advertisement
Reply
 
Thread Tools Display Modes
Old 09-05-2020, 07:47 PM   #1
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving 🚨Covid19
 
Member Since: Sep 2012
Location: Mvskoke Nation Rez
Posts: 5,425
8 yr Member
303 hugs
given
PC PoohBah!
Default Autoimmune Diseases and Rare Diseases Check-In

☀️Not Many Symptoms Right Now
🌦A Few Symptoms But Theyíre Manageable
☔️Recovering From A Few Heavy Symptom Days
🔥In A Flare
🚨Symptoms Feel Unmanageable

Autoimmune Diseases
An autoimmune disease is an illness that causes the immune system to produce antibodies that attack normal body tissues. Autoimmune is when your body attacks itself. It sees a part of your body or a process as a disease and tries to combat it. This is different from a Primary Immuniodefeciency Disease (PIDD), which occurs when when you do not have the ability to defend against outside diseases.

Rare Diseases
In the United States, a rare disease is defined as one that affects fewer than 200,000 people. The prevalence of a rare disease usually is an estimate and may change over time.

Individuals can be disabled by chronic autoimmune diseases and rare diseases such as Asthma, Diabetes, Lyme Disease, Cancer, Chronic Fatigue Syndrome, Lupus, Hashimoto, Fibromyalgia, Celiac Disease, Multiple Sclerosis, Ehlers-Danlos etc. This is a brief list, a full list can be found online.
It can be very challenging for individuals with invisible chronic illnesses to receive support. Many of us experience discrimination, stigma and toxic positivity.

☀️Not Many Symptoms Right Now
🌦A Few Symptoms But Theyíre Manageable
☔️Recovering From A Few Heavy Symptom Days
🔥In A Flare
🚨Symptoms Feel Unmanageable
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Hugs from:
"Thanks for this!" says:

advertisement
Old 09-05-2020, 10:32 PM   #2
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving 🚨Covid19
 
Member Since: Sep 2012
Location: Mvskoke Nation Rez
Posts: 5,425
8 yr Member
303 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

🔥In a flare
This flare is my fault. I ate a few meals over the last three days that were not healthy/friendly to my immune system.
I was able to leave and purchase fresh fruits/vegetables, cranberry juice and soup. I also have tea to calm my stomach. 🍅🥬🥒🥦🥕🌽🍍🍌
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Hugs from:
Old 10-05-2020, 02:38 AM   #3
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving 🚨Covid19
 
Member Since: Sep 2012
Location: Mvskoke Nation Rez
Posts: 5,425
8 yr Member
303 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

♻️♻️♻️♻️ RePosted @withregram ē @worrywellbeing Over the past few days, Iíve been struggling and having dealt with mental health problems for a long time, Iíve learnt to recognise the signs that Iím finding things harder than usual. I canít really pinpoint whatís wrong, I just donít feel right. Iíve been finding it hard to get up in the mornings, Iíve had panic attacks (something I havenít experienced in months), my thoughts have felt completely uncontrollable. If youíre going through a difficult time at the moment, youíre not alone. Iím not sure what the answers are, this account has never been about giving advice and telling people how to be happy, itís about me being honest, sharing my experiences, sharing things that have helped me, reminding you that youíre not alone. I am struggling at the moment, but thatís okay. And if youíre struggling, thatís okay. You will get through this. Recognising you are struggling is the first important step in helping yourself feel better💚
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Hugs from:
Old 10-07-2020, 02:48 AM   #4
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving 🚨Covid19
 
Member Since: Sep 2012
Location: Mvskoke Nation Rez
Posts: 5,425
8 yr Member
303 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

The last two days Iíve been in a lot of pain. When weather fluctuations happen I get flares from my autoimmune illnesses.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Hugs from:
Old 10-15-2020, 07:01 AM   #5
sarahsweets
Threadtastic Postaholic
 
sarahsweets's Avatar
sarahsweets has no updates.
 
Member Since: Dec 2018
Location: New Jersey
Posts: 4,679 (SuperPoster!)
1 yr Member
163 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

Had my first offical flare up with the arthritis. Never had it before. Horrible pain the joints since friday. Started a steroid pack on monday and things seem better.
__________________
"I carried a watermelon?"

