Does Anyone Else Suffer From Autoimmune Disease - Forums at Psych Central



advertisement
Reply
 
Thread Tools Display Modes
Old 05-12-2019, 11:29 AM #1
Keyplayer's Avatar
Keyplayer Keyplayer is offline
Member
 
Member Since: Jul 2017
Location: New Hampshire
Posts: 358
Keyplayer Keyplayer is offline
Member
Keyplayer's Avatar
Keyplayer has no updates.
 
Member Since: Jul 2017
Location: New Hampshire
Posts: 358

1 yr Member
688 hugs
given
Default Does Anyone Else Suffer From Autoimmune Disease

HI Guy`s ,

Right now my left hand is very sore , as is my back.

My skin on my hands and legs are a mess and painful to the touch.

If I stay in one place too long , my back feels like it is going to break when I try to move.

I have two appointments next week , one tomorrow to see what services I might qualify for , then Thursday for a health assessment .

Bureaucratic BS , what I need is relief , I have prednisone at home , but I have refused to take it because of the high dose needed to help and then upon tapering down to off the symptoms come back , the relief does not last.

Just a sad day , my therapist thinks my autoimmune issues are stress related , me too , I agree with her assessment , but that does no make it go away.

Just wanted to see if any you guy`s have skin and joint problems and what you do when you have a flare-up.

Thanks

Keyplayer
Keyplayer is offline   Reply With QuoteReply With Quote

advertisement
Old 05-12-2019, 12:32 PM #2
speckofdust's Avatar
speckofdust speckofdust is online now
Member
 
Member Since: May 2016
Location: USA
Posts: 346
speckofdust speckofdust is online now
Member
speckofdust's Avatar
speckofdust Back After 2 Years!
 
Member Since: May 2016
Location: USA
Posts: 346

3 yr Member
212 hugs
given
Default Re: Does Anyone Else Suffer From Autoimmune Disease

I do, Key. The consensus on Multiple Sclerosis is still that it's an autoimmune disease/disorder, and I was diagnosed with that in 1998. Quite often, I experience skin and joint problems. Unfortunately, I haven't found that any prescription or OTC meds help much. I've tried Meloxicam, Aleve, etc.) Icing helps sometimes - it at least numbs the area for a while. I often have burning and itching symptoms on the skin. For the areas that make sense, I use an itch relief cream or lotion. Sometimes, but not usually, some diphenhydramine helps. The draw back with that is that it makes me very sleepy, so I only take it at bed time if at all.

Maybe related (or maybe not...) I have T2 Diabetes and Progressive Muscular Atrophy (PMA).

I would be interested in finding out what others have tried and what has or hasn't helped.
__________________
And it's times like these when we all need to hear the radio; because from the lips of some old singer, we can share the troubles we already know. - Elton John



Read [forum posts and] your email with a sense of responsibility, and I will do the same. - Lynn Gaertner-Johnston
speckofdust is online now   Reply With QuoteReply With Quote
Hugs from:
Old 05-13-2019, 11:00 AM #3
-jimi-'s Avatar
-jimi- -jimi- is offline
Jimi the rat
 
Member Since: Dec 2008
Location: Northern Europe
Posts: 6,054
-jimi- -jimi- is offline
Jimi the rat
-jimi-'s Avatar
-jimi- is a vermin. Please feed me anyway.
 
Member Since: Dec 2008
Location: Northern Europe
Posts: 6,054

10 yr Member PC PoohBah!
Default Re: Does Anyone Else Suffer From Autoimmune Disease

Yea, but I really don't take meds for it. I'm banned from the specialist for refusing steroids but I really don't want to live in a nonstop panic attack. They just think that is not to do with them, just see a psychiatrist for that. Yea right. Idiots.
__________________
-jimi- is offline   Reply With QuoteReply With Quote
Hugs from:
Old 05-18-2019, 09:43 PM #4
SilverTrees's Avatar
SilverTrees SilverTrees is offline
Grand Member
 
Member Since: Mar 2019
Location: Here
Posts: 967
SilverTrees SilverTrees is offline
Grand Member
SilverTrees's Avatar
SilverTrees is wishing everyone peace and hope.
 
Member Since: Mar 2019
Location: Here
Posts: 967 (SuperPoster!)

1,212 hugs
given
Default Re: Does Anyone Else Suffer From Autoimmune Disease

Hello Keyplayer. I'm so sorry you're in pain I don't live with autoimmune problems but several of my family members do and I was talking to my TCM doctor (PhD in Traditional Chinese Medicine) about them. He treats people with pain associated with various autoimmune conditions. One of his patients has really bad arthritis pain and finds relief via acupuncture. My TCM doc got rid of my migraines which were getting scary before I met him. Within two months of regular treatment from him, my migraines stopped and have not returned 10 months later.

Sidenote: my doctor said that one of the most important things for folks with autoimmune conditions is that they don't drink alcohol. I don't know if you're a drinker but just thought I'd mention for your information.

