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Raistlin00
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Default Mar 24, 2019 at 03:19 PM
  #1
I just got out of the hospital because I wasn't on my meds, and thankfully I respond well to Invega or the generic form Paliperidone. My only concern are the possible side effects to these medications. Are they pretty rare some of the more scary ones or are they more common than I might imagine? I've realized I need to take meds though. I've tried numerous times and I would be good for awhile, then I'd revert back to psychosis mode and keep getting worse. I'm just a little concerned about some of the side effects to Invega.

I already experienced one side effect already and it's permanent. It's a rather embarrassing one, but I'm sure you can figure it out from context clues. My concern is if I suffered one, what are the odds I might not experience others in the future? Tho I'm between a rock and a hard place. If I don't take my meds I'll revert back to Mr. Hyde, while on the other hand it seems like I'm playing Russian Roulette. Am I worrying too much because the other side effects are so rare, or are some of my concerns valid? If you have time take a look at possible side effects to Invega. Pretty extensive list, some are actually life threatening. I respond will to Invega though, but I am curious is there anything else out there that works well that doesn't have such crazy side effects?
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Default Mar 24, 2019 at 11:56 PM
  #2
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Originally Posted by Raistlin00 View Post
I just got out of the hospital because I wasn't on my meds, and thankfully I respond well to Invega or the generic form Paliperidone. My only concern are the possible side effects to these medications. Are they pretty rare some of the more scary ones or are they more common than I might imagine? I've realized I need to take meds though. I've tried numerous times and I would be good for awhile, then I'd revert back to psychosis mode and keep getting worse. I'm just a little concerned about some of the side effects to Invega.

I already experienced one side effect already and it's permanent. It's a rather embarrassing one, but I'm sure you can figure it out from context clues. My concern is if I suffered one, what are the odds I might not experience others in the future? Tho I'm between a rock and a hard place. If I don't take my meds I'll revert back to Mr. Hyde, while on the other hand it seems like I'm playing Russian Roulette. Am I worrying too much because the other side effects are so rare, or are some of my concerns valid? If you have time take a look at possible side effects to Invega. Pretty extensive list, some are actually life threatening. I respond will to Invega though, but I am curious is there anything else out there that works well that doesn't have such crazy side effects?
I take Invega and am literally scared for my life everyday because of the side effect list.
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Default Mar 25, 2019 at 09:47 AM
  #3
hi. i was put on risperidone (related to invega, chemically) in a hospital. inpatient...there seems to be a preference for sedating meds, sometimes higher doses, etc. anyway...

once i got outpatient, i was switched to abilify. not the solution for everyone, but...for me, good times, as neuroleptics/antipsychotics go. not terribly sedating, chases the crazy away, no prolactin elevation, no massive weight gain...

in animal models, Abilify doesn't mess up the D2 receptors as much as other drugs. D2 receptors are targeted by -all- neuroleptics/antipsychotics. thing is...there's a 'sweet spot'; under the sweet spot, why bother? above the 'sweet spot,' tics and depression, even straight up Parkinson's-type symptoms emerge. long term, by blocking the D2 receptor, the antipsychotics/neuroleptics cause the brain to adapt...

problem there is, over the long haul, the way the brain adapts can cause people to need higher dose antipsychotics, more psych drugs, or...sometimes, possibly...have more psychotic relapses even -on- the prescriptions. eek.

so, in animals, it looks like abilify doesn't cause the same level of brain changes. it also seems to be associated with less 'tardive dyskinesia,' which...again, happens with -all- antipsychotics, some antidepressants, even (rarely...) antiseizure drugs, anti-nausea drugs, and very rarely stimulants and opioids. its what we get for messin' with dopamine, I guess. :-(

the thing about it is, though...the animal data looks awesome, people who treat the severely mentally ill (severe end of bipolar I, Schizoaffective, Schizophrenia, psychotic depression...) report good results -but- lots of people are being put on Abilify with other psych drugs, for less severe problems, and...

as a result, more reports are popping up about tardive dyskinesia, especially in the mood disorder crowd. to be fair, -some- psych data indicates that the bipolar i people have a higher rate of TD, in general, than people who have Schizophrenia, no major mood issues. :-( oh well.

but yeah...there's new D2 partial agonists, too. rexulti and..vraylar, I think. seroquel isn't 'better,' in terms of response and such, but it does have lower EPS (tics and such) and lower TD than risperidone. i think it also goes easier on prolactin. it is densely sedating, though.

oh, and...a prescriber person once recommended that i ditch the abilify and go for amoxapine. its an old, generic, tricyclic antidepressant that also partly metabolizes to an antipsychotic. this doctor told me that -when it is effective- , it can clear up psychotic depression in 2, 3 weeks. i declined, because...wow...tricyclics can be rough.

hope this helps a bit. :-)
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Default Mar 25, 2019 at 11:25 AM
  #4
Thank you for your in depth response. It's been seven years since this first manifested itself back in 2012. I was in denial and thought I could beat it on willpower alone, and I failed over and over again. This time I realize I need to be on meds, and I will also be going to therapy. I am going to a place that specializes in what I have. I know I need to stay on meds, I just worry about some of the side effects.


