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Old 11-04-2019, 12:57 PM   #11
Lilly2
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Lightbulb Re: Chronic Fatigue Syndrome

I was the OP of this thread, but I left and came back, so now I'm Lilly2. Anyway, I don't know if CFS is treatment-resistant, but I do know that I was misdiagnosed with MDD years ago, since the VA determined that I wasn't depressed but rather chronically fatigued. They connected my CFS to MST PTSD, so they are still treating it as a somatoform disorder, or something in my head, as opposed to something related to some illness that never healed correctly. They don't use ME to describe CFS at all, and for all intents and purposes, their treatments comprise the graded-exercise thing, which I haven't done yet. I was too tired to even do that. And their requests to fill out daily forms for every single thing that I do throughout the day coupled with every feeling that I have coupled with a bunch of rating scales that differ on each of the 5 or so forms was overwhelming. That alone stressed me out!!!!

My PEM is real!!!

But, I am depressed from having CFS (not the other way around). If I wasn't so fatigued, I'd love to do a bunch of things, and I could engage in therapy without having to take time off for PEM from therapy.

Maybe, just maybe, some people with TRD actually have been misdiagnosed; maybe they have CFS, like I do. Or, maybe, just maybe, CFS isn't a psychological disorder (e.g., somatoform), but rather a biological one. Maybe TRD is too.
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Old 01-12-2020, 06:21 AM   #12
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Default Re: Chronic Fatigue Syndrome

What difference does it make what the damn diagnosis is. The main thing is that you are treated for whatever symptoms you present with. And get the right meds for it. Iím also constantly in a fight or flight mode. Can NEVER relax. It sucks when itís a physical AND mental problem.
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Old 01-12-2020, 06:26 AM   #13
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Default Re: Chronic Fatigue Syndrome

Quote:
Originally Posted by continuosly blue View Post
What difference does it make what the damn diagnosis is. The main thing is that you are treated for whatever symptoms you present with. And get the right meds for it. Iím also constantly in a fight or flight mode. Can NEVER relax. It sucks when itís a physical AND mental problem.
Well, for one, different diagnoses will have different treatments even though they have some of the same symptoms. The flu and pneumonia will have some of the same symptoms but different treatments. So yes, the right diagnosis is important since it will often dictate treatment.
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Primary Dx: C-PTSD and Severe Chronic Treatment Resistant Major Depressive Disorder
Secondary Dx: Generalized Anxiety Disorder with mild Agoraphobia.

Meds I've tried: Prozac, Zoloft, Celexa, Effexor, Remeron, Elavil, Wellbutrin, Risperidone, Abilify, Prazosin, Paxil, Trazadone, Tramadol, Topomax, Xanax, Propranolol, Valium, Visteril, Vraylar, Selinor, Clonopin, Ambien

Treatments I've done: CBT, DBT, Transcranial Magnetic Stimulation (TMS), Talk therapy, psychotherapy, exercise, diet, sleeping more, sleeping less...
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