President of the no F's given society.
sarahsweets is offline   Reply With QuoteReply With Quote
Old 10-16-2020, 06:23 AM   #6
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving 🚨Covid19
 
Member Since: Sep 2012
Location: Mvskoke Nation Rez
Posts: 5,425
8 yr Member
303 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

Weather fluctuations has my immune system going bonkers.

Yesterday, I found out my teenager needs surgery on both eyes. Our dog has been ill. We had a second trip to our vet
yesterday. Our dog has a joint out of place, which is not recommended for surgery however will turn to arthritis.
She will begin taking a supplement for life. Our baby also has an ear infection and has medication to take for two weeks.

I just took all my vitamins and supplements. Iím letting my herbal tea cool off.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Hugs from:
Old 10-16-2020, 11:20 PM   #7
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving 🚨Covid19
 
Member Since: Sep 2012
Location: Mvskoke Nation Rez
Posts: 5,425
8 yr Member
303 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

Friday, October 16th , 2020

When fall and winter arrive I get a bit nervous about my depression returning. Iíve been doing really well the last two years. I have not been on any depression medication or any antipsychotic since the fall of 2018. I created my own coping tool box which I also have to stay up on my autoimmune diseases and rare diseases. I have Hashimoto/Thyroidism/Graves Disease which definitely does impact your mood and emotions.

I had a great conversation with my teenager today. My teenager also has Hashimoto and other autoimmune diseases and rare diseases as well. We both acknowledged that changing our foods, eating certain foods in moderation and regularly being active has made a big difference in our moods. Our mood is not such a roller coaster.

The last few days I can feel how my body is starting to become symptomatic. Weather changes are a big challenge for me. My fibromyalgia pain and fatigue is not shy. Yesterday and today the nausea has been terrible. I drink a lot of caffeine free loose herbal teas. Iíve been very diligent about taking my vitamins and supplements. We recently moved and today a contractor installed grab bars in my restroom.

I walk our dog frequently. Being out in nature helps keep my depression away. My legs have been in a lot of pain so I donít walk too long. I really miss going hiking and look forward to resuming. I sometimes get overwhelmed juggling multiple chronic illnesses and having to stay on healthcare specialists to provide continuity of care.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Hugs from:
Old 10-22-2020, 07:02 PM   #8
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving 🚨Covid19
 
Member Since: Sep 2012
Location: Mvskoke Nation Rez
Posts: 5,425
8 yr Member
303 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

Me and My Grandma Were Initially Diagnosed w/ Pneumonia. Then Diagnosed w/ Covid19. My Mom, Stepdad and 9 Year old Niece Also Diagnosed w/ Covid19. Me, My Mom and Grandma Are Very Symptomatic. Used My Epipen Yesterday and had to go back to a local hospital. Covid19 is not fake or a hoax.

Iíve been sleeping a lot, taking my vitamins and supplements. Plus eating a lot of fresh vegetables, fruits and drinking herbal teas. And spraying all the rooms w/ Lysol, cleaning doorknobs and light switches etc.

I was not sure about the Pneumonia Diagnosis. My Grandma was Positive it was wrong. My First Symptoms, My Asthma Was Continuously Flaring Up. Then Fever, Chills, Diarrhea and Vomiting etc. The three of us with symptoms all have asthma and other autoimmune diseases. Plus I also have two rare diseases.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Hugs from:
Old Today, 12:16 AM   #9
Travelinglady
Legendary Wise Elder
 
Travelinglady's Avatar
Travelinglady is trying to keep her back from hurting.
 
Member Since: Sep 2010
Location: North Carolina
Posts: 40,345 (SuperPoster!)
10 yr Member
19.8k hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

coco, I hope you feel better soon. Keep us informed, dear one.
__________________
Travelinglady is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:13 PM.

Powered by vBulletin® — Copyright © 2000 - 2020, Jelsoft Enterprises Ltd.



 

advertisement

Psych Central Forums

Psych Central is the leading mental health website, overseen by mental health professionals since 1995.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.
Please read the full disclaimer.