested in the medications for narcolepsy and I've been using the holistic management programs I've read about (including sleep hygiene, diet management, and physical activity - not working out, just activity) to try and manage my sleep cycles and improve my sleep quality as well as manage excessive daytime sleepiness (EDS).

It sort of sucks that I have to manage my diet so closely and cut so much "fun" stuff out, but I'd rather enjoy my existence and not feel like I'm asleep all the time than have fried chicken.

Every one experiences these symptoms in different ways and our "systems", I mean our bodies, all respond differently, so what has helped me may not help you. I assure what I used to experience was very severe and it has taken years to get these improvements, so it's not just like I flipped a switch and figured it out. I think sometimes it sounds like I just decided to change things and it worked. I've struggled with this for years, and sometimes it still doesn't work but mostly it does.

I know there are meds you can take but I have problems with medications so I try to avoid them at all costs.

Hope this helps! Happy to answer any specific questions on what I do.

Seesaw


Did the narcolepsy start after you started working harder?



Just because whenever I try to work full time I get too bad symptoms (EXTREME) and so I think it would really jeopardise my health severely if I kept pushing that


I had to give it up once already last year because of that and I'm having to again






I so ****ing hate to wait wait wait like forever (already long years) but my other option is kill myself or maim myself permanently (with permanent physical problems) if trying too hard ???
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Old 08-13-2019, 04:04 PM   #12
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Default Re: Anyone have Traumatic Amnesia and Severe Chronic Fatigue from CPTSD?

This thread completely slipped my mind. I lose track of time and my brain lapses, unfortunately.

I am bumping it up and will respond tomorrow when my brain is better rested.
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Old 08-13-2019, 06:14 PM   #13
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Default Re: Anyone have Traumatic Amnesia and Severe Chronic Fatigue from CPTSD?

I'm pretty-much always worn out. Part of it is just age. But it's also a lot about the amount of effort it takes trying to keep myself in line. As I age I'm gradually losing more-&-more of my memories... can't wait until they're all gone entirely…
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Old 08-14-2019, 02:58 AM   #14
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Default Re: Anyone have Traumatic Amnesia and Severe Chronic Fatigue from CPTSD?

I know I have ptsd from childhood trauma, I do not know much about cptsd or how to get that diagnosis? Can anyone share? I do not suffer from fatigue to often unless my autoimmune disease, sjogrens kicks it up. My child hood is full of big holes. I can start thinking about a memory and if something bad happened to me in that memory it stops- ends right before that part of the memory goes any farther. I do remember a lot of the trauma but I also have blocked it away. I am sure I should have had therapy to deal with that but I am terrified it will break me so it stays locked up in deep memory and I guess I am ok with that. This doesnt all apply to the trauma I experienced as a child. The trauma I lived through being an active alcoholic and what chaos I put my babies and poor husband through. Every now and again I can find that space to revist it and it makes me so so sad for my part in it. I know that it affected all of them. I was only an active alcoholic for two years-well the heavy drinking started in my 30's but that was just the earliest stage of the disease. The intense addiction part of alcoholism that came out of the darkness was about 18 months to 2 years. I lost important events that I can never get back. And when I was blacked out I was a shell of myself. A ghost that happened to belong to this husband and these kids. I am actually working on a formal amends with my kids now but it is not ready. I am going to schedule with our family therapist who has extensive knowledge in the recovery field being that she counsels addicts and she told me her boyfriend is one, recovered and also a pyscologist with her.
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Old 08-14-2019, 03:38 PM   #15
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Default Re: Anyone have Traumatic Amnesia and Severe Chronic Fatigue from CPTSD?

@sarahsweets

Bless your heart, honey; that is a lot to manage. I hear you on your sadness for what you caused your loved ones. I struggle with that also.

It sounds to me that you are carefully pacing yourself, working on those problems to better your life. In its turn, that ripples out to embrace your family and loved ones.

Making amends is POWERFUL in healing all connected in that relationship, when allowed to. Plus, you model how important keeping your side of the street clean is in a person's life and growth.

Your family therapist should be able to diagnose CPTSD. Have yawl talked about what all contributes to your being in therapy? I don't need you to answer that question, if you prefer not to. I will respect your decision. It is simply a question that occurred to me reading your post. xoxox
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Old 08-15-2019, 09:29 AM   #16
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Default Re: Anyone have Traumatic Amnesia and Severe Chronic Fatigue from CPTSD?

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@sarahsweets

Bless your heart, honey; that is a lot to manage. I hear you on your sadness for what you caused your loved ones. I struggle with that also.

It sounds to me that you are carefully pacing yourself, working on those problems to better your life. In its turn, that ripples out to embrace your family and loved ones.

Making amends is POWERFUL in healing all connected in that relationship, when allowed to. Plus, you model how important keeping your side of the street clean is in a person's life and growth.

Your family therapist should be able to diagnose CPTSD. Have yawl talked about what all contributes to your being in therapy? I don't need you to answer that question, if you prefer not to. I will respect your decision. It is simply a question that occurred to me reading your post. xoxox
@HappyCrafter:
Our therapist was someone we started seeing when my daughter turned our life upside down and ran away. She also sees my son and other daughter. She has offered to see me but I had 16 years of therapy and wonder if its even worth it at this point.
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Old 08-18-2019, 11:37 PM   #17
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Default Re: Anyone have Traumatic Amnesia and Severe Chronic Fatigue from CPTSD?

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Originally Posted by tevelygo View Post
Did the narcolepsy start after you started working harder?



Just because whenever I try to work full time I get too bad symptoms (EXTREME) and so I think it would really jeopardise my health severely if I kept pushing that


I had to give it up once already last year because of that and I'm having to again






I so ****ing hate to wait wait wait like forever (already long years) but my other option is kill myself or maim myself permanently (with permanent physical problems) if trying too hard ???
@tevelygo sorry for the delayed response.

I recall symptoms going back into my teen years. It has gotten progressively worse in my 30s (I'm 39 now). And yes, more work or more activity can definitely make it worse.
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Secondary Dx: Generalized Anxiety Disorder with mild Agoraphobia.

Meds I've tried: Prozac, Zoloft, Celexa, Effexor, Remeron, Elavil, Wellbutrin, Risperidone, Abilify, Prazosin, Paxil, Trazadone, Tramadol, Topomax, Xanax, Propranolol, Valium, Visteril, Vraylar, Selinor, Clonopin, Ambien

Treatments I've done: CBT, DBT, Transcranial Magnetic Stimulation (TMS), Talk therapy, psychotherapy, exercise, diet, sleeping more, sleeping less...
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