Maybe acupuncture would be worth a try for you? Also helps me with insomnia, depression, and anxiety.

Peace and hope to you!
SilverTrees is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Old 05-19-2019, 05:07 AM #5
sarahsweets's Avatar
sarahsweets sarahsweets is online now
Grand Poohbah
 
Member Since: Dec 2018
Location: New Jersey
Posts: 1,974
sarahsweets sarahsweets is online now
Grand Poohbah
sarahsweets's Avatar
sarahsweets Humor is my end game..
 
Member Since: Dec 2018
Location: New Jersey
Posts: 1,974 (SuperPoster!)

107 hugs
given
Default Re: Does Anyone Else Suffer From Autoimmune Disease

I have a disease called sjogrens disease. Its characterized by dry mucus membranes like eyes, mouth, nose and skin. Joint pain, and degeneration and swelling. A multitude of other stuff. I have had joint replacement surgery and recently rotator cuff surgery. I am doing great though. I stay active and treat the symptoms as best I can. I have a pain management doc that I go to and we have started with targeted cortizone shots. The one in my shoulder didnt work because I had a tear but the ones in my hands do work. We are going to be focusing on my hips in another month.
__________________
"I carried a watermelon?"

President of the no F's given society.
sarahsweets is online now   Reply With QuoteReply With Quote
Hugs from:
"Thanks for this!" says:
Old 05-19-2019, 06:33 AM #6
speckofdust's Avatar
speckofdust speckofdust is online now
Member
 
Member Since: May 2016
Location: USA
Posts: 346
speckofdust speckofdust is online now
Member
speckofdust's Avatar
speckofdust Back After 2 Years!
 
Member Since: May 2016
Location: USA
Posts: 346

3 yr Member
212 hugs
given
Default Re: Does Anyone Else Suffer From Autoimmune Disease

Quote:
Originally Posted by SilverTrees View Post
Hello Keyplayer. I'm so sorry you're in pain I don't live with autoimmune problems but several of my family members do and I was talking to my TCM doctor (PhD in Traditional Chinese Medicine) about them. He treats people with pain associated with various autoimmune conditions. One of his patients has really bad arthritis pain and finds relief via acupuncture. My TCM doc got rid of my migraines which were getting scary before I met him. Within two months of regular treatment from him, my migraines stopped and have not returned 10 months later.

Sidenote: my doctor said that one of the most important things for folks with autoimmune conditions is that they don't drink alcohol. I don't know if you're a drinker but just thought I'd mention for your information.

Maybe acupuncture would be worth a try for you? Also helps me with insomnia, depression, and anxiety.

Peace and hope to you!
I've been thinking about doing acupuncture for many years. I just haven't been able to afford it with all of the other medical costs I have to deal with. If I ever have room in my budget, I really want to try it, though! I've always wondered what it would feel like to be a human pin cushion!
__________________
And it's times like these when we all need to hear the radio; because from the lips of some old singer, we can share the troubles we already know. - Elton John



Read [forum posts and] your email with a sense of responsibility, and I will do the same. - Lynn Gaertner-Johnston
speckofdust is online now   Reply With QuoteReply With Quote
Hugs from:
"Thanks for this!" says:
Old 05-19-2019, 10:33 AM #7
SilverTrees's Avatar
SilverTrees SilverTrees is offline
Grand Member
 
Member Since: Mar 2019
Location: Here
Posts: 967
SilverTrees SilverTrees is offline
Grand Member
SilverTrees's Avatar
SilverTrees is wishing everyone peace and hope.
 
Member Since: Mar 2019
Location: Here
Posts: 967 (SuperPoster!)

1,212 hugs
given
Default Re: Does Anyone Else Suffer From Autoimmune Disease

Quote:
Originally Posted by speckofdust View Post
I've been thinking about doing acupuncture for many years. I just haven't been able to afford it with all of the other medical costs I have to deal with. If I ever have room in my budget, I really want to try it, though! I've always wondered what it would feel like to be a human pin cushion!
Believe it or not, it's actually really relaxing! It calms the central nervous system. And sometimes I meditate during my sessions.

He uses 25-30 needles on me depending on the day and how I feel but he told me that he used 100 needles on the patient with bad arthritis pain!

I am lucky because my insurance currently covers my acupuncture. Also, I've heard of clinics who offer acupuncture via a "pay what you can" option. My friend had bad nausea during her pregnancy and that's how she was able to pay for her acupuncture....which she described as "amazing" when her nausea stopped.
SilverTrees is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 05:40 AM.

Powered by vBulletin® — Copyright © 2000 - 2019, Jelsoft Enterprises Ltd.



 

advertisement

Psych Central Forums

Psych Central is the leading mental health website, overseen by mental health professionals since 1995.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. .

Always consult your doctor or mental health professional before trying anything you read here.
Please read the full disclaimer.