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Default Jun 16, 2020 at 06:57 AM
  #1
Some may remember I was diagnosed with MGUS - Monoclonal Gammapothy of Undetermined Significance in February. This is a precursor condition to blood cancer. It supposedly moves along slowly about 1% chance per year. But I think it is more like a 20% chance over 10 years.

There are several blood tests for it (like 8) and I was lucky that only one came back abnormal. The "M-spike". When I was diagnosed it was small.

.5 g/dl. Where normal is 0.

There are a lot of people who never get to cancer. I have come to conclude it is likely that there are 5 or so things that cause it, including cancer, but they don't know what the others are so it has to be watched.

I had a bad cold in December which possibly was the corona... and a strong virus can cause an M-spike and nothing else. If any of the other tests come back abnormal it is likely not due to a virus.

So I went about trying to heal my body and see if getting my immune system up, eating protein etc and generally allowing my body to dispose of the monoclonal proteins could work.

And it might have worked.

My m-spikes have gone down. From .5 g/dl in March to .3g/dl. While my doctor warned me that these can move around for no apparent reason... it is possible the blood test itself comes back with slightly different numbers and nothing has changed... this is good for a few reasons.

1. a sign of blood cancer is that the numbers keep going up... this is why my specialist wanted tests every three months the first year because if it moves up early on you have a problem. Even if the test is wrong it is likely that it hasn't gone up.

2. Because all of my other numbers are normal... (most people have two or three things wrong) I believe that this "spike" is something I can nip in the bud. This kind of supports that... as it is going down. It is possible the spike was related to the illness I had in December -- normally no one would have even tested for it but for I was having some back pain.

So I was thrilled to tell everyone on my support board. And of course, no one supported me. I have come to conclude that the people on the support boards have serious cases and thus have no possibility of nipping it in the bud. Thus, they don't want YOU to do that. Everyone had to tell me there was no possibility of it going away because their doctor said so. Unfortunately I have found several studies that showed that it did. Specifically stating that the best likelihood of it going away was in people who had small numbers and nothing else wrong. But everyone had to jump on me for that. So I am done with their support. Why do people always have to be naysayers.

Still happy

If it doesn't go away, it doesn't go away. But I sure am going to try.
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Default Jun 16, 2020 at 08:29 AM
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That is good news. Happy for you.
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Default Jun 16, 2020 at 08:39 AM
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Great news! I'm glad to hear that.
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Thumbs up Jun 16, 2020 at 01:38 PM
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I don't know anything about this myself. But I'm glad you have some good news. Thanks for sharing it!

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