Anyone have a similar story?

So I’m curious how many people get diognosed ausburgers at a young age for it to be later recognized as something else how many in the general community has this actually happened to and the link between parents contributing to bad diognoses....I have always heard voices off and on the first time I could remember was hearing my dead grandpa speak to me and often I would get up at night and sit at the stairs waiting for him I was told I had ausburgers never told any doctor of that experience or similar even at a age of at the oldest ten I knew it was not normal and never confessed I don’t understand it’s like once you get a label everything else is thrown out the window and every time you have a problem your just misreading their intentions I have felt my life slipping away since i little I have no problem meeting people or talking to them when I actually want to Want is the key word here usually just when I feel like getting high anymore I get diognosed skitzoprhenic recently in rehab and told if I didn’t stop doing drugs that eventually medication wouldn’t be enough....with all that being said how many people with condition are criminally involved as I always hear they are pretty good at following rules and staying out of trouble outside of mistaking a sociol norm...as far as drugs getting them n how I get them I know what I’m doing ps I went to a charter school for kids with needs and met other people with these issues and they made me feel socially awkward like no relation whatso ever

I haven't been misdiagnosed with autism, but I have been misdiagnosed with plenty of other things over the years. And in the past couple of years, I did have a couple of people query if I could have autism, which I most certainly don't. I don't know if that's helpful to you though?

Diagnosis of things like this is very subjective. As such, there is often misdiagnosis. Especially when Drs ask the wrong questions, or receive wrong/incomplete information from others, like parents as you mentioned. And then, unfortunately, once you have these labels, everything gets twisted towards them as an explanation for things - it's called confirmation bias and happens with lots of things in everyday life too.

In terms of your current diagnosis, drug use massively complicates matters. Honestly, I wouldn't be comfortable diagnosing something like schizophrenia unless drug use had ceased for 6 months to a year, at least, and the issues were still ongoing. They are right though that ongoing drug use can make psychosis permanent and non-responsive to meds - it basically undermines the work that the antipsychotics are (supposedly) doing.

Anyway, I hope that answers your questions? If not, feel free to clarify.

Wishing you all the best

*Willow*

Yeah that actually helps a little i heard childhood skitzoprhenia is rare too but know whats in my head i stopped going to the doctors years ago its frustrating alot of the times the drugs were to cope i started selling them and just partying as a teen im way to social when im feeling good to fit that disciption but you are completly right i didnt become a complete recluse until after i started using meth i was spahris n thought i was doing good then god told me i needed to leave rehab a good portion i stay inside though is cause i have no self control i heard aomthing that makes alot of sense over half or something of skitzoprhenic are drug addicts

Ps I have always had friends was one them punk skaters you see getting arrested that peaked in high school before the hard drugs took over hahaha I’ll let you guys be the judge ...I just want to get better is pressure in your head actually a hallucination that y’all know of?

Advice from a science student : I advice you to visit your doctor. They all try to help you, competent or not is a matter of future. I wish you best of luck and please take the drugs as prescribed. There is no shame to be mentally ill, coming from a schizophrenic person who could write this due to his meds. ("Write this" in the sense that is acceptable and undestandable.)

Personally, I don't think the rate would be that high, but that's JMO. I do think that a proportion of people with sz self-medicate with drugs, and I think that ongoing drug use can also cause psychotic experiences which can get diagnosed as sz.

I'm not sure from what you've written...could you describe this in more detail? Or ask your treatment team about it?

All the best

*Willow*

Iits hard to explain like somtimes it feels like I can feel energy or water swirling around or it’s like something is pressing to the inside of my forehead I always feel like I’m being watched then it gets worse in public I can feel everyone reading my most onnner thoughts I was on sapphis for a couple weeks and for lack of better words it helped n now I just feel helpless

It could maybe be a hallucination. People can get somatic, and tactile hallucinations. But it could also be something physical, like a headache or migraine (people can get weird-feeling auras with migraines), or something else. So best to mention it to your treatment team.

Why does saphris/asenapine helping make you feel helpless? Did it stop working, or you get intolerable side effects, or something?

*Willow*

No i left impatient and couldnt get a refill I get migranes all the time tho so i dont think tyats what it is