If I take anti psychotics long enough will I develop tardive dyskinesia, or is this just an uncommon side effect not all people suffer from? I'm already socially awkward and I'd hate to add facial tics and muscle spasms to the mix. What in your opinion is a good drug, that doesn't have as many scary side effects? I have no choice but to take meds, but on the other hand if I can still get effective treatment, and not put myself in as much risk this would be preferable. Regardless I have to stay on meds, I just want to limit the possible bad side effects as much as possible.
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Default Mar 25, 2019 at 11:30 AM
  #5
I talked to my therapist today and she said in her professional career she has seen many people take invega and not develop anything too severe. Still the side effects list is pretty scary I agree. When I talk to the doctor in two weeks, I'm going to go over this with him, and see if I am right to be concerned about the side effects, and if I can possibly take something with less severe ones. I've already experienced one permanent side effect from it which is where my concern lies. Like Austin Powers I lost my mojo, tho since I'm so socially awkward anyway it's not like it was doing me any good, still I'm only 33 so maybe there's a chance I might meet someone one day. Having that possibility forever or possibly forever taken from you is kind of a bummer.
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Default Mar 25, 2019 at 02:11 PM
  #6
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Originally Posted by Raistlin00 View Post
I talked to my therapist today and she said in her professional career she has seen many people take invega and not develop anything too severe. Still the side effects list is pretty scary I agree. When I talk to the doctor in two weeks, I'm going to go over this with him, and see if I am right to be concerned about the side effects, and if I can possibly take something with less severe ones. I've already experienced one permanent side effect from it which is where my concern lies. Like Austin Powers I lost my mojo, tho since I'm so socially awkward anyway it's not like it was doing me any good, still I'm only 33 so maybe there's a chance I might meet someone one day. Having that possibility forever or possibly forever taken from you is kind of a bummer.
Do tell me how it goes. I am also going to ask my doc about this med on Thursday. Unforunately the symptom you speak of is common with a variety of psych meds. I am not a male but I am around males where I live and it seems to be an issue with them. I only know because I am friends with sime of them and they have told me.
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Default Mar 25, 2019 at 02:20 PM
  #7
the horror stories make the news...and cause lawsuits, and kinda stick with you.

i just mentioned abilify because -if- you can get your medical coverage to be OK with it (its been generic 3 or 4 years...-still- ungodly expen$ive), it seems that its less toxic, in many ways, than a lot of other options.
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Default Mar 25, 2019 at 06:05 PM
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Originally Posted by still_crazy View Post
the horror stories make the news...and cause lawsuits, and kinda stick with you.

i just mentioned abilify because -if- you can get your medical coverage to be OK with it (its been generic 3 or 4 years...-still- ungodly expen$ive), it seems that its less toxic, in many ways, than a lot of other options.
Invega has been in the news?
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Default Mar 25, 2019 at 08:37 PM
  #9
risperidone people got sued (johnson and johnson, I think) for illegal marketing and the prolactin thing...some dudes got $$$ cuz they weren't warned about breast enlargement and other probs, i think there's been a TD lawsuit or 2.

sadly...its 'par for the course' with Big Pharma these days, -especially- with psych drugs.

the Invega is a real money maker...I seem to recall seeing an ad for a new injection that lasts not 1, not 2, but 3 whole months per shot. that's...90 days, with one (I'm thinking massive) injection. -shudder-
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Default Mar 25, 2019 at 09:31 PM
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risperidone people got sued (johnson and johnson, I think) for illegal marketing and the prolactin thing...some dudes got $$$ cuz they weren't warned about breast enlargement and other probs, i think there's been a TD lawsuit or 2.

sadly...its 'par for the course' with Big Pharma these days, -especially- with psych drugs.

the Invega is a real money maker...I seem to recall seeing an ad for a new injection that lasts not 1, not 2, but 3 whole months per shot. that's...90 days, with one (I'm thinking massive) injection. -shudder-
Yeah I am already not liking if I have to get off this med it will still be in my system 4 to 6 months after I am off. My doctor asks me now if I want the two month shot and I am like **** No! I already have trouble breathing in my sleep because of it this med. I want off!
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Default Mar 26, 2019 at 06:12 PM
  #11
I'm in a really bad situation unfortunately. I've tried for 7 years to beat this without meds, and I failed every time. I'd do good for a few months then slowly but surely fall apart and get hospitalized. I respond well to meds thankfully, I'm lucky in that regard, so I've accepted the fact I need meds. I just want to limit the possible side effects as much as possible. Damned if I do damned if I don't. Since I want to lead a productive life and not be viewed as a burden by my family or society, I have no choice but to stay on meds.


I'm determined not to let this thing beat me. It's just a shame so many psyche meds have such scary side effects. I might ask about Ambilify, and research it. I respond well to Invega, but I just worry about it's extensive list of side effects. I've accepted the fact I need meds though. I honestly just want to lead a productive life. Since this came on me at 27 back in 2012 it's been one constant struggle, but I won't give up. As long as I stay on meds I'll be fine.


I just hope nothing serious happens because of said meds. Thanks for all the insightful posts, I'm still new to this stuff. It's taken me 7 years to finally accept I have one a mental illness and can't beat it through sheer willpower alone. Mental illness reminds me of drug addiction in many ways. Just like an addict has to admit they are powerless over their addiction and give it up to a higher power so do I. I've at least taken the first step, so I hope to make progress. Let's just hope nothing debilitating occurs because of said meds along the way.
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