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Old 10-27-2018, 09:14 AM #11
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Default Re: What do I do for pain?

I am furious at the medical community for riding this trend of not prescribing pain meds. They tell us to walk, to lose weight, blah, blah - but how are people in chronic pain supposed to do anything except mild stretches or very low-impact yoga? It's sick that so many people with chronic pain are ignored.
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Old 11-02-2018, 10:49 PM #12
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Default Re: What do I do for pain?

I read this ridiculous article that was going to stop your pain. You were to cut down on red meat, fine, can do that. And to the rest of your regular food (no snacks and the sorts) JUST add 10 servings of fruit and veg, and it cannot be juiced.

Every day? Yeh sure, between meals I'll just eat my 10 apples and I will chew all day long. Talk about sore jaw from that. I could switch some of my food for veg, but it would be endless chomping anyway.

They could as well told me to eat 10 watermelons. I eat a lot of veg as it is but I don't reach more than max 4 servings often less a day, even if all my food is veg.

How much do they think my tummy can hold???
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Old 11-12-2018, 06:52 AM #13
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Default Re: What do I do for pain?

Are you in a position where you can find another doctor? You know, one who might listen?
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Old 03-08-2019, 12:22 PM #14
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Default Re: What do I do for pain?

I actually realized WHY I have pain. Almost half of Lupus sufferers are hypermobile. Hypermobility is also connected with autism and anxiety. Might sound weird, but there are studies proving this.

Am I hypermobile, oh heck yes. Not freakishly so, but I definitely fill all the criteria for hypermobility disorder. I've looked up exercises to actually strengthen muscle to stabilize all those loose joints but it is hard to find something that seems valid.

I remember being a kid and being yelled at to sit up straight. Trying to do so, I just felt extremely drained after a while. They just thought I was lazy and people showed me how easy it was to sit up straight, still i failed. Back then everything was about willpower, there was never anything different about anyone so, even if someone had been kinder they wouldn't know how to help.
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