All throughout the day

Hi all ~ New to this group. I was dx'd as having DDNOS, not DID.


I find I go in and out of dissociation all throughout the day. Take this morning, setting up my coffee maker. First I put in the coffee grounds and turned it on and nothing happened. Kept coming back to check and nothing happened. Finally checked the water and bingo, I never put the water in. Or I start to make coffee and walk away, leaving it undone and come back an hour later wondering why there is no coffee. Or forgetting to put the grounds in and just finding hot water in the carafe.


I find the simple chores, very difficult to follow thru.


Birdie

welcome

I have OSDD too.

DDNOS name was discontinued back in 2013 around the world, now the name is called OSDD and there are many different dissociative disorders in that name.

my OSDD disorders are macropsia and tachypsychia among others.

for me making coffee mistakes like that is not part of my OSDD disorders.

my suggestion is let your treatment providers know what happened and they can tell you which OSDD disorder you have and if your having trouble making coffee is part of that disorder for you. they will be able to tell you what you need to do in order to be able to make your coffee with out your OSDD symptoms interfering depending upon which OSDD disorder you have.

Are you under a lot of stress,have many distractions or a lot going on at once?Maybe young children,pets, a busy lifestyle?

The reason I ask is I don't have a dissociative disorder yet recently I forgot I turned on the bathroom sink water until I went back in there to a flooded floor.I have waited for the coffee to get done just to realize there was no coffee in it,or no water and have even forgot to turn it on.I go to the store for one specific item and after I get home realize I forgot to get it or paid for it and forgot to take it out to the car.

I could continue telling many more things,things like that happen often for me.But,I have a pretty chaotic life and have to do so much and be so much for everyone that it's hard to stay focused on the task at hand.

Hi Betty ~ I am disabled, so I don't work. I spend alot of time at home with my cat, so I live a very sedative life. There are alot of emotional issues going on, but not so that I would be that distracted.


I understand what you are saying, will keep that in mind.


My gosh, you do live a hectic life style. I read somewhere that multi-tasking is not as effective as once thought and can lead to tasks left undone.


Nice to hear from you and thank you for your response, appreciate that !!

Birdie

Hello Amandalouise ~ I had no idea that DDNOS was no longer used. I did look up OSDD disorder and it's very broad and I have no idea where I would fit in the new category.


I did spend several weeks at Shepherd Pratt Hospital in 2001, in their trauma wing and had Dr. Loewenstein as my primary psych doc there and this was his dx as being DDNOS. With the 30 year history with my former psych doc (now retired), he always felt I dissociate. However, my neurologist feels I have some type of petite mal seizures too. So, there are the two differing thoughts.

When I am out in public and talking face to face with someone that I may feel as threatening, I disappear for a few minutes and the person I am talking to has to reach out to me to bring me back into the present moment.


I do have early childhood trauma and ongoing trauma throughout life that was never properly treated long term.


Just looked up Shepherd Pratt and there is alot of information about the new classifications of DSM-5.


I will look up your dx and see how that applies to you "my OSDD disorders are macropsia and tachypsychia among others.". How are you managing this, are you in therapy for help with this complex disorder?



Thank you so much for this new information.

Birdie

May trigger ~ Description of Dissociation.


Amandalouise ~


[QUOTE=amandalouise;6602803]welcome
my OSDD disorders are macropsia and tachypsychia among others.

Okay, looked up macropsia and tachypsychia. I have talked to my neurologist about my experiences and he does not understand what I am saying or thinks I am making this up. Talking to my psych doc and he just refers me back to my neurologist.


There are other very strange things that happen to me. I have always had what is commonly called the Alice and Wonderland effect, where I suddenly appear too large for my environment or too tiny. One day, when out walking in my neighborhood I experienced strange sensations. The buildings changed into two colors - red and blue. The buildings changed shapes and moved and swayed. I was unable to move during this time. Other things happen such as the landscape changes shape, sways or moves under my feet. Stepping up on curbs oftentimes will change heights, so I can step up to get onto a curb thinking it's two feet high when it might be only several inches. I oftentimes experience altered sounds or suddenly the environment becomea black and white and looses color. I can feel separated from my body or floating feeling, spaced out, deja vuu too. I'm frightened of going into a grocery store as sometimes the shelves move and arch into me and I never know if the shelves are falling into me.With the height of the shelves now it's too much to bear. If I go into a store with shorter shelving, I'm okay.


During a full blown panic attack, the whole word changes. Colors are very sharp, hearing is very loud, blood sugar suddenly drops and I feel as if I am going to faint. I shake so badly that I cannot speak or function. I freeze temporarily until I feel I can seek a safe place.


These are never part of my migraine aura where I experience crystaline shapes that change color in my field of vision, or the smell of burning rubber, metallic taste in my mouth and high pitched ringing in my ears, before a seizure.


Also, the color red. I can't go into Target because everything is red there and the saturation of the color will bring on visual and auditory disturbances.


These are just a few of what I experience that come out of the blue. Sometimes when I have to leave home I will experience panic attacks just minutes after leaving and feel I am in an altered state that I cannot seem to get out of until I arrive back home and bits and pieces of my time outside my home are gone.


It's such a wonder to be able to talk to someone who has experiences such as I. Thank you soo much for responding to my thread. With this knowledge, I can now present myself to be better understood !!

yes I am in treatment for my OSDD.

yes OSDD is a very broad diagnostic label. think of it like a category / title and inside that category / title are many different dissociative disorders.

yes macropsia can be a neurological problem too, it was added to the dissociative disorders category OSDD also due to some people with dissociative problems have this problem. it all depends upon your own problems and symptoms, mine is related to my dissociation problems so mine is listed as the dissociative macropsia. yours from the fact that your treatment provider is sending you to your neurologist says if you have macropsia its related to your neurological problems rather than dissociative.

yes it is hard to know where you fit in this disorder. you will not be able to do the self diagnosing / trying to figure out where you fit in with OSDD disorders because most of what this disorder is not available to the general public, (you cant find information online, in forums and so on ………..until after ……...you have been diagnosed with one or more of the 10-15 OSDD disorders and told by your treatment providers which OSDD disorder you have.

once you get your OSDD diagnosis it will look like this on your files...

(your name) has OSDD - (name(S) of your Other Specified Disorders that are on a treatment providers only list of disorders)

this disorder category the treatment provider ............must........... tell you which OSDD disorder you have and how and why you were diagnosed with that specified disorder. they will sit down with you and explain everything to you at that time.

after you have your OSDD disorder name then you may be able to use the internet to find more information.

Thanks soo much for hanging in with me and helping me understand. I see I have much discovery ahead of me. Feeling fortified with diagnostic terms, etc., now. Will be able to discuss with my neurologist going forward.



Birdie

I want to thank both of you for this thread. I think my whole life just changed. I thought I was the only one with such strange experiences.

Hello Beth ~ I am soo glad you found my thread and now understand that you are not alone. I thought this was a normal experience, but I felt uncomfortable in expressing the details to anyone, would anyone believe me.....


Hoping this helps in your journey of discovery

Birdie